I used to think about getting cosmetic surgery from the swelling too (and I am pretty young, 27). But, as the swelling has diminished my skin has tightened back up. Also, I my derm prescribed me retin A cream to improve the integrity of the skin that was swelling and it looks much better. Things that have helped with my swelling are decreasing sugar intake, taking probiotics, drinking coconut water, a teaspoon of coconut oil/day, and taking fish/flax oil. I definitely know how frustrated you probably are. I was really depressed about the swelling, but it is continuing to get better and better. Its just been a very SLOW process (about a year). I am hoping the swelling will be gone in another year once my gut is completely healed. Hope this helps!
I also woke up every morning with an extremely swollen face before going gluten-free. I have been gluten-free for about a year now and the swelling has improved about 90% but is still there (mostly around my eyes...so embarrassing, however, if I eat any gluten then the swelling returns fully. I suspect dairy might be an issue for me also and am about to eliminate that for a couple of weeks and see if the swelling stops. I hope you are able to figure yours out. Its SO frustrating!
Thank you all for your posts. I appreciate your help so much. This diet is definitely tricky and its hard to get answers from my doctor (he doesn't know much about Celiac). Its so nice to get help from this forum. I think I will stop eating nut thins and gluten-free oats for awhile and see if my symptoms go away completely.
If a product says gluten-free on it, but then the label says "made on the same equipment as wheat" or "Processed in the same factory as wheat" do you stay away from it in general?