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Hopeful1950

Member Since 14 Mar 2010
Offline Last Active May 14 2013 11:12 AM
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Posts I've Made

In Topic: Help For The Itching, Stinging, Burning, Pain Of Dh

29 January 2013 - 08:02 AM

Wow. The doc that gave me the Neurontin never said anything about weaning off of it! (No surprise there). I think the dose I took was 100mg and I only took it intermittently (not every day) so I didn't have any problems, thank goodness. Thanks for giving us the heads up.

In Topic: Help For The Itching, Stinging, Burning, Pain Of Dh

28 January 2013 - 05:27 PM

Here's something I found that might provide some relief from the symptoms of DH. It's called Neurontin (gabapetin). It is used for restless legs, fibromyalgia etc. It was given to me years ago because of insomnia and fibro. A while back when I was having a really big awful flare of helllish itching, burning DH, I decided to see if it would help and it did! It really mellowed out the night time itching (I took it at bedtime) and seemed to have a lingering effect the next day. It is not a horribly sedating drug so it can be taken during the day if you don't have to drive or anything. It doesn't have any direct effect on the rash itself, just relieves that overall tingling, burning, itching that makes a person want to roll around on astro turf to make it stop.

In Topic: Dh?

23 October 2012 - 07:01 AM

These photos look like my DH when it first started 10 years ago. I initially thought that my skin was sensitive, or that I was getting some kind of bug bites. Over time it got worse and worse and spread over more and more of my body in larger patches that blistered over and over again.

Try to get it figured out ASAP because you might be able to avoid the years of suffering that many of us have dealt with. You skin looks pretty good at this point and you don't want to end up with the scars, dark spots and white spots that years of DH can cause.

Good luck.

In Topic: Night Time The Worst

11 October 2012 - 07:43 PM

My rash is always the worst early evening and at night.

The psychiatrist I consulted after 3 dermatologists told me I was crazy explained why (and it's not because little bugs are coming out at night). Although scabies will be more active at night, most rashes will also itch more during the evening hours.

Here's why: When we wake up in the morning our body's natural steroid levels are at their highest and they decrease as the day progresses. This is why fevers are higher at night, flu symptoms are worse, DH ITCHES MORE, etc. etc.

Why does a psych know this when regular docs don't?

In Topic: Finally! A Great Doc

11 October 2012 - 10:48 AM

I think "non-celiac" means that all testing is negative and there are no GI symptoms. She did say that they are not sure whether it is due to the fact that DH patients often have patchy (or no) damage in the small intestine and a positive skin biopsy requires hitting the right "target" so biopsy could be negative much of the time. They haven't figured it out definitively. She supports me remaining strictly gluten free since I have improved so much over the last two years.

Yes I am MORE Hopeful :lol: