Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:

Gutsy Girl

Member Since 22 May 2010
Offline Last Active Nov 18 2011 10:38 AM

#663995 Death By Frying Pan

Posted by on 29 December 2010 - 09:23 PM

We need a buddy group for moms with little ones. These are some great ideas! Thanks!

Ox On Roof... (why the name? you have me curious!)
Just wanted to say that reading your posts is entirely entertaining (perhaps I'm easily entertained...???? :huh: ) and I've been chuckling :D . Thanks for posting. B)
  • 1

#660901 Almost Hoping I Have It...

Posted by on 15 December 2010 - 07:56 PM

I've been gluten free for a few weeks now and feel pretty good in comparison to the usual. I've dropped to about 106lbs and am reacting to foods I've never had a problem with. (I am buying everything whole and making everything with just salt, pepper, and butter. Also revamped my personal care products).

Because of the continuing drama with my stomach and my fear of eating I've decided to do a LEAP MRT test... if for no other reason than to remove my fear. Going to work with a dietitian to come up with an elimination diet based on that. I'll know more after Christmas.

LEAP MRT has a note of controversy around here, but at this point, I figure it can't hurt anything but my wallet. If anything comes of that I'll start a new thread.

So far I am gluten, soy, and nightshade free for two weeks. I've reintroduced casein (lactose free) and feel a bit off but I don't know yet if that is because of casein or just me lapsing on my vestibular exercises. Of course I've been eating butter so I haven't been too strict on that. I figure I will give the gluten free diet around 2.5 months to show improvement. I've found a cousin of mine is gluten intolerant (she has skin problems, no GI symptoms)...

I don't have much else going on regarding everything. I just hope I can gain some weight. Overall I am doing much better... but this is how it does. I get better for a while, then eat or do something that triggers a relapse and I am back to square 1 shaving off 5 pounds each time.

We shall see!

I know next to nothing about thyroid and I've never heard of the LEAP MRT so will have to google that when I have time and am more rested and alert. :)

Glad you've gone gluten free. But so sorry you're having trouble. *Compassionate smile.* I feel for you.

So...you said you're cooking with butter and doing simple stir-fry sort of deals with fresh veggies. I do this a lot too! Oftentimes, to avoid the butter and dairy, I will use a Tablespoon of olive or canola oil. I don't know if those will agree with you, but if you think there's hope in using that in leiu of butter, that may be an option to consider.

Are you able to eat any meat of any kind? Protein seems to be quite lacking in your diet with no mention of it so far. For me, I really like red meat but I have to just about BURN it before my GI system is able to digest it. I do only a little better with chicken. I've started increasing the dose of my probiotics and digestive enzymes lately, however, and I'm seeing some improvements in how I digest meats. I also bloat a lot less with these meats than I do when I eat any carbs, fruit, etc. I hate seafood, but it doesn't seem like many people here have mentioned bad reactions to it, so that could also be a good source or omega-3's. With digestive enzymes, if you take them, don't take more than recommended because some have Hcl added to increase stomach acid to improve digestion...but too much of a good thing can go sour (pun intended).

Staying away from soy is just good nutritional advice in general. It doesn't do kind things to humans. Even moreso, it can throw hormones outa whack because it mimics estrogen. I cut it out and have been glad I did - my guts, face (acne), and joints all thank me.

Wow...hope things work out for you, dear. I know it can feel overwhelming (especially around the holidays!!). If you think I can help, give me a holla! :D

  • 1

#660898 Celiac Switching From gluten-free Back To Gluten..help!

Posted by on 15 December 2010 - 07:34 PM

Oh my! I can't imagine what I would go through if I had to eat gluten again...or then again...I can but it's a hellish nightmare.

I don't intend to speculate or judge you as to the "WHY?"s of your decision to go back to a glutened diet. I'll just tell you a little about me and my experience, as it seems that's what you're looking for.

My wheelchair is in part a direct relation to Celiac Disease being undiagnosed for my whole life up till 2009...I started a GFD then and had gluten issues diagnosed in 2010. Gluten ataxia, GI problems, and emotional/mental health problems, EXTREME and debilitating pain, malabsorption issues...have come as a result of eating gluten and not knowing it was killing me (see my signature below).

I accidentally ingested gluten a few times after I went gluten free. I was still learning for a while, and CC sometimes happens. Anyways, each time I've been exposed again to gluten it's landed me in the hospital multiple times per incident. I'm not talking about eating a piece of bread either. I mean like gluten in a piece of lunchmeat or cc because the cheese was cut with the same knife used to slice sandwich bread. Those situations WILL send me to the ER. Hallucinations, difficulty breathing, heart palpitations, rhythmic muscle contractions (myoclonic jerks), major diarrhea that leads to dehydration for which I need IV's, fever, pain that leaves me bedridden for about 2-3 weeks, followed by neurological symptoms. My vision gets so bad that I cannot read because my eyes skip and I get nystagmus, I cannot drive, I cannot sit up in bed because I will literally fall out of bed because my balance gets that bad. I lose my coordination and cannot do simple things like pick up a cup in the kitchen without knocking it over or get my key in the front door to enter my house at night.

Since you're asking for honest answers, that's the honest truth in my case. GLUTEN CAN KILL ME. And if I had not gone gluten free when I did, I believe it would have only been a few months before I died. Again, I need not exaggerate here. It is what it is.

The long-term effects never fully go away for me. Once I've been glutened (even just one little CC on one day and not again!), it takes at least 4 months for me to recover, but I never get EVERYTHING back to the place I was before glutened last. I will lose something - the ability to read small print, the ability to drive at night, the ability to walk on uneven ground without crutches/wheelchair/walker, etc. I do not anticipate getting these things back.

I now have SSI Disability, because of all of the problems Celiac Disease has caused. Actually, I just got the letter this week. I work from home because I do not have the energy or pain tolerance to work anywhere else, and I work part-time. I'm glad that I can do that, though when I was younger I used to go to the university as a full-time student AND work part-time. Can't now.


Suggestions? Well, eat as little gluten as possible.

I hope you will have much better luck that I have. I know I'm a person who has VERY SEVERE reactions and I'm super-sensitive. Some people are sick, it seems, for a few days per cc incident (assuming they don't continue to eat it repeatedly, day after day) and can get back to "normal" or near-normal within 2-3 weeks. But I assume you already knew that. So I figured you needed to hear from someone in the opposite camp who never fully recovers from any amount of gluten.

Best wishes for you and prayers going your way. Sorry for your situation and the stress that must be involved. Keep us updated and I'm sure there will be people here to help you walk through it and give suggestions when you're reacting.

Oh...by the way....PEDIALYTE is a wonderful substance! Gluten free too. Walmart brand is cheaper (cheapest to buy in the liter bottles already made...funny...you'd think the powder would be cheaper!) and also gluten-free. When I'm having a lot of D and can't eat or drink much, I have to down the Pedialyte or my electrolytes will tank and I end up in the ER again. So....drink lots. No matter how much it costs to drink Pedialyte by the liter, it costs more to say Hello to the ER doctors.
  • 4

#660641 Gluten Ataxia Neuropathy Neurological Presentation

Posted by on 14 December 2010 - 07:29 PM

Good article. I would have been diagnosed years before I was if my neurologist had not been so clueless about the UBOs. His response to them after I had a follow up spinal tap to rule out MS was 'they don't mean anything, here have a prozac'. He was convinced that I wanted to be sick even though I had lost reflexes, could barely think, could no longer read and showed a completely flat line on the electromylogram they did on my legs. I am still furious with him, he cost me many wasted years when those lesions are actually diagnostic of celiac antibodies attacking the brain. Doctors place far to much faith in the blood test and never even bothered to tell me to try the diet although I was a textbook case with symptoms that screamed celiac.

It is amazing how our stories are almost IDENTICAL - you're my twin I think. LOL. :) Although I don't look like a rooster (though I assume you don't either, but if you do we can chalk that up to celiac disease too, right?).....Just joking.

Someday, when I have the guts (pun intended), I may pay a FRIENDLY (ha!) visit to my neuro-quack and let him have a PIECE OF MY MIND (pun again intended) and hope he chokes on it (no jokes there).
  • 1

#660373 Gluten Ataxia Neuropathy Neurological Presentation

Posted by on 13 December 2010 - 09:22 PM

Your Brain on Gluten

This is interesting. ..gluten can actually cause UBO's (unidentified bright objects) on the brain that show up in MRI scans. It can also cause "pins and needles" or "crawly-like" feelings all over the body...something a lot of us struggle with. - PH

Your brain on gluten: Should you lay off the gluten before it's too late?

There is reasonable evidence of neurological problems in Celiac disease even those well treated on a gluten-free diet should undergo periodic neurological screening. Peripheral neuropathy is found in almost half of people with celiac disease. Previously, neurological complications in Celiac disease were reported to be as high as 36% or more than a third.

Some unexplained neurological problems are present but not recognized by the patient or their doctor in many patients and some have several problems. Unfortunately, since brain imaging is not routinely done or recommended in those who are newly diagnosed with Celiac disease we don't really know how high these numbers may be really be. More staggering is the fact that we are still learning about people who fail to meet diagnostic criteria for Celiac disease but are being found to have gluten related neurological problems that respond to a gluten-free diet.

The symptoms of neuropathy are paresthesia (numbness) or dysthesia (burning, tingling, heaviness, "pins and needles" sensation"). Many of my patients also describe hypersensitivity of their skin such that they do not like air blowing on them or their children or spouses against their skin. Some admit to "bug crawling" sensation on their skin, something called vermiculation in medical terms but rarely asked about or given much thought by most doctors.

Odd muscle movements under the skin that some call a "bag of worms" medically known as fasiculations are also very common but dismissed by many doctors. My wife, a physician with Celiac disease, actually had these occur while undergoing an EMG (electromyleograph, recording of muscle activity by placing needle electrode into the muscle) exam by an older neurologist. Despite observing these occurring visually and the monitor showing "static like noise" the neurologist dismissed them as "normal".

Many patients with Celiac disease also have what the radiologists and neurologists call "UBO's" on MRI exams of the brain. These unidentified bright objects (think UFO) are white spots that show up on images of the brain. When found in certain locations of the brain they are highly suggestive of multiple sclerosis (multiple scarring spots in the brain). However, though many people with Celiac disease have MS like symptoms and these symptoms often respond to a gluten free diet when started early enough, the UBO's seen on MRI of the brain are typically not in the classic areas of MS. Instead it is common to find them in areas of the brain associated with migraines or balance difficulty (ataxia).

Personally and professionally I have observed all of the neurological complications of Celiac disease and most of them I have also noted in patients in whom I have not been able to confirm Celiac disease but who have what I believe are objective signs and/or genetic risk for gluten sensitivity. I have patients with MS-like symptoms, chronic unexplained neuropathy, headaches, attention difficulties, autistic behaviors and developmental delays who have responded to gluten-free diet but if they had listened to doctors who maintained such a "restrictive, expensive, hard to follow" diet should only be "imposed" on those with a established diagnosis of Celiac disease.

If you have neurological problems get testing for Celiac disease before starting a gluten-free diet. If you test negative for Celiac disease, make sure they test you for the complete HLA DQ genetics that includes the high-risk white blood cell patterns DQ2 and DQ8 for Celiac disease AND get your Celiac disease blood tests include IgG and IgA gliadin antibodies. If your blood tests, including gliadin IgA and IgG antibodies, are negative or normal then consider stool testing for gliadin antibodies in the stool ($99, www.enterolab. com).

The evidence continues to accumulate, though often ignored or missed, that gluten is toxic to some people's brains, even if they do not have Celiac disease. If you do have Celiac disease it is likely you already have neurological problems and may be at risk despite being on a gluten-free diet.

Borrowing from the old advertisement against drug abuse "this is your brain on drugs" maybe we should be getting the word out "this is your brain on gluten". Despite your test results, consider a trial of gluten-free diet after you have your testing done if you have unexplained or unresponsive neurological problems. You owe to your brain. Like my seven-year-old son said to one of our friends, "maybe you should lay off the gluten".

Copyright 2008, The Food Doc, LLC, All Rights Reserved.
  • 2

#660368 Almost Hoping I Have It...

Posted by on 13 December 2010 - 08:52 PM

Hi, my name is Jenny and this is my first post here... and it seems as though it certainly won't be my last.

I am 26 and I have never felt "right". Ever in my life. My health problems came to a head last Christmas, from a sudden vestibular problem that I am still battling. It started to dawn on me that all of my health problems might could be rolled up into one package - Celiac disease.

Tomorrow afternoon I have an appointment with a gastro doctor and I am specifically going to ask for Celiac testing. Considering everything I have gone through over the years, and the rapid deterioration of my health during the last year, it has gotten to the point where I hope I have Celiac... *THAT* I can treat.

I want to write out a quick run down of my various problems and am hoping I am not completely insane for thinking this might be Celiac. Any input would be appreciated (as well as any alternatives I should be trying), and if I do turn up positive, I'm sure I will be on these boards much more often.

Psoriasis - Diagnosed at age 6, finally dormant at age 24
ADHD, inattentive type - Diagnosed at age 8, battling ever since
Unexplained trembling - All my life... 24/7. Worse when hungry, ill, or stressed
Low blood sugar - Age 14 the symptoms became apparent and progressively worse through the years. From age 23 to now it has become a serious problem
Prone to depression since age 14, put on anti depressants for this and ADHD at age 16
Generally sensitive stomach since 22
Lactose Intolerant (self diagnosed) shortly after turning 25 (mid last year).
Extreme blood sugar crashes, Vitamin D deficiency, hypothyroidism around Thanksgiving last year. Sensitivity to food increasing (not pain, but nausea, full to fast, slow digestion, diarrhea, constipation... etc).

Dec 18, 2009 - extreme migraine. Vestibular Neuritis. Nystagmus, Vertigo, hot flashes, fever, diarrhea, nausea, palpitations, numerous worthless ER and Doctor trips. Lose 20 lbs in two weeks flat. I am the walking dead.
January 2010 - Catscans; MRI - nothing

I have been horribly ill ever since then, always hungry, and either unable to eat, or unable to fill up. I look anorexic having lost so much weight. My breasts have shrunk to just below an AA and I can barely make it up a set of stairs without my heart rate elevating. Lately I have been re-diagnosed with Vestibulopathy after an ENG, which is an autonomic (peripheral) disorder. I have numerous other symptoms I have not listed, but everything seems to be stemming from these problems.

And another thing... Alzheimer's runs in my family on my father's side and I have read of a recent connection made between Alzheimer's and Celiac.

Let us hope I am not insane. If I don't have Celiac's I honestly don't know where to go from there. :( I'm so anxious!! I feel like I am slowly dieing. I'm sorry for such a long post. Thank you for reading and any thoughts you may have.

Hey Jenny,
I'm 26 as well. I need to go to bed soon, but here are a few thoughts for you to take with a few grains of salt and chew on before swallowing. LOL.

We share a lot of similar symptoms, but I don't have the thyroid problems that I know of. My bloodwork came back negative for celiac disease after I went gluten free for more than one year. I found out I was either Gluten Sensitive or Celiac after I was committed to a mental institution following being EXTREMELY SICK for months in 2009, not eating, not sleeping, ready to commit suicide. God had other plans for me, gratefully, and His grace has been sufficient. My GI doc (I haven't had INS and I'm poor so no docs for me until late 2010) recently said he believes I have Celiac with gluten ataxia. I kinda knew that since 2009, as the diet has confirmed that clearly for me (as well as a few CC incidents), but....

Check out gluten ataxia. I've written a fair amount about it on this forum, so I'm sure you can easily look up some of my posts and you'll find it.

Also, you said...
"I want him/her to check out vitamin deficiencies (B's, D, K, folic acid, calcium, etc) and also was going to press for them to somehow test my hormone levels."

My experience with blood tests for Vit deficiencies is that blood tests aren't very accurate. Example: I've been low in Magnesium a number of times. Only once did they give me an IV, but I've had heart, breathing, muscle spasm, and fainting issues from the deficiency. Probably also mixed with Vit B-12 deficiency. But anyways, I know when my Mag is low - it's very clear to my based on my symptoms and remembering how I've felt before. But only a small percentage (very small) of your entire body's store of Magnesium and Calcium actually resides in the bloodstream. Most is stored in bones and tissues. Therefore, it is possible with some Vit's and Minerals to be deficient but have bloodwork show that you're good. B-12 can also show false high reading because of a lack of intrinsic factor. I'm still fighting with my GI doc over that one. :P

You also said...
"Unless I feel 150% on the diet, I'll try to reintroduce gluten to see what it does and adjust (or not) accordingly."

I think we should properly warn you about GLUTEN WITHDRAWAL. It's worse for some more than others, but for me the gluten withdrawal was really intense. Like drug withdrawal - fever, migraines, you name it....it was B-A-D. Took me literally a few months before my body started to calm down after removing gluten. And that always-hungry despite just eating feeling started to subside too. That's a sign that you're not absorbing nutrition well from what you eat. But I'd say don't give up right away until you've tried it for a few months at least. Get through the withdrawal and then see how you feel.

Hope this helps a little...I don't know. Best wishes to you. Feel free to message me; I'm glad to help as much as I can.

  • 1

#615940 Hungry All The Time

Posted by on 10 June 2010 - 07:25 PM

Oh yes, I know EXACTLY what you're talking about! I had it BAD during the gluten withdrawal period when I was first starting to go gluten-free and it lasted for about 3-4 weeks I believe. Then, whenever I get glutened or contaminated, that is one of my (many) symptoms and I feel like I'm going to eat my house down and perhaps my neighbor's too!

It's weird because you eat and eat and eat but nothing seems to satisfy. For me, it's not a normal hunger at all. And what's worse sometimes is that I'm so "hungry" and yet I have no apetite. I tend to go one way or the other - either NO apetite or EATING EVERYTHING UNDER THE SUN!

I've talked to others who experience the weird hungry thing too. Some suggest that it's because our bodies are so "starved" of actual nutrition because we can't absorb nutrients, so we want to eat in that sense...our bodies are telling us to eat. But we also get sick and react to stuff, so we're almost equally averse to eating. You may want to check and see if your body is deficient in vitamins and minerals.

Cravings are another interesting thing. I find my cravings go one of two ways:
Either the thing I'm craving is something my body really needs for nutrition and I should eat it.
Or (MUCH MORE COMMON) I find that the thing I am craving is absolutely the LAST THING I should eat, such as wheat products, dairy, and now I'm finding that my really intense and constant cravings for tomatoes (no joke!...and I NEVER craved them before!) might actually be tied to another reaction I'm having with some of the nightshade foods.

So, have a "chat" with your body and see what you're craving and try to figure out if you're craving something that's good for you or bad for you given how your body reacts.

You might have to wait to have such a "chat" with your body until it settles down isn't in binge eating mode. I totally understand. Right now you just want anything that will make you feel full.

If you can do protein, that might help. I don't know your diet. I personally really like this stuff called PlantFusion because it's plant protein powder that you put into water or rice milk (whatever milk you use). It's soy, dairy, animal product, gluten, etc free. Kinda expensive. But I stretch it. And I add goat yogurt, rice milk, fruit (especially strawberries and sometimes bananas), etc. It does help fill me up and keep me more satisfied. I use vanilla bean flavor and haven't tried the others, but reviews online preferred the vanilla bean.

Anyways, hope something I said is helpful.
  • 1

#615464 Celiac Disease, Gluten Ataxia And Candidiasis / Yeast Overgrowth - A Must Rea...

Posted by on 08 June 2010 - 06:22 PM


DNC News: Celiac Disease, Gluten Ataxia and Candidiasis

Subject: Celiac disease, triggered by gluten proteins from wheat in susceptible people, can damage the central nervous system. The cell walls of Candida, the yeast responsible for oral thrush, vaginal infections and intestinal Candidiasis, contain the same protein sequence as wheat gluten and may trigger or stimulate Celiac Disease.

Our understanding of celiac disease has come a long way in the last few years. Several recent studies have linked celiac disease to central nervous system damage which may cause sporadic ataxia. Other studies have identified the particular protein sequence in gluten which causes celiac disease. Other researchers have identified a similar protein in candida yeast and suggest that it may also trigger the same disease. These studies suggest that the typical digestive symptoms we associate with celiac disease are present less than 20% of the time. Having "normal" digestion no longer rules out the disease.

This is a complicated business but I think rather than gloss over it many people deserve and need the details. So please bear with me and skip over the parts that get to thick.

First a bit of background:
Celiac disease is also called coeliac disease or celiac sprue. The Merck Manual defines it as a "chronic intestinal malabsorption disorder caused by intolerance to gluten." [1] The villi of the small intestine atrophy and nutrients are poorly absorbed resulting in steatorrhea (frequent greasy stools) and malnutrition. Sufferers usually get better when gluten containing cereal grains are removed from the diet. Although the syndrome was described earlier, [2] it wasn't until 1950 that the link between dietary cereals and the disease was figured out. [3] During the Second World War when the Germans occupied Holland , children with celiac sprue improved dramatically only to get sick again disease again at the end of the war. During the war, wheat and rye were in short supply in Holland . The researcher who noticed this was able to show that it was the gluten protein in grains which triggered the disease. [4]
Celiac is a genetic disorder and the incidence varies among different populations. Ireland and people of Irish descent have the highest incidence, about 1 person in 300. In Europe and the United States the incidence is much lower, reported at about 1 in 2,500 or less. The longer a population has eaten wheat the lower the incidence. Europeans have cultivated wheat for almost 9,000 years while the Irish have grown it for only about 3,000 years. I suppose we could rename the disease Celtic Sprue rather than celiac sprue. When tested 90% of people with celiac disease are positive for the HLA-B8 antigen in their blood.
The classic problems associated with celiac disease are those of malabsorption and nutritional deficiency. Children with the disease fail to thrive; they are deficient in all of the fat soluble vitamins (A, E, K, and D) and many of the minerals, especially calcium and magnesium. While children are prone to osteomalacia, adults usually develop osteoporosis. This has been the description of celiac disease that medical text books have talked about for decades. Now for what's new.

For the last ten years we have known that celiac disease is associated with hypothyroid disease, specifically Hashimoto's Disease. About 10- 14% of celiac patients are hypothyroid. Celiac patients are about ten times as likely to have thyroid nodules. [5,6,7] Is it the same genetic predisposition making people overly prone to develop autoimmune diseases that causes both conditions? Or is it the chronic bowel inflammation that stimulates these autoimmune reactions? At this point it isn't clear.

Celiac is clearly an autoimmune disease. The gliaden portion of the gluten protein contains a sequence of amino acids that trigger the immune reaction. When they bind on to the intestinal mucosa they act as an antigen and summon killer lymphocytes to attack. The immune system also develops an immune reaction to the muscle lining of the intestine, the endomysium and the enzyme transglutaminase. [8] People with celiac disease make antibodies which attack both the endomysium and the enzyme transglutaminase. Once this autoimmune process has been triggered, damage occurs in other parts of the body and not just the intestine.

Neurological damage occurs with celiac disease. Early on this was thought to be due to nutrient deficiencies caused by malabsorption. Current research shows that the problem is more complex. Celiac disease stimulates the production of antibodies which attack areas besides the intestine including the central nervous system. About 40% of patients who suffer from idiopathic sporadic ataxia have celiac disease which damages their central nervous systems. [9,10,11] The neurological symptoms of celiac disease mimic the symptoms of multiple sclerosis to the degree that celiac must always be ruled out when diagnosing this disease. [12] The neurological conditions caused by celiac disease are now called gluten ataxia and cause damage to the cerebellum, the posterior columns of the spinal cord, and the peripheral nerves. [13]

The studies on gluten ataxia have revealed a significant statistic. In patients who had clearly measurable antibodies that are diagnostic of celiac disease and were suffering from gluten ataxia, only 13% had any gastrointestinal complaints. In other words, the hallmark symptoms of poor digestion we associate with celiac disease and use to diagnose the condition may be absent in 87% of patients with gluten related problems! [14] This suggests that celiac may be way under diagnosed.

Now we come to what to me is the most interesting of the recent research regarding celiac. It seems fitting that the research again comes from Holland , where celiac disease was first linked to diet. Dr. Nieuwenhuizen, from the research group TNO Nutrition and Food Research, published a paper in the June, 2003, Lancet. He links celiac disease with Candida albicans. Dr. Nieuwenhuizen, knowing the actual sequence of proteins which trigger celiac disease from the published work of other scientists, had searched the databases available to him through TNO to see if the same sequence existed in other places. It turns out the identical sequence of proteins occur in the cell walls of Candida albicans. [15]

These Candida gluten-like proteins turn out to be the yeast's "hypha-specific surface protein" nicknamed Hwp1. This is the yeast's version of Velcro and allows it to attach and hang onto the endomysium in the wall of the intestine. It is also targeted by transglutaminase, the enzyme which acts on the gluten protein and serves as a target for immune antibodies. Candida species which don't have this Hwp1 protein can't attach themselves to the digestive tract. [16]

If Candida can trigger the same chemical and immunological reactions as wheat gluten do we can imagine a number of interesting implications.
First, in people with celiac disease, symptoms usually get better rapidly when they eliminate gluten from their diet. This isn't always the case. Even without gluten some people continue to have symptoms. They may have intestinal Candidiasis. The Candida in their gut may be acting like gluten and continues triggering symptoms.
Second, an acute Candida infection may trigger the onset of celiac disease. Even if the Candida is treated and eliminated, the person could be left with a permanent sensitivity to wheat gluten. Candida infections occur frequently with antibiotic usage. In people genetically susceptible to celiac, extra caution should be exercised when using antibiotics to prevent Candida overgrowth.
Third, if wheat can cause neurological damage as in gluten ataxia, it is reasonable to assume that Candida could also do so by the same process. Reports of Candida infections causing neurological symptoms are not uncommon; now we have a possible explanation.
Fourth, if only a small portion of the people with gluten ataxia have gastrointestinal symptoms despite their severe damage elsewhere in their bodies, it is reasonable to assume that Candida could stimulate significant problems while producing slight or no digestive symptoms.

So what does all this mean? Here's my bottom line:
Celiac disease may be grossly under diagnosed. It should be ruled out in any chronic digestive condition even if the symptoms don't fit the classic picture. Celiac disease should also be ruled out in osteoporosis and in neurological problems, especially MS. Celiac disease should also be ruled out in Hashimoto's Disease and other thyroid abnormalities. Whenever Celiac disease is diagnosed, Candida infections should be tested for and treated aggressively. People of Irish descent are far more likely to get celiac disease than others and should be extra cautious to avoid Candida infections and treat them aggressively if they occur.

1. Merck Manual, Seventeenth Edition
2. Thaysen T, Non-Tropical Sprue. Copenhqagen, Levin and Munsgaard. 1932.
3. Dicke, W. Coeliac Disease: Investigation of harmful effects of certain types of cereal on patients with celiac disease. Doctoral Thesis, University of Utrecht . Netherlands , 1950.
4. Van de Kramer, Weijers, Dicke. Coeliac Disease. IV. An investigation into the injurious constituents of wheat in connection with their action on pateinets with celiac disease. Acta Paediat. 42.223, 1953
5. Counsell et al. Coeliac disease and autoimmune thyroid disease. Gut 1994;35: 844-846
6. Collin et al. Autoimmune thyroid disorders and coeliac disease. European Journal of Endocrinology 1994;130:137-140
7. Freeman H. Deliac associated autoimmune thyroid disease: A study of 16 patients with overt hypothyroidism. 1995; July/Aug: 9(5): 242-246
8. Nat Med. 1997 Jul;3(7):797- Identification of tissue transglutaminase as the autoantigen of celiac disease.
Dieterich W, Ehnis T, Bauer M, Donner P, Volta U, Riecken EO, Schuppan D.
9. Brain. 2001 May;124(Pt 5):1013-9. Sporadic cerebellar ataxia associated with gluten sensitivity.
Burk K, Bosch S, Muller CA, Melms A, Zuhlke C, Stern M, Besenthal I, Skalej M, Ruck P, Ferber S, Klockgether T, Dichgans J
10. Neurology. 2002 Apr 23;58(8):1221-6The humoral response in the pathogenesis of gluten ataxia. Hadjivassiliou M, Boscolo S, Davies-Jones GA, Grunewald RA, Not T, Sanders DS, Simpson JE, Tongiorgi E, Williamson CA, Woodroofe NM.
11. J Neurol Neurosurg Psychiatry. 2003 Sep;74(9):1221-4
Dietary treatment of gluten ataxia. Hadjivassiliou M, Davies-Jones GA, Sanders DS, Grunewald RA.
12. Neurol Sci. 2001 Nov;22 Suppl 2:S117-22
Neurological manifestations of gastrointestinal disorders, with particular reference to the differential diagnosis of multiple sclerosis. Ghezzi A, Zaffaroni M.
13. Lancet. 1998 Nov 14;352(9140):1582-5 Clinical, radiological, neurophysiological, and neuropathological characteristics of gluten ataxia. Hadjivassiliou M, Grunewald RA, Chattopadhyay AK, Davies-Jones GA, Gibson A, Jarratt JA, Kandler RH, Lobo A, Powell T, Smith CM.
14. J Neurol Neurosurg Psychiatry. 2003 Sep;74(9):1221-4 Dietary treatment of gluten ataxia. Hadjivassiliou M, Davies-Jones GA, Sanders DS, Grunewald RA.
15. Lancet. 2003 Jun 21;361(9375):2152-4. Is Candida albicans a trigger in the onset of coeliac disease?
Nieuwenhuizen WF, Pieters RH, Knippels LM, Jansen MC, Koppelman SJ.
16. Science. 1999 Mar 5;283(5407):1535-8. Adhesive and mammalian transglutaminase substrate properties of Candida albicans Hwp1. Staab JF, Bradway SD, Fidel PL, Sundstrom P.

Hey! You're getting these newsletters either because you've signed up to be on the list or because we took the liberty of putting you on. If you want your name removed simply leave a message at the office (303-337-4884) or go to the website: denvernaturopathic.com and unsubscribe, or reply with the message "REMOVE" in the subject line. If on the other hand you want to be added to the mailing list follow the prior instructions but subscribe. We are finally trying to keep up with our website and are posting most of these newsletters in our 'archive' section. Frequently we also post abstracts of references quoted for the intellectually curious.
  • 1

Celiac.com Sponsors: