Have you gone back to your doctor with these issues?? Sounds like someone has done a good job finding different food sensitivites, etc. Maybe there is more to be done? Have you had something like H Pylori checked?
I get bone pain in my hips and shoulders. It comes and goes, too. Not sure if it is some sort of vitamin deficiency or accidentally got cc'd. Going to my GI doc to see what he says. Good luck to you!
Yeah, if you've been getting even a very small amount of gluten, you can't expect to have your symptoms go away. If you've seen improvement (without symptoms going away), then I'd be fairly confident that it's celiac. It's not terribly common for biopsy findings that are consistent with celiac to be from something else (possible, but those other things are likely to be eliminated previously, and won't respond the gluten free diet).
So you do not think the genetic test is necessary? Tarnalberry, what other things in the biopsy could be a problem? Ravenwoodglass, I LOVE your profile picture!!!