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Member Since 11 Mar 2010
Offline Last Active Aug 26 2015 01:08 PM

#762080 Scanavert App Anyone?

Posted by on 03 January 2012 - 06:31 PM

My dd just diagnosed this week and someone told me to buy the scanavert (one word) app for my iphone or android. It is $2 a month or $9.99 a year (I think). I did it for the first month. It has been great to take to the store and even scan food at my mother in laws house. You can do it with any main allergy. I did gluten free and tree nut free. I just scan the barcode and it will tell me if it is safe or not. The bad side is that some store brands are not included. And once, I scanned a "gluten free" item and it told me that it was not gluten free. But other than that one goof, I have been pleased. Thought it might be of some help to some other new people. I downloaded some restaurant apps for free but too scared to try restaurants now. Does anyone know any other apps that you find helpful?

I have the "Find me Gluten Free" app on my Droid. It's been useful to find restaurants that have gluten free menus or offerings near my location, wherever I am. It's more useful in some areas than others, and not all restaurants are on their database. The app will tell you the location and with some of the restaurants you can look at a menu online. I don't know if this is available for the iPhone.
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#755235 Fibromyalgia

Posted by on 09 December 2011 - 09:49 AM

I, too, have fibro, and had great hopes for a complete 'cure' when I went gluten free several years ago. Eliminating gluten helped bring the fibro to more manageable levels, but it's not gone. :( I wish it was. So much I wish it was!!

I have thought about eliminating other foods, but haven't gotten the courage, or maybe haven't been desperate enough yet. I live with constant pain, as do many of you, so I can't remember what it's like to be pain free.

Weather changes, barometric pressure changes, changes in my routine, lack of sleep, extra stress, all of that can trigger the fibro, and often does.

Someone posted about nightshades and hand/wrist pain. I might try eliminating the nightshades, if it will bring back function to my hands and decrease the pain in them, which is beginning to affect my daily life and work. I've been eating a lot of tomatoes lately. Hmmmm.....

I am self diagnosed gluten intolerant, and lately have been questioning that, since the fibro is still with me. It's good to know gluten free didn't cure others, either. (Not good that it didn't cure, just that I'm not alone in this! :rolleyes: )

I'm not about to start eating gluten again. It DOES make a difference. If I get glutened, the joint and muscle pain returns in a quite evil manner, accompanied by fatigue and some GI additions.

Thank you all for being here and listening and sharing. All that really helps. A lot.
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#711581 Things To Be Thankful For.....

Posted by on 24 June 2011 - 10:12 AM

Thank you all for sharing your joy and gratitude! I am grateful for:

my new 4 day work week! woo hoo! :D

all the wonderful food that I CAN eat, and the gluten free options that are so readily available these days, for the glutenized foods I miss. (altho mostly I don't miss them so much anymore, surprisingly)

my supportive, loving family-- thank you!

feeling better. not 100%, there are things going on that are not gluten related, but being gluten free makes a big difference.

sunshine, my garden, the rain we've had that broke the drought, living near the ocean... I could go on and on.

and of course, my fur-kid, who loves me no matter what, and doesn't care what I eat, as long as I share it with her. :lol:
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#705298 Giving Lip-Service To Eating Gluten Free Makes Me Sad

Posted by on 03 June 2011 - 07:46 AM

Oh yeah I know what you mean about the glazed over look.. lol I've run across several people that are 'fake gluten free' Why would anyone do this if they didn't have to? That's all I wonder.

I've learned to make chocolate cupcakes and other goodies and I bring them to get togethers and no one knows the difference until I pick one up and take a bite and then I get the 'You can't have that...' I just laugh and say 'yes I can, I made them and they're gluten free' Surprised looks from all because they couldn't tell the difference.. heehee

Two can play at this game!!! LOL LOL LOL

Well done, I love your attitude! I've brought gluten free brownies made from a Trader Joe's mix, to parties, and they disappear faster than the wheat based brownies. Yes, gluten free can taste great! :lol:
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#704064 Giving Lip-Service To Eating Gluten Free Makes Me Sad

Posted by on 30 May 2011 - 06:05 PM

Thanks for the moral support! And yes, when I referred to "the code", it's sort of like honor among thieves, or at least among gluten free folk. I do like the idea of the secret hand shake, though, with the dusting off of hands.

I appreciate having a place to vent my frustrations, among people who understand!
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#689091 Talking To Restaurant Staff

Posted by on 02 April 2011 - 09:27 AM

Excellent advice all around! I always have to take a deep breath and remind myself that I must be my own best advocate when we eat out. My spouse and friends are always supportive too, which helps. It can be intimidating, but I know I need to speak up for myself. (I admit, it's easier sometimes to just stay home. sigh.)

I feel that I need to be a gluten free ambassador, educating those in the food service industry so they will learn and be able to keep their gluten free customers healthy while eating in their establishments.

If I need to choose a salad, I remind myself that I am NOT eating gluten, NOT eating excessive calories, and WILL feel healthy and happy after the meal! (Most of the time that works, so I don't drool too much after the meals others are enjoying. :rolleyes: I also bring my own bread, so I can 'round out' my salad with bread and butter, assuming I can get to the butter before gluten-ated knives get into it.

Happy restauranting!
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#671716 How Many People Are Actually Self-diagnosed?

Posted by on 30 January 2011 - 10:14 AM

I am completely self diagnosed, to the annoyance of my (then) primary care doctor. (We've since changed insurance, I had no issues with my previous PMD.) Since many fibromyalgia folks seem to be gluten intolerant, I decided to give it a try. And I felt better. Not a miracle cure, or suddenly turning cartwheels kind of better, just less sick.

It's been two years now, I'm still gluten free, and it's become a way of life. I still have some fibro symptoms, and arthritic and tendinitis type problems, but I am able to work part time and even have some life beyond that. I'll not go back to eating gluten. I've made that clear to my doctors. I'm too scared of the damage it will do, to eat gluten so the doctors can be satisfied with tests. Let them eat the gluten, they can have my share!

Let me also say that I am so very grateful for the support and information and wisdom on this board. Having this resource with all you wonderful people has made this journey easier and even a bit more fun.
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#671711 How Many People Are Actually Self-diagnosed?

Posted by on 30 January 2011 - 09:56 AM

My doctors have ignored me for years. I didn't know that Celiac/gluten intolerant even existed. It wasn't until I had a random visit with a new chiropractor who within ten minutes told me I had a gluten problem. After ten years and thousands of dollars in tests, I was reluctant to believe him. I did the glutenfree diet for 30 days, thats all he asked of me. Why not, couldn't hurt....I am here to say that most of my problems went away especially the migraines and the vertigo. I have my life back thanks to that chiropractor. I followed up with enterolab and results pointed that I have the gene.

I am disgusted with doctors and forever grateful to my chiro.

Good luck with your future health, you are your best advocate.

Thank you for your last sentence. I needed to hear that.
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#661283 Sick Of Being So Different

Posted by on 17 December 2010 - 01:59 PM

My family threw me a birthday party recently ... and had cake, ice cream, punch.. and nothing..NOTHING ..for me to eat. What? I just sat there and watched everyone else eat..

I have no idea what to say, other than {{{hugs}}} and a belated happy birthday! I hope you treated yourself to a gluten free cake. Shame on your family for being so insensitive.
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#634091 Where Do I Find Gluten Free Toothpaste?

Posted by on 23 August 2010 - 01:43 PM

Alba skin and hair care products and mineral sunscreens are gluten free. I also use Bare Minerals makeup, love them! I can't use chemical sunscreens, so I use the Bare Minerals as my sunscreen. They also have a powder sunscreen that works pretty well, although it washes off too easily.
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#631548 Uti

Posted by on 13 August 2010 - 04:30 PM

It's really strange but I actually think the test is correct. I've been dead tired the last week with lots of cramping. I feel "off" but not with the usual symptoms.

It's sad but I think I'm just so used to having slight bladder irritation that I ignore it and maybe I missed mild symptoms. Before I went gluten free my bladder was so irritated and this was on and off for a number of years. The improvement after eliminating gluten was nothing short of amazing. I knew the first week of being gluten free that it was the gluten causing my problem. My bladder can still be touchy at times (probably still healing) but nothing like before.

Thanks for the info!

Bladder irritation from gluten? Heck, I didn't think about that.

The other morning I had Bob's Red Mill gluten free Mighty Good Hot Cereal mixed with Bob's Creamy Rice cereal, and chopped walnuts, blueberries, brown sugar and Rice Dream, then had serious bladder spasms most of the rest of the day. My bladder often kicks into overdrive for a couple of hours, after a high carb breakfast, but not usually that bad. Not even thinking, I had the leftovers for a late dinner after work the same evening, with the same results. Gluten? Or carb overload? Hard to tell, but this reaction was different than usual.

Bob's products should be safe, I haven't had any problems with them before. Just when I find something I really like...
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#625630 Turning Over A New Spatula

Posted by on 21 July 2010 - 05:47 PM

Lunches on the go for me are usually string cheese and gluten free crackers. Fortunately, I'm can eat dairy. I eat lots of fresh fruits and vegies, and Udi's bread! Can't forget the Udi's bread! (I don't eat a lot of it, it's too expensive, but I rely on it.) Gluten free pasta, cooked al dente. Jennie-O turkey products are gluten free, according to their website. I've just found Progresso gluten free soups, and I'm sooo happy about that! I had clam chowder for the first time in a year and a half the other night. Nice! And with toast on the side, I was in heaven. I also make my own gluten free granola, good by itself or mixed with yogurt and a bit of peanut butter.

There is a LOT to eat that is safe and gluten free.
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#619022 Gluten Free Fish Oil Supplements

Posted by on 23 June 2010 - 04:41 PM

I spoke with a representative from Nordic Naturals a couple of days ago, and was told that all their products are gluten free.

Good thing, as their fish oil capsules are the only ones I can tolerate. :rolleyes: Anyway, FYI.
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#609403 I Can't Commit To Gluten Free Without Some Sweets!

Posted by on 07 May 2010 - 09:03 AM

Also, KnickKnick brand of cookies called KooToo's (I think) are darn close to Oreos. Better, too, I think.
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#609402 I Can't Commit To Gluten Free Without Some Sweets!

Posted by on 07 May 2010 - 09:01 AM

I'm about 4 and a half months into being gluten free, and just very recently found that my insane cravings for sweet and baked stuff is calming down. Some of that might be because maybe I'm getting over the feelings of deprivation that were drowning me initially. There's so much that I CAN eat! And maybe because, as others have said, I'm healing, and my body isn't frantically trying to get the nutrition it needs anymore.

That said, I agree with others here, that gluten-free brownies are insanely easy to make. Trader Joe's gluten-free brownie mix is the best I've tried. People prefer them to 'regular' mixes. I've also made the cookie recipe on the side of the bag, and it's excellent! Most ice cream is gluten-free (but read the lables, nothing with cookie bits in it!), so a gluten-free brownie with a scoop of ice cream ought to satisfy anyone's sweet tooth. You could even sprinkle some cinnamon on top, if that's what you are craving.

On the other hand, it's Spring, and fresh fruit is starting to come into season. Berries! Pears! Cherries! Plums! Don't get me started... The only prep is a quick rinse, and if you are formal about it, a bowl and a spoon. MMMMMMMMM!!!! :D

Seriously, give this some time. You'll feel better, your skin and hair will thank you, as will your immune system. Not easy at first, but it'll get easier over time. Keep on posting here, this is a safe place to vent and ask questions.
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