But whenever I describe my symptoms and my recovery after going gluten free, doctors are all "huh, that's weird, you totally sound like you have celiac".
I figure I have it but medical testing just hasn't caught up yet. I mean, I'm obviously intolerant to gluten and isn't the definition of celiac an intolerance to gluten? I usually say that I'm gluten intolerant and if people say "oh, so you have celiac" I say yes if I don't know them, won't see them again and don't care about getting into it but if I do know them I'll say I tested negative but had an amazing recovery when I went gluten-free and it now makes me really sick. I'll explain further about how testing is unreliable if they seem interested.
I find most people respond along the lines of "hey, that's great you know what makes you feel better!". There's the occasional "sucks to be you" but whatever, it sucks worse to eat gluten. No one has ever accused me of being on a fad diet. I think they know me well enough to know that I could always be persuaded to break a (for weight loss) diet but I am absolutely immovable on the gluten-free issue.