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Kathy59

Member Since 18 Mar 2010
Offline Last Active Mar 26 2013 09:30 AM
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Posts I've Made

In Topic: Neurological Symptoms?

15 March 2013 - 10:23 AM

Just want to put this out there...see if neuro will run panels to check for other viruses active in body. I have nerve damage due to that very reason. It is painful and dibilitating....I take an anti-viral med along with lyrica and cymbalta to combat the pain...after 4 years the ebv seems to be down....however, I recently decreased my med and the pain has become more active...so going to see about increasing again! I orginally tested postive for active viruses of EBV, chicken pox, and Herpes Virus....what happens is your body is attacking itself so all the viruses you have immunity to...become active and attack the nerves....it is awful!


In Topic: In Need Of Venting!

15 March 2013 - 10:03 AM

I would get my dinner to go from another resturant as a previous poster stated. However, I would go ahead and eat my dinner, so it doesn't get cold and enjoy every bite while they are still waiting for their dinner! I agree that is not nice to pick especially an Italian Resturant...however, you might make a call ahead of time and see if they can accomadate you..then again on Easter Sunday....I would be concerned....just take your own food! and enjoy the rest of the day..


In Topic: Aroma!

01 December 2012 - 11:25 PM

I have tried both the rice and corn pasta..I prefer the corn pasta because i feel like I am biting in to something...however, I do not have an allergy to corn...at least that I am aware of..

In Topic: Extremely Fatigued, No Energy, And Can't Sleep

01 December 2012 - 05:41 PM

Hang in there! In the beginning I went from not being able to stay awake to insomnia at night! Remember, we are all different and are bodies are at different stages of the disease! Highly recommend B12 sublinguial (dissolve under the toungue) Vit D3 (most people are lackin Vit D) B Complex...I take others, fish oil, Vit E. I also ate straight fresh fruit/veg and meat for months....lived in an area where gluten-free foods not available....finally ordered pasta and breads from Amazon.....soups too! I think it was good for me though to somewhat detox my system from all processed foods! Discovered how good real food is and still do not eat out much or processed foods...it does get better! Stay off the gluten...once you get past this...if you find yourself falling asleep it may be from ingesting gluten...if the gut pain doesn't get you first!

In Topic: How Many Of Us Assume A Gfd Will Fix It?

01 December 2012 - 05:25 PM

To everyone here: please do not give up...I have been where many of you are...I am feeling better, but it has been a long, uphill battle! My first words...do not be so hard on yourself...second, accept your new normal. I have also had and suggest bloodwork to check your viral levels. Seems like every virus I had ever been exposed to was active in my body. This is because your body attacks the gluten and all the good guys keeping all those other bad viruses are called in to fight the gluten. In my case the viruses attacked my cns causing nerve damage....it has been almost 3 yrs now...steady as she goes...I am not 100%, probably never will be, but I am sure better than I was 3 yrs ago...laying on a couch unable to stand the touch of a sheet against my body, drugged out on narcotics because drs were not treating nerve pain....I still take anti-viral meds, cymbalta and celexa for nerve pain, baclofen for muscle spasms, and a host of supplements; however, I was taking main meds 4 times a day and now down to 1-2 times a day. Recently, cut back on supplements...yes, I still have good days and bad days...but, I rest on the bad days....and it is not always possible, but I know when I have to push through...I will be resting...no more, pushing 24/7...