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Member Since 22 May 2010
Offline Last Active May 21 2015 04:49 PM

#732485 Doubts About A Gi Doctor I Just Saw

Posted by on 20 September 2011 - 06:56 PM

well it's been over a year since I made this post and needless to say, I never saw that doctor again. At this point, I'm not concerned about dropping names, as I've spoken to another Celiac in my town who thought this doctor was useless. Her name is Dr Nugent at Christie Clinic. Since then, I've been going up to the Chicago Celiac center. They are tons more knowledgable about this than in Champaign-Urbana. The docs don't know crap here. Anyway, as it turns out, my Celiac disease was a stage 3 out of 4 stages, or partially blunted villi. The doctor told me that my celiac disease was actually quite advanced. Now since then I have switched doctors in Chicago because the prior one was very rude and inconsiderate and said I was being "paranoid" about my diet and that I needed "psychiatric evaluation." That was Dr Semrad. I have no idea why she was so unpleasant to my mom and I. Anyway, I have started seeing Dr Sonia Kupher and she seems much friendlier. I will be getting my blood tested again next month. After a year of being on the gluten-free diet, I was still quite sick with celiac disease (and this was after Semrad accused me of being paranoid and that it was all in my head)...since then I've been much stricter about my gluten-free diet. I got lots of allergy tests to see if there was anything else that was preventing me from healing, but no allergies were found. I had been eating out often in restaurants and although many have their best intentions, I think I continued to get exposed to gluten via cross contamination. I also found some other foods that I had been eating that were questionable.
Anyway, I've been on this diet for nearly 1 1/2 years so I really hope there is some improvement when I get tested again in October.
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#728318 Hershey's Contamination?

Posted by on 07 September 2011 - 08:03 AM

shame on you, Hersheys! I'm gonna have more honest chocolates that don't play all of these guessing games....seriously.
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#725620 Frustrated With Drs

Posted by on 25 August 2011 - 02:57 PM

I would seriously look for a different doctor. You do not deserve to be treated with disrespect. I saw a doctor in January 2011 at the University of Chicago who was very rude to me and chewed me out because I had some blood work done in another lab instead of their own. Then when I told her my concerns about cross contamination, she told me that I was "paranoid" and needed to seek "psychiatric evaluation." Needless to say, that was the LAST time I ever saw her!
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#725292 Delight: Gluten Free Magazine

Posted by on 24 August 2011 - 11:49 AM

I was just in Posana gluten-free Cafe in Asheville, NC and discovered this new gluten-free magazine publication. The people at Posana were very nice and let me have a copy of the Summer 2011 issue. I've read through most of it and it seems like a pretty good publication and cheaper than Living Without and Gluten Free Living. What are your thoughts on this specific publication?
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#712493 Question About Planter's Nut Products

Posted by on 27 June 2011 - 07:41 PM

thanks for your info, kareng.
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#705821 Meijer Brand Ricotta Cheese

Posted by on 04 June 2011 - 07:38 PM

thanks for the link! I just printed it out.
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#699505 Very Frustrated

Posted by on 14 May 2011 - 10:27 AM

thanks so much, everyone, for your support and suggestions. I will be back again soon.
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#636137 Gluten Free Jobs And Employment?

Posted by on 31 August 2010 - 06:09 PM

I'm not sure if this is the right thread to be posting this in, but I was wondering if I could find employment and job opportunities in the gluten free world. For instance, working in a gluten free bakery, or working for a gluten free food company. I've googled "gluten free jobs" and "gluten free employment" but have got few helpful links and results. I'm willing to relocate to other places in the United States.
Any tips?
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#629933 Top Three Worst Gf Products

Posted by on 07 August 2010 - 12:21 PM

Is it me, or do Enjoy Life cookies and bars taste awful? Very hard, weird texture/flavor.
Here are some other comments from Glutensolutions.com regarding their caramel apple bars:

mcminnville, oregon *
Friday, October 01, 2004
got this in my package as a mistake and it was awful - edible but awful

New Haven, CT *
Monday, November 01, 2004
too hard for my two-year son to eat

Council Bluffs, IA *
Monday, November 01, 2004
These are not something I would order again. They are quite hard and dry.

New York City * * * *
Tuesday, March 01, 2005
They are an acquired taste, but I think they are great. They can be equated to "healthy granola bars" w/o the sugar and sweetners.
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#629794 Post Traumatic Stress Disorder And Celiac

Posted by on 06 August 2010 - 05:31 PM

Interesting, I never knew there was a name for this condition. I've had my nose cauterized with dry ice (ouch!) twice in the past with no success and just a lot of pain. But unless I keep my head up or forward, I do swallow lots of blood. I was swallowing a lot of blood in the hospital because they didn't believe me when I said that it was running down my throat and I needed to be propped up. Luckily, my parents found a way to prop me up. The worst thing you want to do is tilt your head back like a lot of people say. It will just lead to blood going into the stomach, which, like you said, can cause nausea and vomiting. In fact, when I got my wisdom teeth taken out, I had swallowed a lot of blood. On top of that I had a milkshake and had been on strong drugs and I did throw up (one of the only times in my life, like I said I'm terrified of throwing up).
Anyway, thanks for the support.
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#629777 Post Traumatic Stress Disorder And Celiac

Posted by on 06 August 2010 - 03:18 PM

I suffer from Post traumatic stress disorder (PTSD). It started 9 years ago when I was in a horrific Amtrak train accident (1 person was killed in my car and we were trapped in the bottom of the car, lying upside down in a ditch in the middle of the night for over 30 minutes). That was absolutely horrible, but fortunately I was not seriously injured. However, I had severe bruising all over my body as well as trauma to my neck and face.
Then in April, I was in my first car accident. It was my fault, as I didn't see the stop sign. I damaged the whole front bumper of the car but was not injured, nor was the other driver. I got my car fixed and had it for 2 months before it happened again on Aug 4.
This car accident was not my fault, rather the other driver failed to yield and we collided head-on. It was 97 degrees outside (115 with the heat index) in the middle of a busy intersection during rush hour. This crash was more severe and the airbags deflated. Those and the seat belt probably saved my life. My nose was bleeding and I was all shaken up. But I managed to call the police and my mom, who lived nearby. At first I was in bad shock. But then I started crying because I was upset that this keeps happening to me and I was scared. By the time I was put on a stretcher, I was hyperventilating. My head felt very heavy and I started feeling sick to my stomach. Now I suffer from a condition called emetophobia (an irrational fear of vomiting or seeing other people vomit) so that just made me panic more. Well, fortunately the nausea went away pretty soon. But I was continuing to hyperventilate. By the time I got to the hospital, my legs were nearly numb and I became extremely weak. They asked me my name over and over again and I was barely able to mutter it. I had a dull headache and stiff neck and was having a hard time stopping the nose bleed (I've suffered from bad nose bleeds ever since I was really little- another symptom of Celiac I suppose). I couldn't stop crying. Most of the people in the ER were not very sympathetic at all, some were just plain rude. Fortunately my parents were with me, except when I was Xrayed.
Well, the good news is that I wasn't severely hurt. Yesterday, my muscles ached (like the flu) and I was very tired and exhausted and upset. Today I've done much better, but still have headache, back aches and some upset feelings.
Anyway, I'm just wondering if Celiac seems to exacerbate PTSD or if I just have a normal reaction. People have told me that I'm taking this amazingly well.
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#624401 Is A Long Recovery Normal?

Posted by on 16 July 2010 - 05:37 AM

I'm in kind of a similar situation as you. I've been diagnosed with celiac 2 1/2 months ago and have been on the gluten-free diet since then. But I haven't felt much better. I heard that the people who do feel better really fast often have the stomach problems. I have acid reflux, but other than that, no stomach problems.
I, too, suffer from anxiety and some depression and ocd. But this runs in nearly everyone on my mom's side of the family.
I also feel really tired all the time, have restless leg syndrome, leg cramps, insomnia. To a lesser degree, I have back problems, acne, easy bruising, frequent nose bleeds, frequent yeast infections, sinus pain and headaches and have lost some weight.
I don't feel much better so I, too, wonder if I really have celiac disease or if it's something more. I'm beginning to think that I have lactose intolerance and that I should give up dairy for several months and see if I feel better. I just got a whole lot of tests for allergies and they all came out out negative (including wheat!). But I've been told that an allergy is a completely different thing than an intolerance. Hence, I have gluten intolerance (and celiac disease) but no gluten allergies. Weird.
Anyway, I understand what you're going through.
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#616351 Did gluten-free Diet Get Rid Of Restless Leg Syndrome For Anyone?

Posted by on 12 June 2010 - 05:32 PM

I feel like my restless legs have improved a bit, but can't figure out if it's that I'm taking sleeping pills or what. I also notice that RL is a very cyclical thing for me. The worst few nights that I have RL are right before my period.
Anyone else experience this?
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