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Member Since 04 Mar 2010
Offline Last Active May 26 2015 02:11 PM

#870201 The New Celiac Drug Is Out There

Posted by on 22 May 2013 - 05:09 PM

I'll pass. Why should I take a drug that will cost me money, force me to see a doctor, probably give me side effects, and may even cause real harm (anybody remember the hormone replacement therapy all the doctors wanted us on?), when I can stick to a gluten-free diet for free and with no harmful effects?

I'm afraid I am with you on this one.  had a life time of drugs and side effects.  For myself, I will stick with the diet.  Not keen on the restrictive diet, but overall it is preferable to a drug.   

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#869721 Lost A Parent To Celiac

Posted by on 20 May 2013 - 06:30 AM

So very sorry to hear of your loss.  Loosing one;s parent is so hard.  

I lost my mom five years ago at the age of 77.  Looking back I firmly believe she was undiagnosed celiac.  With Fibromyalgia, diabetes, unbearable excema (DH) on elbows and knees, bouts of constapation/diarrhea, vomiting and stomach cramps after meals, asmtha to mention just a fewof her issues - all of the classic signs of celiac.   She also had weak lungs, had even had a surgery at one point.  She did not habve lung clots, but her body just slowly shut down.

 Three years after loosing mom I was finally diagnosed.  Often dad will comment on one of Mom's sysmptoms and say how much alike we are.  I now wonder how far back this disease went.....My mom's mom was diabetic & had asthma....  the cycle goes on.

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#851976 Let's Be Trendy!

Posted by on 03 February 2013 - 09:40 AM

When I order out I always say that I am celiac, that gluten free is not a fad for me and that I will get sick if I eat any gluten. Said with a smile and a few questions on how they deal with cross contamination and there usually isn't a problem. The fad is good and bad for us celiacs......
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#824124 How Come Gluten Didnt Bother Me In Italy

Posted by on 18 September 2012 - 08:58 AM

Wheat is wheat is wheat. period. And even if you don't suffer symptoms of gluten your gut is suffering. Would you peel a scab off of a sore? Eating gluten is like peeling the scab off of your healing gut
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#823127 Annoyed By People Who Think They Know More

Posted by on 12 September 2012 - 10:43 AM

It is frustrating when friends insist that they can cook gluten free. Well, maybe they can cook gluten free but can they cook cross-contamination free??
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#815202 Domino's "Gluten Free" Crust

Posted by on 31 July 2012 - 08:28 PM

I read (sorry i don't remember where) that Chuck e Cheese is coming out with a gluten-free pizza that will arrive at their restaurant sealed, to be cooked sealed and delivered to the table sealed with a sealed cutter. Not that this pizza is any tastier but IF this is true it could be an option for a lot of kids/parties etc.
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#813203 Some gluten-free Bread May Not Be Gluten Free!

Posted by on 23 July 2012 - 08:28 PM

I'm not clear on why we are zeroing in on one company, Schar. Corn by itself is hard to digest. If you react to it, don't eat it but don't slam a company for their product. Corn is in a lot of products including many medications. We can't blame everything on celiac.
Just saying.............
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#811480 Gluten Free And Constipated

Posted by on 16 July 2012 - 05:26 PM

Could not agree more with the "everyone heals at their own pace" thought!! (I say that so often on here, I must sound like a broken record) :D

And I also agree that everyone needs to find what works to get relief.

My biggest concern is for people to become overly-dependent on chemical stimulants because that can/will happen. (it's fine for occasional use, to relieve that "blockage"--yes)

You mention you were taking several medications, but now weaning off them. (having used those myself, I know a major side effect of those is C) so, perhaps, it is possible you had C as a result of those as well?

Hoping you continue to see improvements! This has been a long road for me, too and I suspect I have more years of healing still to come.

Best wishes, IH

Thanks for your comments irishheart ~ Yes, I am very hopeful that going off of this last antidepressent will be the "magic" cure! ;) If nothing else celiac is teaching me patience! grr lol
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#809685 A Relative Is Diagnosed Celiac- Won't Go Gluten-Free

Posted by on 09 July 2012 - 06:06 AM

Peter is so right. You can give her the info but you can't force her. I have a brother who doesn't care and three friends who I feel certain have celiac or would benefit from the gluten-free life. One friend told me she could never give up her bread and pasta and continues to suffer from chronic D. You can give it out but some people just don't want to hear. Gluten-free is a total and complete lifestyle change and it isn't always easy. Most people don't want the inconvience. Sad but true.
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#778085 Today I Celebrate Celiac !

Posted by on 03 March 2012 - 04:03 PM

Today I celebrate 2 years since Celiac diagnosis and without the support of family, friends and this board it would have been, well, so much harder than it has been. At two years I can say that I can finally meet Celiac with a sense of confidence and have come to accept it as part of me. That's not to say that at times I don't wish that I was like everyone else (!) but for the largest part I fell good about where I am. Still healing but boy do I feel good most of the time.
Just had to share! Thanks :D :D :D
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#744519 Days Like This I Feel Like Giving Up

Posted by on 03 November 2011 - 07:55 PM

If others want to find problem with my physical / internal issues than they will have to find time to hear about it. I'd rather spend a 30 minutes cooking meat & veg than dealing with staff that aren't interested in my allergy/issue. Do/read/learn or die.

I agree! A lot of times I would rather just take my own meal than have to try and explain about gluten and CC, once again, to servers and staff. I still get embarrassed at pulling out my own food in a restaurant but at times it is just plain easier! :rolleyes:
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#721779 On The Topic Of Buying Fruit/veggies

Posted by on 09 August 2011 - 08:39 PM

I know this thread is not about wine but!

I know we are all different but, I am so ridiculously sensitive (recently got glutened by breathing flour in the air again and, yes, I'm sure..)so I just have to say, I drink wine every day (true confessions from a girl of French and Greek heritage) and I KNOW wine is okay- for ME... I tend to look to more insidious things myself when glutened. This is after YEARS of thinking EVERYTHING is a problem...

Everyone needs to just do what they think is best for them but, boy, has the wine thing been assessed and reassessed on this board. If you are computer savvy and if it is possible, I suggest looking back into the archives on this one!

Good health to all!

I love true confessions..... and I confess to a glass of wine (or 2....) every night as well. Here's to your health! :D
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#720887 Oatmeal-Reactions From Just Handling It?

Posted by on 04 August 2011 - 08:45 PM

My two gluten eaters have one kitchen counter that is theirs to use. If they have gluten (and really there is very little in the house) they leave the toaster or plate on their counter for me to clean up. I prefer that so that I know the space is clean - my way! :)
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#718488 Cooking For Non Celiac's

Posted by on 24 July 2011 - 05:23 PM

I agree with kitgordon! If I cook (and I am the cook) it's my way. Eat your gluten food in a restaurant or prepare it yourself using only the counter on the right side of the sink. I have to be able to walk into the kitchen and know that I will be safe. Period. They aren't sick, I am. That sounds sort of mean but we have enough stress and worry about CC without having it in your own home.
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#705304 Prilosec And Other Acid Inhibotors

Posted by on 03 June 2011 - 07:54 AM

I have been on 2 Prilosec a day for over a year & half. Knowing how bad they can be for you over the long haul I have tried to wean off but every time the acid has become so much worse, feels like pure acid pouring down my throat. Three weeks ago I started to take pure liquid Aloe, 2 oz two x's a day and have weaned down to just one Prilosec a day. So far.... feeling good and no acid! Almost afraid to cheer too loudly but it may be working and I would rather be doing something natural. Figured i would give it a month before starting to wean off of the 1 Prilosec a day. Maybe Aloe would help you. The health food store suggested it to me.
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