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Member Since 18 Apr 2010
Offline Last Active Jul 25 2010 09:18 PM

Posts I've Made

In Topic: Any Experience With Ultra Clear Plus "medical Food Product"?

23 July 2010 - 01:59 PM

Sorry I 'm short on time to look up the product you mentioned.

Hashimoto's take some time to completely destroy the thyroid. Your symptoms are consistant with Hashi's, and it probably is just a matter of time before you will be put on medication. (the rest of your life maintenence drug)

Thanks for the reply. :) Bloodwork came back showing strong sensitivity to eggs and dairy, so have eliminated those completely. I did some additional research on the UltraClear Plus and it looks ok, but the doc said I could just see how things go with eliminating those and the many, many other foods I know are a problem (vinegar, garlic, citrus, chocolate, etc, etc). TSH was 2.5 -- I know the norm is more like 1-2, but I don't feel like fighting with the doctors right now, so will wait a bit and see what happens with the modified diet and then maybe get another TSH test in a month or two. It's been a year now, and although I've improved, I'm starting to wonder if I'll ever feel really well again. Grr.

In Topic: Anyone Know Anything About Avocado Allergies?

23 May 2010 - 03:57 PM

Me too ? how do they test ?

After posting, it occurred to me that I could just google it. Here's one summary (there were others similar to this):

"This is the most common form of testing for leaky gut. The person is given a solution containing mannitol and lactulose and collects their urine for six hours to be tested. Lactulose (a disacharride) and Mannitol (a monosaccharide) are two water soluble, non- metabolised sugar molecules. Mannitol is easily absorbed, penetrating cells, whilst Lactulose has larger molecules and is only partially absorbed. If the levels of mannitol and lactulose in the collected urine sample are high it is indicative of Leaky Gut Syndrome. Low levels of both molecules indicate malabsorption of nutrients. High levels of lactulose and low levels of Mannitol indicate that the person has healthy digestion."

In Topic: Anyone Know Anything About Avocado Allergies?

22 May 2010 - 09:29 PM

Yeah, that's for sure, although I did get herbal stuff from my doc that makes the pain go away, since then. It's got aloe, slippery elm, and a bunch of other stuff I can't remember.

I was at a church potluck on Sun. afternoon and, although I brought a couple of different foods I could eat, decided when I saw a some fruit trays to do a little test. I had my tummy pills with me, so I guess I was feeling brave! :lol: I ate two or three strawberries--no other fruit--and see if it hurt. No pain. Then around 4 a.m., about 13 hours later, the old familiar pain and bloating began. I never how bad it might have gotten, as I got up and took a couple of my pills, which put the kibosh on the pain, if not the bloating.

But my doc wants me to be tested for food allergies and LGS.....I just have to wait a bit, as I don't have insurance.

I'm curious -- how do they test for leaky gut? I just went to an allergist a couple of weeks ago, and the topic of leaky gut came up, but she never said anything about being able to test for it. But I'd definitely be interested in testing if it's possible.

In Topic: Anyone Else A Subtype (5,8)?

04 May 2010 - 07:59 PM

This thread is kind of old, but I'm fascinated by the idea that similar constellations of symptoms might be connected to these different types of genes. For those who know your gene type, I'm wondering how you found out -- did a particular doctor or specialist order the tests? Did you ask for them yourself? I don't know what gene type I have, but my celiac symptoms were more neurological and autoimmune (I had only very subtle GI symptoms). My bloodwork for celiac was off the charts, so they didn't make me do a gluten challenge and biopsy to diagnose.

I'm seeing an allergist for the first time next week, and am wondering if I should ask about the gene testing. I went gluten-free 5 months ago (in December) and had been getting steadily better. I developed joint pain, but that went away with elimination of nightshades. Then in early April my face broke out all over and I started to have mild OAS reactions to foods that had been ok before. I'm thinking maybe it's the pollen, but I'm afraid that this is going to be the start of more new permanent allergies. Anyway, I'd be curious to hear more about if and how celiac patients and docs are using this gene info to troubleshoot symptoms and additional diseases (I developed Hashimoto's autoantibodies, but it hasn't messed up my TSH yet -- am hoping the gluten-free diet will keep this subclinical ...)

In Topic: Do They Exist?

29 April 2010 - 08:52 PM

When I was diagnosed with Celiac Disease, My GI Dr. told me to go on line and learn all about the disease. He had nothing to tell me other then to not eat gluten and that I could learn about it all on line.
Is this what they all do?

I hope not! I think part of the problem is that many primary care doctors see celiac as something a specialist should deal with, but most GI doctors don't have much training to deal with celiac. Most GI research focuses on other kinds of gastrointestinal issues, and since the treatment for celiac is food-based, there's not much money flowing in from drug companies to fuel research and attention to the problem.

My GI doctor told me some basic stuff (though by the time I was diagnosed, I probably knew more than she did about the gluten-free diet), and then referred me to a nutritionist. The nutritionist was good and had worked with other celiac patients before, but her focus was really more about balanced diet and identifying possible gaps in terms of vitamins and minerals (e.g., she had me get bloodwork to check my zinc and magnesium levels). On the other hand, stuff like allergies and food sensitivities are not really her area. I'm ok with the fact that I have to do some reading/research, but I think it's really important to have a doc who will work with you and help troubleshoot. Good luck!

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