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Member Since 25 Mar 2010
Offline Last Active Apr 26 2013 06:58 PM

Posts I've Made

In Topic: Ataxia Response To gluten-free Diet?

26 April 2013 - 07:02 PM

just for another data point, I tested negative to celiac and I don't the most common genes, but I'd read some of Dr H's research and since I had lots of balance problems in addition to the gastro stuff, I was determined to go gluten free even without a diagnosis.  It probably took about 3 months before I noticed any improvment in the neuro stuff (yet only 3 days for the gastro improvements) and maybe 6-8 months before it was heaps better.  If I get glutened one off, I don't have any neuro issues but if it's a tiny amount over a few days (as has happened  when I was travelling and had less control over my food) my balance goes really wonky again. Since I'm not used to it, it feels even worse than  before.


Best wishes to your brother Gatita, it sounds very scary :-(

In Topic: Australians And New Zealanders Hellooooooo :)

26 April 2013 - 06:56 PM

Hello all! Sorry, I haven't been around much at all. Welcome, new peeps!  I am another Australian (Sydney)


I can't imagine what the food offerings would've been like a few decades ago. I'll be gluten free 3 years this June and there's just more and more out there.  I adore the new Purebred range, and even Country Life is now heaps nicer with the new recipe they are using. I think the San Remo pasta is the best, in Coles you can find it in the 'health foods' section, in Woolies it's in amongst the regular pasta.


I'll try and pop back more regularly, I have been slack :-)

In Topic: Am I Just A Wuss? (Staying Home After Gluten/soy/whateverings)

11 March 2013 - 03:40 PM

ell said, IH.  I thought it needed repeating.  We are still here.  And we are still here in the hopes that we can help others to be still here, living life.  We are not here to be the wicked witches of the west.  We are not here because we like arguing or because we feel sorry for ourselves.  We are here to try to give you whatever help you need.  If you don't like the message, feel free to disregard it.  But don't complain because it was offered -- you did after all come here seeking it, even if it wasn't the message you hoped for. 



I haven't been around much lately but I am still so grateful to 'shroomie and many others for all their help when I was preparing to go gluten free.  Even though I am not around so much, I am super grateful for them and that they are still here helping others who came after me. Thank you.


This borders on harassment, if you ask me.


I agree. I don't get any grief about what I do or don't eat and I would never take it from anyone.  It's not worth it to my health, and I don't want to associate with anyone so nasty.  I get that you can't chose your co-workers, and work situations are a lot harder, but I wouldn't bother being gracious to anyone who treated you like this, even if it's in your nature to be nice to people.  Sometimes, they deserve a not so nice response to those kind of insane argumentative replies. 


I do disagree with the comment that that alcohol is not pushed so much beyond teenage years as food is.  That may be the case in communities in the US but Australian culture includes a lot of drinking and so did life in London where going out for after work drinks a number of times a week was super common and accepted.  Many of us turned up for work feeling rather worse for wear and in retrospect, I think that was an issue. But it was work encouraged and often endorsed (we had drinks at work, or were out drinking with our managers and coworkers).  When my team was seen as a bit cliquey and not attending drinks with everyone else, they moved the location to our office and some Friday evenings we were literally sitting at our desks finishing up our work while coworkers from less busy teams drank and socialised around us.  Whereas food, pfffft, no one cared about that.  I also think the style of food in the US is much more gluten-y than I am used here to so I do sympathise there. It stresses me out a fair bit when I travel to the US whereas in Australia and the UK it's no big deal and there are usually quite a few items that would be naturally gluten free.


To the OP, I can be pretty wussy and want to stay home if I feel ill. I figure if I don't feel well at home, communting an hour each way on the bus is really not going to help.  So don't beat yourself up about it, you have a fellow wuss in me :-)

In Topic: I Dread Eating Out, Please Help

10 February 2013 - 03:49 PM

True but once in a while you dont get to choose. Once I was visiting my parents and they really wanted to go out to this restaurant that specializes in pot pies and was really close by. So I was dragged along

My suggestion for that situation is to say something like, if you really want to try one of those pot pies then I'll be happy to keep you company but I'll just get a drink. And I'll say that we need to organise it so I can eat either before or afterwards. I don't want to deny someone the opportunity to try something they couldn't usually have (if they lived close by to this place I'd be annoyed!) but I'm not going to risk my health.

For any advance planned eating out my friends and family always let me pick (or I give them a choice of places safe for me and they pick from them). Spur of the moment stuff I see if there's anything I can have and if not, I have a drink and grab something later. On a family trip recently I couldn't eat much at all at my step brother's place but my brother would stop by McDonalds on the way so I could get fries and a drink which felt like a treat (plus I had food in the fridge in the hotel) and so I could be all "oh, it looks delicious but I'm really full" with all the family members I didn't know well and didn't want to get into it with.

it helps you realize what you are *actually* doing - enjoying a social activity with people you care about. If that means, in order to eat, you have to stop by a grocery store and buy a couple apples and a fresh jar of peanut butter so you have some food, so be it.

I really agree with this. Rather than feeling like you have no choice to be somewhere, or that you'd be better off missing out at home, you meet your physical needs and social needs but in a different way to how you might be used to. Now I eat out with friends to enjoy their company, not to have a great meal. I can eat well at home another time.

In Topic: Medications For Depression And Anxiety

05 February 2013 - 03:31 PM

I take Zoloft which is also sertraline. I have suffered from depression and anxiety for most of my life and I have found Zoloft has really helped me. I was always really against the idea of taking antidepressants (they seemed so scary) and now I only wish I hadn't wasted so many years with that attitude. It is amazing not feeling anxious all the time. I have non-Celiac gluten intolerance and while my anxiety did dissipitate a bit over 2.5 years gluten free, it was only after a month or so on Zoloft that I felt so much better.

Don't feel ashamed to be taking them. I can relate to how you feel and I do keep it a secret from most people, but I would be honest if anyone asked me outright. I see it as a medical treatment for a real condition, depression and anxiety aren't personal failings or weaknesses.

I second the suggestion to see a counsellor. My GP said that treatment of depression with a combination of therapy and medication shows the most success and I see a clinical psychologist weekly and that has really helped too. I tried therapy in the past without medication and that didn't work for me - I think I was so depressed I couldn't take it in. But having the depression lifted by the medication and then starting therapy was a great combo.

It can be hard adjusting to SSRIs initially. In the first week I had insomnia, I kept clenching my jaw and I could not stop jittering. But those passed and googling my symptoms to read about how other people felt the same really helped me. It's also extremely important to wean off them very slowly, if you decide not to take them anymore. Stopping suddenly can (very likely) have severe side effects.

All the best to you. I hope you feel a lot better soon.

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