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Member Since 04 Mar 2010
Offline Last Active Feb 27 2011 12:31 PM

Posts I've Made

In Topic: Anyone In Il With Celiacs.

27 February 2011 - 12:32 PM


I am new to the gluten free life style and looking for people to talk with that live in the same state as me. or if there is anyone out there that isnt in the same state id still like to have as many friends for support as i can to cope with this. since being on a gluten free diet i have been somewhat depressed. due in part to the fact that all the foods that i like i can no longer eat. i cant get past the taste of the gluten free sweets and such. so if anyone can help me out weather your from illionis or not would be great.


I do live in IL and would be happy to give you some encouragement. You said you were new to the gluten free lifestyle so you need to understand there is a bit of a learning curve to arrive at a place where you feel that you CAN eat what you used to eat, it's just been tweeked a bit! I can relate to the feeling but have realized that I really don't have to "live without" all that much. I live gluten and dairy free and can tell you I love to cook and bake and I don't bake or cook from a box. You are welcome to contact me by email and I will be happy to give you some support and help with getting back to feeling better about life and food! :rolleyes:

In Topic: Looking For A Gluten Free Vitamin/Mineral Supplement

04 March 2010 - 09:59 AM

I use Balance Point's C-Liac Vitality Packs (Intensive Care formula w/no iron) Works great for me!

In Topic: Dh

04 March 2010 - 09:47 AM

thanks for the info,my problem is that ive been on the diet for 6 months and i still get it prety bad,there are little things that i must be missing but its fustrating because i never know what i ate that did it,the reason i asked if it was long term was because im in the army and right now i cant go to the field because i cant eat the food they provide,i know i drink a lot of coke and coke zero but coke says it is gluten free so i dont know im lost i just want to live a normal life with out having the rash on my face i guess im just really sensitive to gluten,maybe if i take the dapsone for a bit it will help me a bit we will see,thanks

Hippo, I certainly can hear your pain. You're in a difficult situation to deal with since you're fairly captive to the food that is provided you. It stands to reason that even though you feel you have been on a gluten-free diet for 6 months you are most likely continuing to consume hidden gluten in your food. I used to have intermittent breakouts of DH on one butt cheek in the same place and it usually correlated with having eaten something I didn't realize had wheat gluten in it. I pretty much could count on it when dining out if I wasn't diligent about asking questions and sticking to what I knew was gluten-free. Good rule:When in doubt, do without. I haven't had a out break for months now and it is because I cook 90% of my own food at home and when dining out, I'm super careful. I have never taken Dapsone due to various side effect risks I'm not willing to experience. People who have never experienced DH have no idea what hell it can be.

In all the reading I've done over the past year and a half, one thing sticks in my mind when it comes to gluten intolerance. "Your never just a little pregnant. You either are or you are not". That translates into if you're gluten intolerant, you are gluten intolerant all day, every day. You can't eat a little bit here and there and hope to see relief. It's just not going to happen. I would suggest that you research deeper into what foods you are eating and check for wheat gluten. There are great sites out there that list hidden gluten (www.livingwithout.com is one) that you should be on the lookout for. The more you can eliminate the better your chances of improvement are. Don't give up, there is hope. Ask for ingredient info (if you haven't already) on all the foods that you are provided so you can begin to find the culprits. You must be proactive or you will remain in the spot you're in.

My quality of life changed one month after going gluten-free/CF. My only regret is that it took 45 years to figure it out!

Went gluten-free Nov.'08
Went Dairy Free Dec.'08
Officially diagnosed Gluten/Casein Nov.'09

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