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em80

Member Since 30 Mar 2010
Offline Last Active Jan 22 2013 05:23 AM
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#849596 Help?! For Post-Diagnosis: Mayo Vs Columbia Vs Chicago, Etc. - How Do Yo...

Posted by em80 on 21 January 2013 - 12:44 PM

I've heard all three doctors speak numerous times at conferences and workshops, and I believe that the specialist who may be able to help you the most is Dr. Murray, because he specializes in identifying other foods and factors that may be causing your distress. He believes in cross-reactivity (which, I know, a number of people on this forum do not believe in), but he has convinced me that this can be a real concern when a person is unable to heal properly after strictly following a gluten-free diet. Try contacting him first to see if he can help--he's very approachable and compassionate.


Thank you so much! That's something I've been looking into as well, and it definitely makes sense to me that it could be an issue. I've tried elimination diets with some success (I now avoid most soy), but they can be pretty overwhelming and I also felt like it made sense to take some time with just the regular gluten-free diet and see how well things healed on that without getting overly-complicated.

Are you able to eat out at all, or is the risk of CC just too severe? I'm afraid that's the reality I may have to accept! Either way, I'm so glad Dr. Murray was able to help you - thanks for your input!!!
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