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Mizzo

Member Since 10 Apr 2010
Offline Last Active Sep 10 2014 04:48 AM
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Posts I've Made

In Topic: Why Do Testing?

07 September 2014 - 09:06 AM

BTW when they do the endoscopy the child is put to sleep with a mask first before inserting the IV. That helped a lot for us.  We started with my 7 yr old flailing and kicking the nurses who wanted to draw her blood to 4 yrs later her saying , ugh, not again.  it does get easier,  and in life  she will need to get blood work done at some point .

 

Dee made some wonderful points about prepping her , talk to your Dr's about it.

 

In addition to StaphanieL list  :  If you need accommodations for college you will need DX .

 

In reality you have no idea about your future , where she will be and who's care she will be under on a daily basis  and  a DX really helps  others to reinforce her needs

 

good luck  Maureen


In Topic: New Here And Need Help With School Policy

05 September 2014 - 05:00 PM

We have been gluten and nut free in school for years. However, my DD can have rice so eliminating that certainly makes it very challenging.  Do you have someone with nut allergies in your child's classroom ? If you don't , you may have lotz of wiggle room with the (made in facility rule ) if you do you should start with a request for change in classroom .   There may not be many rice free/nut free packaged foods but home made meals can be supplied and we have had usage of microwaves in school for years .  Start with a sit down mtg with the principal, I have found them to be more accommodating than expected.

 

good luck 


In Topic: My Rambling All-Over-The-Place Intro...

02 September 2014 - 11:56 AM

Honestly you will be overwhelmed with this for awhile, but, you will figure it all out and no matter what your child will get better.  Ask any and all questions there are tons of great idea's here. You are not alone !!!!   We have all experienced mistakes and wins with our kids, ourselves and our families.  


In Topic: How Careful About Non-Food At School?

02 September 2014 - 11:52 AM

I personally would say NO to all Gluten containing items and  supply my own mat to be stored separately. Cross contamination is a real threat in the classroom.  My 504 plan is clear on this and  I have even  talked to the teachers about having kids wipe desktops top to bottom as when they will wipe side to side and they were just flinging the crumbs across the desks.  


In Topic: Wondering Accuracy Of Blood Test For An 8 Yr. Old

14 April 2014 - 09:35 AM

My daughter was dx through blood work then confirmed with an  endo at 7 yrs old. You need to be back on gluten for approx 6 weeks. 

 

good luck