Posted this in a different forum but didn't get many responses...I am a 38 yo woman who is recently gluten-free (self diagnosed) - I took our 4 yo off gluten on the advice of a friend whose son is autistic (ours is not) and I have seen a big improvement on his speech etc. So we all went gluten-free - I never thought I had any issues until after a few weeks of limited gluten I had a piece of bread and I got cramps and mucus - not pleasant. Went away after a few hours and was OK after that. No problems before this, no intestinal issues at all - the only hint was that I took Colon Cleanse pills once and thought I would die and after pregnancy they gave me another and the pain was unbearable then too, but this was years ago. No problems with dairy etc etc.
So after the bread incident, I knew to stay away from gluten but had a little here and there with no problems at all. Then a week ago and I go for sushi and have a milk-based drink and within a few hours my intestines are in knots and I vomit. Pain goes away after a few hours. Next day, no thinking it is milk, I have cereal late at night and a few hours later I have the same pain and vomit again. Next day I did no gluten and no dairy, and at night I had a big salad and within a few hours, my pain came back again but no vomiting.
Next day (Friday), I am weak and jittery and shaky - I figure eggs are safe so I have a couple of soft boiled eggs and within 30 minutes my stomach and intestines hurt - not like before - but they still hurt.
Then I went to the clinic and they tested for everything - they didn't think it was a food issue but thought staying off dairy would be a good idea...at this point I was convinced it was not food but a parasite or virus. Then the next day I eat a little sour cream and yogurt and no problems, so I think "OK, I can have dairy then" and so the next day I have a little ice cream with our son and then have cereal at night (this was last night) and I am screaming in pain again. The clinic thank god gave me some vicodin for the pain and this was the worst pain night yet, so I took some...
Then this morning I get a call from the clinic and there are no parasites, so now I am assuming it is the milk giving me the problems...I have no problems going off of dairy or wheat, but I need some help in figuring out what proteins I can have that are digested easily...Although I am overweight, I have a real problem with food - as in not eating enough calories and food is often unappetizing to me, so my go-to foods have always been centered around dairy. (When I was pregnant that is all I could eat was dairy)...
The last bit of info (thanks for reading so far!) is that I now have an appointment in 10 days with a GI specialist and in 1 month our son and I are going to an allergist who is also a DO for food allergy testing...Oh, and I am low thyroid and been in thyroxine for as long as I can remember...
Thanks everyone - any and all advice is welcome..