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Member Since 11 Jan 2005
Offline Last Active Aug 13 2007 06:37 PM

Posts I've Made

In Topic: Questions About Starting School

13 August 2007 - 08:55 AM

My son is in 3rd grade now but was dx in kdg. I always provide a stash of gluten-free snacks or treats for him so the teacher will have something on hand. I also visit the the csaceliacs.org website and click on the kids link and print the letters for school staff. They have them for teacher, sub forms, principal, etc. I print a new set every year. As for supplies, I always ask what type of of art/crafts supplies they will be needing and make sure to provide a gluten-free equivalent. Crayola crayons are gluten-free and I always buy him extra boxes for his classes where he has to switch rooms and he has strict instructions not to share to prevent cross contamination. If he will be needing play doh I order the wheat free/gluten-free colorations doh from www.discountschoolsupply.com It will usually hold him a couple of school years and is used only for him. If he needs more of a modeling clay, crayola modeling magic is gluten-free. Hope this helped!


In Topic: Ehlers Danlos

08 June 2007 - 09:53 PM

Ehlers Danlos is a connective tissue disorder, not autoimmune. It is an actual genetic defect in the make up of collagen in the body.

I have EDS as well as Celiac Disease, my oldest son has both also. My daughter has mild EDS and carries the genetic marker for Celiac Disease. My youngest son has severe EDS, hypotonic cerebral palsy and nonverbal learning disorder which is controversial as whether or not it is on the autism spectrum. It resembles Asperger's in the way of social skills, problems with pragmatic language, etc.

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