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Member Since 12 Apr 2010
Offline Last Active Jul 06 2012 03:14 AM

Topics I've Started

Low Cholesterol Or Low Cortisol

11 June 2012 - 11:54 AM

I'd be interested to hear of anyone else experiencing low cholesterol and/or cortisol and any accompanying symptoms.

Does this often occur in celiacs (seen several other posts about this)? Even when they are on a gluten-free diet?

I first had low cholesterol and cortisol flagged one year ago. I just received new bloodwork (see signature for numbers) showing that my cholesterol and cortisol have continued to drop over the past year. Seems surprising as I've continued to eat lots of eggs, started eating butter (doctors orders!!!) and goat/sheep cheese. I don't eat meat, however, just fish and sea-food. I may need to start eating meat (been 'pescetarian' since childhood).

I've also been taking Isocort (supplement to help raise cortisol levels).

Thank you.

Anyone Experienced Anti-Gliadin Iga Go Down Once Gluten-Free?

11 June 2012 - 09:10 AM

Hi there...

I posted in detail about this here but it was probably way too long! :rolleyes:

Has anyone experienced getting a lower anti-gliadin IgA (from stool testing) after being gluten-free?

If so, did you also have some symptom relief?

Thanks for your help!

Nighttime Nausea, Joint Pain, 'buzzing' Head, Swollen Glands, Etc

09 June 2012 - 03:14 PM


I'm still trying to figure out whether all my unexplained health issues are indeed related to gluten. Unfortunately, my symptoms seem to be getting progressively worse despite the fact that I have been strictly gluten-free for 3 years. I must admit that I'm feeling a bit despairing that I will ever get better today... But thought it would be better to act by reaching out here, then just 'give up'.

Most of my symptoms come and go and are sometimes much worse than other times - which I suppose is why I still believe it must be something that I am doing or eating that is causing them.

Periodically, I get the following symptoms, all at the same time, in what I consider to be 'episodes'. The onset is sudden:
  • Swollen abdomen
  • Nausea
  • Swollen glands (in neck - near tonsils)
  • Swollen lymph glands (groin, armpits, neck, knees...) - I think
  • Aching joints (hips, knees, elbows, small joints in fingers, toes...)
  • Headache (tight band around top of head)
  • Lack of appetite
  • Extreme fatigue
  • Brain fog
  • Sense of despair/ cry easily - that feels more physical than just a response to other symptoms
  • Painful urination (as though urine itself is irritating)
  • Sore throat
  • Slightly hoarse voice
  • Itchy acne like rash on forehead - like lots of tiny pimples beneath the skin (nowhere else - usually appears after other symptoms have subsided)
  • Weakness
  • Muscle aches
  • Dry/gritty eyes
  • Photosensitivity
  • Hypersensitive to smells
  • General malaise / feel like I'm getting the flu
  • Chills and feel hot at same time (prefer to be warm though)
  • Only option seems to be to 'sleep it off'

I first got this collection of symptoms and it lasted around 3 days in June 2009 (just after having Mirena IUD inserted). When I do not have them, I feel mostly like a healthy 33 year-old... but unfortunately they come frequently and are getting in the way of all aspects of my life (work, relationship, travel...).

The other symptoms/issues that I have are frequently getting very painful UTI's (this has vastly improved since I recently started doing bladder instillations - life-changing!) and gynecological issues (pain, inflammation, irritation, fissures...). I've had these issues since being a child.

Just these last couple of weeks, I've had a couple of newer symptoms add themselves to the list: Very bad night-time nausea and stomach cramps, to the point of waking me up as well as just feeling lousy in the morning. I also feel this strange 'buzzing' in my head (not a sound - more a sensation) when I wake in the night, and feel as though I might faint when I stand. I feel a bit feverish too... My throat pain has been more intense and lasted longer. I have a feeling like there's a lump in my throat (thyroid area?). The aching joints have also been worse these past couple of weeks (this usually is less severe and doesn't last as long) - and I felt as though my left hip (never been painful before) and right shoulder were kind of 'frozen' yesterday morning. I felt as though my arm and leg had pins and needles too and were tingly/numb. This stopped after about an hour of moving around gently. Had to sleep most of yesterday.

It is just difficult as I feel that the issues keep 'moving around' my body and new ones are appearing all the time.

The main thing that improved when I went gluten-free is the 'baseline' state of my digestive system. I used to always be bloated, have cramps, gurgling, flatulence... and when I'm not having one of these 'episodes' my stomach is really quite good! And even when I do have one of these 'episodes' it is never quite what it used to be... it feels more like a systemic inflammation, rather than a GI issue directly.

The one thing that is always there and sometimes worries me, is a painful swollen area in the lower right quadrant. I notice it most when I'm lying down and when my stomach is empty. It didn't used to feel like that... and for the past 4 years, it is always there, aching a little, and swollen to the touch (told dr's but no-one seems to think it is too much to worry about).

I recently had food poisoning (from raw salmon - probably salmonella) and although I was violently ill, I felt like a healthy 33-year-old having a 'normal' reaction, rather than this awful unexplained set of symptoms that just make me feel like I'm way beyond my years...

Sorry to be so long and so 'down' about it all... I suppose my main question is does this sound familiar (i.e. gluten response to contamination) or does is sounds like something else that you've experienced? Another food intolerance? Another health issue?

Thank you very much for your time.


30 Plus Polyps Found On Colonoscopy (In Early 30's)

09 June 2012 - 02:38 PM


I was wondering if anyone else has had polyps found. The gastroenterologist found more than 30 polyps when I had a colonoscopy done (a year and a half ago when I was 31 years old).

Fortunately, they were all hyperplastic and not of the type that tend to be pre-cancerous, after the biopsy. He removed most of them. I have not had a formal celiac diagnosis but was simply wondering if others who are celiac or gluten intolerant also have multiple polyps.

The gastroenterologist did not report anything else unusual (he did not even observe villi damage) except for the fact that my insides were not 'clean' despite having followed all pre-procedure instructions to the letter. This made me wonder if my digestive system was sort of 'slowed down'. Does anyone else feel that they might be processing food slowly? It's an impression that I have about my own digestive system.

Thanks a lot,


Antigliadin Iga Results After 3 Years Strictly Gluten-Free

09 June 2012 - 02:14 PM

Hi there,

I frequently consult this site and find it both helpful and reassuring. I posted here a couple of times a while ago... but am now going to post a few separate questions in the hope of finding some answers, as my symptoms seem to be continually getting worse despite being strictly gluten free (to the best of my knowledge) for 3 years now (I'm 33).

Original Enterolab results (July 2009):
Fecal Anti-gliadin IgA: 18 Units
Fecal Anti-tissue Transglutaminase IgA: 13 Units
Quantitative Microscopic Fecal Fat Score: 558 Units

Recent results from a stool test done by a different lab (April 2012):
Anti-gliadin sIgA: 13.4 (flagged as 'high' - described as 'screening marker for gluten sensitivity').
Fecal sIgA: 135 (not flagged - range is 5-161 mg/dl)
All 'absorption' tests for fat malabsorption were in the normal range.

My understanding is that the original Enterolab results being above 10 Units show that "Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity."

My doctor is saying that the fact that my recent results also show an elevated anti-gliadin shows that I am definitely gluten intolerant and still being exposed to enough to be having an adverse response (and according to him this lab is less sensitive than Enterolab for this measurement - making them more significant, as it might have come out higher with an Enterolab test).

On a positive note, it seems that fat absorption is no longer an issue now - Although I was a very skinny child, I was always tall. I am not too thin now but relatively slender considering how much I eat!!! My doctor in Belgium felt that my cholesterol was too low about a year ago, and told me to eat butter (best doctor visit ever - not sure they'd take the same approach here in the US!) and so until a couple of months ago, that was the only dairy I was eating.

Would others agree from experience/knowledge that this result is a clear confirmation that I am still consuming gluten unknowingly? And also that I am definitely gluten intolerant?

Has anyone experienced this anti-gliadin IgA go down once they were totally gluten-free (and symptoms were subsiding)?

Also, when I previewed my post the lab name came up as (company name removed - they spammed this forum and are banned) - I am now wondering whether this lab is even 'trustworthy' or if I'd be advised to return to Enterolab (although the cost is very high!).

I'll post other questions elsewhere (as I don't want this to get any longer!) but really trying to determine how 'certain' I can be that getting even more careful about gluten is my next best step.

Thanks a lot for your help and any thoughts!


PS (in case this is useful):
Full Enterolab results:
Fecal Anti-gliadin IgA: 18 Units
Fecal Anti-tissue Transglutaminase IgA: 13 Units
Quantitative Microscopic Fecal Fat Score: 558 Units
Fecal Anti-casein (cow's milk) IgA: 7 Units
HLA-DQB1 Molecular analysis, Allele 1: 0202
HLA-DQB1 Molecular analysis, Allele 2: 0202
Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)
Fecal Anti-ovalbumin (chicken egg) IgA: 4 Units
Fecal Anti-saccharomyces cerevisiae (dietary yeast) IgA: 5 Units
Fecal Anti-soy IgA: 6 Units

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