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Member Since 02 Mar 2010
Offline Last Active Jan 13 2011 08:54 PM

Topics I've Started

Hypoglycemia And Being Constantly Hungry

08 June 2010 - 05:04 PM

So I've been gluten free for a while. I think that I get hit with low levels of gluten from the things around me. I haven't got that down yet. But my main concerns at the moment are feeling hungry all the time and getting hypoglycemic.

I have had issues with low blood sugar, usually when having a lot of pop and not eating anything, for a long time. However, going gluten free seems to have changed that. I used to drink a lot of pop. I still drink some. I've been cutting back the last few days to see if it helps with my blood sugar, it doesn't seem to affect it at all. I am a chronic migraineur as well, and hypoglycemia is one of my triggers. Typically getting hungry, then faint, irritated, adrenaline soaked, and just bat-poop crazy feeling when hypoglycemic gives me a migraine attack.

Prior to going gluten free, I did not get hungry much. I ate two meals a day at most, maybe a snack. The rest of my calories would come from pop (bad habit). I had (and probably still have) some really bad eating habits. I've always looked more or less healthy so my diet was never a concern to others. My chronic conditions never responded to diet changes in the past (going vegetarian, going vegan, going organic, going dairy free, going caffeine free, etc). The only thing that helpped was going gluten free. And that has eliminated my IBS symptoms, but everything else has flared back up again.

I have no doubt in my mind that eating gluten is bad for me. Not sure if I have celiac, or non-celiac gluten intolerance. But I do know, for the first month being gluten free, I felt awesome.

My problem now is, I'm poor. I live in a household with 5 other gluten eaters. But mostly, my bloodsugar constantly crashes and I'm always fricken hungry. I have been eating much more meat/protein and vegetables. I do not eat a lot of complex carbs because corn seems to bug me, and rice doesn't seem to fare much better. I eat nuts and things when I can afford them, fresh fruit, and dried fruit. But again, these things are expensive. I am feeling really sad because I don't know what to eat that I can keep eating because it's affordable.
I mentioned it to my new doctor (recently moved), he said because my old diet had so much refined grains and sugars that my body is still adapting to this diet. If that is the case when do I stop feeling like ass and start feeling normal? I don't think it's that simple, I think there is something wrong.

Some medical history:
Migraines since 12, chronically for the last 10 years or so.
Fibromyalgia dx almost 3 years ago now.
Low iron since age 12 (did not respond to supplements)
Low hemoglobin since age 24 (did not respond to supplements)
IBS since age 16 that magically disappears when going gluten free
lactose intolerant since age 16 (I have trouble mostly with milk and icecreme, fresh cheeses. Older cheeses and yogurts don't bug me much.)
I've lost 15 lbs since going gluten free, all in the first month.

Example day of eating.

Today I had:

1 apple
bowl of yogurt

1 hour later I had an ensure meal replacement

20 minutes later I had a decaf-tea

20 minutes after that I had 2 scrambled eggs with cheese

I napped for 4 hours.

upon waking I had 1 nectarine

1 hour later I had a glass of coke
10 minutes after that I had a boiled egg

20 minutes later I had a handful of almonds

20 minutes after that I had another nectarine.

20 minutes after that I had another bowl of yogurt.

1 hour after that I had another glass of coke (last of the day if I can help it)

Because my family is having hotdogs for dinner I kind of have to fend for myself. I get some french fries and salad. But I'll be eating those in about an hour.
If it helps, I've been inside all day, the most strenuous thing I've done is go up and down the stairs a few times.

Really, how much should I be eating? what should I be eating?
I feel like poop, I must being doing this wrong. GAHH I'm so confused.
Because I have fibro and migraines (attacks nearly every day) I don't get out much. I am pretty sedentary. But I still am flexible and relatively strong. I try to exersize twice a week for 20 mins. Being so hungry all the time kind of puts a damper on that.

Gluten Free For Me? Or Am I Just Off My Rocker..

07 May 2010 - 06:26 PM

Hello Everyone.

I've been reading this community for quite some time. Since I decided to go gluten free actually. I just want to take a moment to thank you all for your informative posts and kind words you have given others.

Before I really get into things, I should probably give you all a bit of background information.
I'm 27, I live in Canada. I recently left an abusive relationship. I have been getting migraines since age 12, had them chronically since age 21. I was diagnosed with IBS at age 16 after a colonoscopy and endoscopy revealed no problems. I have been very tired, fatigued, brain fogged, and had sore joints and muscles even without activity for years. And it just gets more and more severe. I was diagnosed with Fibromyalgia a year and a half ago now. A year ago now I got a anti-biotic related infection of the large bowel, the ER doc thought it was CDiff, but did not preform any labwork. I recovered after about 2 weeks on a liquid diet and no anti-biotics. Since then my IBS became extremely sensitive and I seemed to react to so many different things that didn't bother me prior.
My previous doctor (before I left my abusive spouse) asked me if I had ever been tested for Celiac. I have not. I did some reading on it, and after a bad flu (which had me pretty much just ingesting apple juice for 3 days) I decided to Gluten free, as when I started eating normally again, I got IBS attacks from hell, and was in pain 24/7. I spend a lot of my time in pain, but the amount was just... unbelievable. I thought I had an infection.
He was going to test me for it, but after being gluten free for 3 weeks, it was unbearable to eat gluten, so I did not.

After that, I felt amazing. My Fibro-fog disappeared, IBS seemed non-existant, and I was getting fewer migrines and they were less intense, my body did not hurt as much, and I was sleeping better. So I finally felt well enough to leave my abusive situation. I left. I'm living with my family now (5 other gluten eaters when before I only lived with one).

I've been gluten free for 3 months. And now it really feels hit or miss. I'm ravenous most of the time, and nauseated otherwise. I can't seem to eat enough, I've lost a lot of weight, and I'm a small person to begin with. I keep getting insomnia, and sleep is seems very deep (not restful deep, but I am practically dead deep), but when I wake up my muscles are all stiff and sore again. I'm not sure if I'm in a fibro-flare up or if I've had gluten. There aren't any digestive symptoms, save for the nausea. Sometimes I want to cry because things don't seem to be getting better and I don't know what to do. I also have a very limited budget, I am unemployed and have been for some time due to disability. I live with my parents again who are for lack of a better phrase, dirt poor. I get $200 a month in support money but it isn't much.

Misciallanious info:
I've had low iron since I was 12, nothing seems to bring it up.
I get migraines every 2 days or so, sometimes more often.
I am extremely sensitive to light, sound, and smells. I avoid most things because of this.
I have been lactose intolerant since age 15.

So I guess my question is, is gluten-free actually helping? Should I keep doing it? Does it get any better? Anyone else in the same boat/ocean want to give me some tips or something? Is there something else I should be doing?

Thank you for reading.

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