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Member Since 09 Mar 2010
Offline Last Active Apr 06 2011 11:36 AM

Posts I've Made

In Topic: Defatted Wheat Germ Gluten Free?

12 July 2010 - 07:07 AM

I called the company this morning and was curtly told that I needed to contact my health care provider. I was informed that Standard Process sends the gluten free status of its products to the health care provider only. I mentioned that their statement on their website regarding the gluten free status of its products was quite ambiguous. The customer service rep said she agreed. I asked what would happen if the information Standard Process sent to my doctor was not entirely accurate. She didn't know. I learned nothing. Except that defatted wheat germ contains gluten. In my case.

In Topic: Defatted Wheat Germ Gluten Free?

11 July 2010 - 06:14 AM

Think your doc is totally wrong on this one, and wow did I find some fun info to bring back to him!

First, the Standard Process Company has this answer to the fact that they do NOT have a list of products that are gluten free:

"...There are a few reasons Standard Process does not label products "gluten free":

* Grains containing gluten, barley, rye, and wheat, are used in many of our products
* Presently there is no established "gluten-free" standard, but the FDA is in the process of addressing this issue

No two patients have the same sensitivity to gluten; therefore, nutritional counseling should be individualized and potential gluten allergies discussed before a patient takes any Standard Process supplement.

Since this is a complex issue, we encourage you to find out more by visiting relevant websites, such as www.celiac.com, which discusses gluten allergies and safe foods to eat for those sensitive to gluten."

So, let me just say, HA, doc, the company does NOT say this is gluten free! And also get a chuckle because coming here is exactly what you did! :D

If you want more to offer your doc? You can call the company (1-800-558-8740 Their website is: http://www.standardp...lay/router.aspx ), or buy some of the home tests for gluten that are now available on-line and test this stuff.

Here's something that may be tripping up your doc, too - Cataplex F tablets have the defatted wheat germ.
Cataplex F PERLES do NOT have defatted wheat germ.

Maybe the doc has mixed up which is which in his head?

There is also this issue: if you are eating something that is derived from wheat, what does that mean? That it was made by fallible human beings, in a facility and on equipment that is handling this ingredient all day long. What are the odds that there will NEVER be a contamination issue?

Pretty darn good. I'd drop it flat.

And one last nail in the coffin of Standard Process Cataplex F. I was googling to see if I could find any information on this, and came across another person having the same issue with this same product in 2007. You aren't alone, at least.

Sorry your doc is not only incorrect, but responding in a way that makes it seem as though it is YOUR fault. If you have any choice in the matter, I'd hunt down another doctor ASAP.

Wow. Thanks so much for taking the time to find this information. I think I was so surprised/stunned by my doctor's reaction to my phone call (I was incorrect - the Cataplex is gluten free) that I didn't go to the Standard Process website myself. I will call them tomorrow to see what they have to say about it to me while I'm on the phone with them. From the statement on their website, it seems pretty clear that they may or may not contain gluten. :huh: Great.

In Topic: Back To Work And Exhausted

09 July 2010 - 06:16 PM

For me, being sick with vitamin deficiencies has me out of shape. Now that I'm feeling better, I getting more exercise. I think you just have to build up your stamina if everything (vitamins & thyroid, etc) are good. You have to build up for the physical and mental stress of a job. Even if it's just sitting all day in one position or standing or up and down.

What's amazing to me is that before I stopped eating gluten, I thought I was fine. Sure, I had the fatigue, the rash and a host of other symptoms - but it was my normal. Now I'm off gluten and everything becomes more noticeable. Everything has new meaning. Each ache, pain, feeling of nausea, headache, etc. You learn to pay so much more attention to everything and have a new understanding of your body and it's relationship to food.

I think also that my expectations are that I should be feeling better faster. Wouldn't it be nice to document people's stories/experiences of healing the way we track and document symptoms of the illness?

In Topic: Celiac Dinner Discussion

29 June 2010 - 08:24 AM

I don't like the word disease to describe celiac, I think it's inappropriate
for example if hypothetically I had been fortunate enough to never had injested gluten my entire life would I have a disease? No , I would be fit as a fiddle
of course, it was in my baby formula and I've been sick ever since, but my point is that it doesn't mean there is something wrong with us, that we are diseased.
I've had almost a sense of shame about my condition, having severe DH and mood disorders and a litany of other symtoms, so I'm trying to adjust my attitude regarding this word, disease
I beginning to see that there is nothing wrong with me, it's not my fault, it's just other people seem to be immune to gluten, not that I'm " sensitive" to it
gluten is really poisin across the board IMO, and if someone doesn't seem to have problems with it, it's because something hasn't come along to trigger a reaction yet
gluten is the disease, not celiac or whatever you want to call it
from what I understand gluten causes inflammation and gut irritation in everyone to some degree
I really believe that anyone who eats it is being harmed whether they are celiac or not
actually I'm beginning to feel lucky that I've suffered so much compared to other people because it's put me on the right track and I'm looking forward to having the happy productive rewarding life I had really given up on having before I learned how gluten was effecting me

I agree! Here's an interesting article by a doctor regarding how he thinks this all happened:


In Topic: Celiac Dinner Discussion

29 June 2010 - 06:33 AM

Hi New Member -

I'm curious - did you have to have the biopsy (such a pain!) ?

No. It's a long story (of course) but I am very fortunate in that my primary care recognized my latest DH outbreak for what it was (last December) and began putting the whole story together. She is a very smart, brilliant woman who really takes her time and offers fantastic care to her patients. She strongly advised me to go gluten free immediately. As I knew nothing about gluten intolerance at this time, I didn't do as she suggested and things began getting worse VERY quickly. I became slightly alarmed and saw two GI doctors for their opinions. One was certain it was IBS and ordered testing for that and celiac disease. The IBS tests were negative. The other GI, the doctor I see currently, examined me and ordered additional bloodwork. He reviewed the test results, including genetic (I'm DQ2 homozygous) and kindly suggested the biopsy. I declined because I did not want an invasive procedure and my primary care agreed. This GI has a family member with celiac disease and heads the GI department of one of the hospitals he is affiliated with. He takes a special interest in Celiac Disease (his very words at our first meeting) and has spoken at our support group meetings. He used the blood tests, genetic testing, the DH and the amazing reaction of my body to a gluten free diet to make his diagnosis. He would however, like to do an endoscopy in a year to be certain of healing. ;)

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