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Skylark

Member Since 26 Apr 2010
Offline Last Active Aug 07 2014 05:07 AM
*****

#619776 Does Anyone Else Suspect Other People Have Celiacs?

Posted by Skylark on 27 June 2010 - 10:03 AM

What do they think the flour is made from? Does it grow on flour trees? I've run across this too and really wonder what people think they're eating.
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#619398 gluten-free Pasta For Cold Pasta Salads?

Posted by Skylark on 25 June 2010 - 10:19 AM

I've done pasta salads with Tinkyada and it was fine the next day. I used the brown rice spirals, cooked well. I haven't had Tinkyada get hard, but I have had it fall apart a little the second day. I don't mind too much.
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#619073 Hi Everyone!

Posted by Skylark on 23 June 2010 - 09:46 PM

Connie, that sneezing and puffiness sounds like true allergy! You need to tell your doctor this is happening and see what he thinks about allergy testing. True food allergies can get worse, and can become dangerous. (Like when your windpipe puffs instead of your lips!) Wheat allergy is a little unusual in adults, but we specialize in unusual around here.

If that were happening to me I'd take a little Benedryl to be on the safe side and stop eating whatever made me sneeze and swell. Then I'd nap for four hours because Benedryl makes me incredibly sleepy. :lol:

By the way, your recipe sounds good. I'll have to try it once it gets hot here. Thanks for sharing.
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#619070 Dq2/other Low Risk Gene -- Help With Prometheus Lab Results?

Posted by Skylark on 23 June 2010 - 09:19 PM

And Ravenwoodglass will continue to do so. :) Please don't take it personally. I don't want what happened to me and my family to happen to anyone else.

I know it's not personal. :) I mentioned you as a positive nod. I completely understand as I'm shouting just as loudly about 15 years of psych misdiagnoses, with exactly the same hopes. If even one person with chronic GI trouble and depression/fatigue gets diagnosed with celiac instead of put on Prozac and shuttled off to the psychiatrist with a pat on the head, I've succeeded.
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#617802 How Many Are Not Gluten Free

Posted by Skylark on 18 June 2010 - 11:01 AM

It's so nice of you to join a group like this to learn about celiac for your hubby!
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#617004 "allergy" Testing

Posted by Skylark on 15 June 2010 - 08:05 AM

Listen to your body, not the doctors! There are forms of gluten intolerance that don't show up very well on celiac tests but you still feel miserable when you eat wheat. There are even milder cases of celiac where the blood tests are fine, but when they do an intestinal biopsy there are some abnormalities.
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#612464 Something Really Scary Has Happened

Posted by Skylark on 23 May 2010 - 06:39 PM

be aware that ativan is in a class of drugs called "anxiolytics", used to treat anxiety......be prepared for the docs to think that is what your problem is....good luck

Ativan is also anticonvulsant and a muscle relaxant. Don't assume doctors are writing you off. I'm sorry it's not helping. :(
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#610854 Do You Feel More Mentally Healthy After Going gluten-free?

Posted by Skylark on 15 May 2010 - 12:39 PM

I was bipolar, on meds and having all sorts of problems. Off gluten, I am stable, off meds, years-long insomnia problems gone, and my psychiatrist declared me "in remission" over four years ago. I do require fish oil and a really good multivitamin to feel really well.
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#610675 Oh I Give Up!

Posted by Skylark on 14 May 2010 - 09:44 AM

You can order the genetic test either from the banner ads on this site or enterolabs. If you have the genes for it then you need to avoid gluten it's that simple. It will also tell you if either only one or both of your parents gave you the genes for it, it had to have come from somewhere after all.

Um... The genes are not considered diagnostic by the American Gastroenterological Association. About 30% of the population has DQ2 or DQ8, but only about 1% is celiac. The Enterolab antibody tests are not accepted by the general medical community either because of the tremendously high false positive rate. If waving around a piece of paper your mom isn't likely to understand without a bunch of research is helpful, sure get them, but $369 for the full panel is an awful lot of money for a bunch of inconclusive tests.

There is a home tissue transglutaminase antibody test available now that has been scientifically validated and it's less expensive than Enterolab. You can buy it for $50 from http://celiachometest.com/. Like any blood test, you do have to be eating a "normal" diet with plenty of gluten. If you come up positive, you can bring the test kit box and info from the website to your doctor.

Also, the itchy rash might be DH. You may be able to get your celiac diagnosis if you bring your doctor info on DH and show her the rash.
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#610365 I Can't Commit To Gluten Free Without Some Sweets!

Posted by Skylark on 12 May 2010 - 03:29 PM

The new Betty Crocker gluten-free mixes are really good. My fave is the Devil's Food cake. Pamela's gluten-free brownie mix makes good brownies too. I also just discovered the Glutino "oreos" called Dream Cookies. Nom, nom. And then there are the Glutino Sugar Wafers, Breyer's ice cream, Häagen-Dazs sorbet, Dove dark chocolate, and Jelly Bellies, any of which make it into my grocery cart occasionally.

Yes, I have a sweet tooth. Sugar in moderation is good for the soul. :P
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#609573 What Would You Do...?

Posted by Skylark on 08 May 2010 - 09:57 AM

You said that well, WheatChef.

Ruthie, you're not "throwing in the towel" if you come home. You're creating an opportunity for yourself to find a different way of volunteering where you can stay healthy and effective.
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#607832 Im Not Crazy

Posted by Skylark on 29 April 2010 - 03:10 PM

Yuck, I've been there, with the Prozac and Celexa....mood swings to the point where people really thought I was crazy....but all the time I knew there was something physically wrong with me that was causing these mood swings, even if sometimes I acted pretty crazy! After taking lots of fish oil for 6 or 8 months, the mood swings went away, but I was still sick with more symptoms I think than I can count. And nobody really gets it, do they?

Until you find this place. It's great!

They stuck me on Prozac too! I thought I was the only person unlucky enough to have been treated for depression instead of celiac. My shrink never thought anything of all my GI symptoms and my GP who diagnosed "gastritis" never suspected that the fatigue and depression had anything to do with diet.
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