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xyz789

Member Since 09 Mar 2010
Offline Last Active Mar 11 2010 07:41 AM
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Posts I've Made

In Topic: Not Sure I Should Proceed With Upper Endoscopy

09 March 2010 - 06:18 PM

Thank you for the responses you've sent so far. I called my family doctor to get the gluten test scores. Here is what I found out from them.

My Igg=27 (anything over 17 considered positive)
My IgA=<3 (anything less than 11 considered negative)

Doing some internet research it looks like if your IgA is positive (mine is negative), then 80% of these patients have Celiacs. If it's negative like mine, 71% are truly negative for Celiacs.

For the Igg it says that there are more false positives with this one than the IgA. It says a false is a false, but that it's very possible that a positive Igg is a negative for Celiacs.

Does anyone have more information for this?

In Topic: Not Sure I Should Proceed With Upper Endoscopy

09 March 2010 - 06:41 AM

There were two topics which were essentially the same, but they were not identical. I have merged them.

It is not uncommon for a celiac to exhibit no symptoms, while still having detectable damage to the villi. I have had the endoscopy twice, and it is not a big deal.


Peter - thank you for merging them. I didn't see the first one post (didn't realize it was not immediate) and thought I didn't do it correctly, so I typed it out a 2nd time.

In Topic: Not Sure I Should Proceed With Upper Endoscopy

09 March 2010 - 05:53 AM

When I went to my family doctor for my normal checkup and blood work (to test thyroid levels -- I have hypotyroid), I asked to have blood tested for gluten intolerence. He asked me if I had any of the normal symptoms and I said no, not really. He asked why I wanted to be tested and I told him that I had a friend who was Gluten Intolerent (can't remember if she has Celiacs as well) and that she never had the regular symptoms. She had hypotyroid (which I have) and just felt yecky. My friend and I went on to talk about gluten-free diets and I told her that whenever I did cleansings and followed a gluten-free diet that I always felt so much better. We also talked about my son who has always had digestive problems and I wondered out loud if gluten had anything to do with it. So, my friend said next time you go to the doctor, just ask for the blood test and if you're positive, then maybe that could explain your son's issues.

So - I told my family doctor all of this and he wrote down that I suffered from diarrhea (which I don't), so that he could run the test.

The test results came back mixed and showed some things to be positive, but the administrator said sometimes they're a false positive and they sent me to a GI.

I went to the GI yesterday and they want to do an upper endoscopy. I was a little surprised! I went from "possibly false positive" tests results to a doctor wanting to do an invasive procedure where I'm put to sleep? I'm having serious doubts about this.

The only things I have that might have ANY relation are: hyprothyroid, gas (all the time...), vertigo (seasonal allergies?), the skin around my eyes if often very red and very dry/cracking, my mother has both muscular dystrophy and Parkinsons.

Thoughts?