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Member Since 04 Mar 2010
Offline Last Active Mar 26 2015 11:05 AM

#693912 I Can't Do This

Posted by on 21 April 2011 - 12:35 PM

It is hard to sit and watch others eat foods you love when you eat out. Eat first. If you are full it is much easier. Or take a container of gluten-free food with you. I briefly explain my gluten-free issue to the server & ask for an extra plate, scoop my food onto it and enjoy the evening. I never go out without taking something otherwise I feel like I am missing out.
It is very difficult at first. No one here will tell you different. I didn't believe it when i was told it gets easier in time but it does. One day I just realized that I was no longer stressing over food and that it had become a part of me.
When you focus on what you can't have (and we all have been there) instead of what you can have it's a no win situation. If they have pizza so do I, my own & I get the entire thing to myself. If they eat pasta so do I. I think it's easier at home if the entire household is gluten-free but that is also a personal opinion.
I look at it this way - I have always wanted to be special & different.... now I am!
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#689224 I Can't Do This

Posted by on 02 April 2011 - 08:47 PM

Does it now seem like too much to bear? Yes. Does it now feel like it is overwhelming? Yes. Do you now feel like you are missing the "good" stuff? yes. Is it worth it to continue eating as you are? no Will you feel better? yes. Does it get easier and easier with time? yes. Would I ever eat gluten again? Given what I know now - no way. I am now 60 and felt like I was cheated out of years of my life and I am making up for it now. I lost my mom to what we now know was Celiac. She suffered untold pain and illness for so many years and what I wouldn't give for her to have been diagnosed. Guess it comes down to what you, and your spouse, can live with. Read the posts and listen to what others have said. Celiac is real. No joke to it.
I wish you and your spouse all of the best.
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#685091 Glutened At Chili's?

Posted by on 19 March 2011 - 07:43 PM

That is really scary! Guess that drives home a point - we need to be clear that we are celiac and must avoid cross-contamination! Those on gluten-free as a fad sure don't have to worry about the CC !!
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#681002 One Year Today !

Posted by on 06 March 2011 - 09:34 PM

I did not believe those who told me that within a year I would be managing this disease with some sort of ease. It does get easier. It does get better. And month by month I feel better. There are times for sure when it is a few steps back but over all - gluten free is good!
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#679870 How Long Until Normalcy?

Posted by on 02 March 2011 - 08:10 PM

Only here are we able to freely talk about poop!
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#679575 Is My Doctor Overzealous In Diagnosing Me With Celiacs?

Posted by on 01 March 2011 - 08:44 PM

Give your doc a hug & embrace your gluten-free diet! Too many go for years suffering. Count yourself blessed! :)
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#676758 How Do You Do This?

Posted by on 19 February 2011 - 07:39 PM

Take a deep breath. Yes it is too much and no you can't learn it all ~ at least right away. I am 11 months into this and finally feeling like I have a handle on it. I started out in the beginning shopping with my Gluten Free Grocery Shopping Guide and a list of ingredient definitions. Shopping took forever. And cooking? I am 60 and have always hated to cook. One day I woke up and realized that cooking wasn't the odious chore it once was and that I had gone shopping and left my Shopping Guide in the car! Please give it time. Take time to grieve your loss because and food and the choices you now have to make are a loss - and know that one day it will all come to you. Honest.
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#676755 How Long Until Normalcy?

Posted by on 19 February 2011 - 07:26 PM

whew! This is embarrassing. I am a female who had so much gas that about 15 years ago my daughter yelled at me "mom. You are sick. No normal person farts that much. You need to see a doctor!" Little did we know then how true that statement was! Since going gluten-free I have had very little gas although C is a major issue now. Go figure.
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#676401 Vacation

Posted by on 18 February 2011 - 01:19 PM

Do you have a place to cook or warm foods? When we are there we always check out the local farmers mart as well for lots of organic fruit & veggies. Ask any local where one might be located.
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#670705 One Good Thing About Being The Only gluten-free In A House Of Gluten-Eaters....

Posted by on 25 January 2011 - 09:32 PM

If it says "mom" on it the family won't touch it.
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#658800 Ibs Added To The Mix

Posted by on 06 December 2010 - 08:23 PM

Don't know about your state (if you are going for state disability) but social security disability is usually turned down the first time or more. I worked in social services and will say that you have to keep appealing and fighting. I have seen it take a couple of years but if you are approved the payment is retroactive back to the day of your application. Just be careful to read everything. If you should miss a date for appeal or providing paperwork then you would have to start the application process all over again. Document everything! Keep copies of everything. Good luck!
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#657729 Need Your Opnions

Posted by on 01 December 2010 - 08:45 PM

I often tuck some tuna or turkey burger on gluten-free bread in my purse. Then I order a plain salad with oil & vinegar dressing and have my sandwich on the side. It's a meal - not the best but it works in a crunch.
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#656939 Who Survived Thanksgiving?

Posted by on 28 November 2010 - 09:19 PM

My 1st T'giving was awesome! We had dinner with friends who made sure the meal was gluten-free except for their stuffing (that was covered with paper towels and on a separate counter space) and she even wore gloves. I made & brought my own stuffing which everyone tried and declared good. They had pie and I had my own which everyone tried as well. Friend was very careful with CC - I helped with prep so it was a very positive experience. Hoo-ray for supportive family and friends who go the extra mile for us!!
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#656175 Top Five Reasons To Get A New Doctor

Posted by on 24 November 2010 - 09:03 PM

This was a great thread. I have to say that at first my dr gave me info from the internet and told me that once I was well I may be able to eat gluten again. I've stayed with her though (we're in sort of a small town anyway) as she not only read everything I gave her she studied the disease on her own. She spends as long as necessary with me and will do any test I ask for. I wish we had access to a specialist but at least I have someone who is willing to listen & learn.
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#655874 So Confused. Celiac Or Not

Posted by on 23 November 2010 - 09:02 PM

Brain Fog or celiac brain as we call it around here. It got worse after being diagnosed. Slowly gets better. I think that we want it all now. Want to feel good now.... it took us years to get to this point and will take awhile to get completely well again. Easier said than done I know.
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