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cap6

Member Since 04 Mar 2010
Offline Last Active Yesterday, 01:37 PM
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#932508 Peanut M&ms

Posted by cap6 on 11 October 2014 - 12:39 PM

GFinDC - I agree!   Sometimes we have glutened-like symptoms after eating and/or drinking but those symptoms are Not related to any gluten at all.  Read the ingredient list.  Take note of all of the additives and chemicals that are in candy bars and soda's (not to mention other processed foods).  Those additives are most often the cause of our discomfort!


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#922565 How Come Gluten Didnt Bother Me In Italy

Posted by cap6 on 03 July 2014 - 06:25 PM

I will still say wheat is wheat is wheat.  If you are celiac then you are playing with fire to eat it.  Period.  You may not get sick but the damage is being done anyway.  Three days, three weeks, whatever, of carefree eating wheat simply does not seem worth the risk of what I may be doing internally.  But we all are free to make our own choices.  If I ever am lucky enough to make it to Italy I will be enjoyuing whatever foods are available minus the wheat.  My choice. 


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#919587 Minimisation By Family/friends.

Posted by cap6 on 09 June 2014 - 12:39 PM

Education as others have said.  Sigh!  I get the "Well, it won't kill you like a peanut allergy will".  Well, probably not but do you want to hold my head while I puke and pass out for hours???   A co-worker told me it was just a diet thing and I would be fine.  A good friend rolled her eyes like I was making things up.   Takes time  for other around us to get it, and to some extent they never will unless they live it!  

My daughter (who really needs to be g.f but we won't go there) tried for two weeks.  She called me crying and said "Mom.  How do you live like this".  At this point in my life it's pretty easy.  Four years ago I would have been crying right along side of her. 


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#919502 Safe Wines For Super- Sensitive People?

Posted by cap6 on 08 June 2014 - 03:37 PM

Wine is gluten free.  Wine spritzer drinks may not be. 


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#918955 Chronic Constipation

Posted by cap6 on 03 June 2014 - 02:16 PM

I have posted on this before as it has been the story of my life and even at 4+ years post diagnosis is still a problem if not very careful.

I have tried every suggestion given and finally came up with my own cocktail.

Water, water and more water.  Veggies at every meal.  And I mean lots of them so that your plate is 3/4 veggie and 1/4 protien, walking.

That's the natural stuff. 

I use Smooth Move herbal tea and that "breaks the dam" every time.  I started out using the tea nightly and did so for a year.  After a year I was feeling a little healthier and so then I tried every other night, and things worked!  After 4 years I now take the tea every three to four nights and can stay pretty regular that way. 

The other thing I learned is to visit ythe bathroom at the same time every day.  Retrain yourself just like we trained our babies.  Same time every day, whether you go or not give it a try. (TMI right?  lol)  We have been used to no results for so many years that our body has forgotten how to be regular.  We have to retrain.

And, as stated above, Miralax is also quite safe to use.  If I am ever so bad I try the tea and one shot of Miralax and that works. 

My doctor told me once that it was better to get things moving that to risk the results of a complete blockage.  Get things working again and then work on healthier ways to do it.

Just a thought


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#907439 Am I Doing The Right Thing?

Posted by cap6 on 27 February 2014 - 01:10 PM

Paleo is an excellent diet to follow.  My fav book is Practical Paleo by Diane Sanfilippo.  I started out a no cook (a serious no-cook!) and her easy to follow, simple to use recipes are great.  Plus she has some simple easy to follow 30 meal plans. 

 

When you replace processed gluten  foods with processed gluten free foods you will probably have trouble because of all of the ingredients that are needed to create that food.  Eating simple foods is the best way to heal.  Roast some veggies and a piece of chicken and you are off! 

 

A note ~ pop corn is very very hard to digest especially if you are still healing.  It was a year before I could eat it.  In the beginning after eating a handful I felt like I had been glutened.  So keep in mind that it isn't just the gluten you have to watch for but all of those ingredients in processed foods.

 

Two weeks isn't very long and although you are young and your body will heal fairly quickly, it takes time. 

Sounds like you are on the right track.  I would give it time.  Watch your foods, maybe make a food diary so you can track what food you react to as you may have some other hidden intolerances as well.   As long as you keep feeling better overall, aside from some little glitches, I would say keep up the good work!


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#886890 Still Getting Really Tired After Lunch And Am Wondering Why

Posted by cap6 on 02 September 2013 - 12:20 PM

You need protein.  No protein = no energy.  Every meal needs a balance.


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#884035 Red Robin Gluten Free Bun

Posted by cap6 on 12 August 2013 - 04:10 PM

They use Udi's buns.  Udi's required that the restaurant go through training on how to handle the product.  they have special toss away toasing trays etc.  This info was given to me by the kitchen manager of our local Red Robin.  I travel alot and the awareness all seems to be pretty uniform. 


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#881786 Responses To "i Have Celiac" Or "i Have Food Allergies" .......

Posted by cap6 on 29 July 2013 - 02:10 PM

After 3+ years I am pretty comfortable with Celiac and the whole taking my own food to friends or if we eat out etc.  The things that still (!!!!) set me on edge is when I nicely say "No thank you, I have Celiac and can't eat gluten" or  (because more people understand this) "No thank you I have a lot of food allergies" is when they respond with "Oh I am so sorry. How hard for you"   I want to respond with "I'm not.  I'm the healthy one"!!!   Grrrr.  Just needed to vent that.     :angry:

 

And may I vent one more thing?   We are visiting with our BFF's for a week.  My BFF declinded a dinner invitation that had been extended to all of us that she didn't want to attend using me as the excuse.   She told that hostess that because I have celiac it was too hard for me to eat at someone else's home.  That made me so mad!  Let me determine how i can or can't do my food, if I can go to someone's home or not.  Don't use me and my disease because you don't want to do something.  :o

:rolleyes:

Thank you.  I needed that.  Feeling better now


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#881336 Grains- Should We Be Wary Of Them All?

Posted by cap6 on 26 July 2013 - 04:39 PM

I sincerely apologize for making a blanket statement without backing it up with proof when I said that grains are not good for us. I Should have said..... based on the reading that I have done and believing in the Paleo diet, it is My opinion, and only My Opinion, that grains are not good for us. It appears (to me) that many many people have difficulty digesting grains. Added to the fact that many grains are GMO'd it makes for not the best food choices. Of course we have the options of choosing organic food. Again I apologize for my statement.
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#878189 Is Wine gluten-free?

Posted by cap6 on 04 July 2013 - 04:36 PM

Taken from the Journal of Gluten Sensitivity winter 2013 issue:

 

Wine that is aged in oak

barrels contains less gluten than we

are currently capable of testing for,

whether hydrolyzed or not.

At this point, a lot of people will

begin to shake their heads: “If wine

is gluten-free, then why do I get sick

when I drink __________ wine?” The

likely answer is that you are reacting

to something else! Many winemakers

use egg whites as a clarifying agent.

The amount of egg used is far more

substantial than any wheat paste that

might have leaked into the wine, so if

you know eggs are a problem, this is

likely what you are reacting to.

 

 

Wine is safe.  If you are drinking coolers check the ingredients!


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#874716 I Can't Believe That Just Happened......

Posted by cap6 on 15 June 2013 - 09:25 AM

That sucks!!!   Those that are gluten intolerant  and cheat can really make it hard on those that are Celiac!!!


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#870201 The New Celiac Drug Is Out There

Posted by cap6 on 22 May 2013 - 05:09 PM

I'll pass. Why should I take a drug that will cost me money, force me to see a doctor, probably give me side effects, and may even cause real harm (anybody remember the hormone replacement therapy all the doctors wanted us on?), when I can stick to a gluten-free diet for free and with no harmful effects?

I'm afraid I am with you on this one.  had a life time of drugs and side effects.  For myself, I will stick with the diet.  Not keen on the restrictive diet, but overall it is preferable to a drug.   


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#869721 Lost A Parent To Celiac

Posted by cap6 on 20 May 2013 - 06:30 AM

So very sorry to hear of your loss.  Loosing one;s parent is so hard.  

I lost my mom five years ago at the age of 77.  Looking back I firmly believe she was undiagnosed celiac.  With Fibromyalgia, diabetes, unbearable excema (DH) on elbows and knees, bouts of constapation/diarrhea, vomiting and stomach cramps after meals, asmtha to mention just a fewof her issues - all of the classic signs of celiac.   She also had weak lungs, had even had a surgery at one point.  She did not habve lung clots, but her body just slowly shut down.

 Three years after loosing mom I was finally diagnosed.  Often dad will comment on one of Mom's sysmptoms and say how much alike we are.  I now wonder how far back this disease went.....My mom's mom was diabetic & had asthma....  the cycle goes on.


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#851976 Let's Be Trendy!

Posted by cap6 on 03 February 2013 - 09:40 AM

When I order out I always say that I am celiac, that gluten free is not a fad for me and that I will get sick if I eat any gluten. Said with a smile and a few questions on how they deal with cross contamination and there usually isn't a problem. The fad is good and bad for us celiacs......
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