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curiousgirl

Member Since 26 May 2010
Offline Last Active Apr 20 2014 08:06 PM
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Topics I've Started

Ataxia Or Als?

20 April 2014 - 03:34 PM

my neurological symptoms are now so severe, after many doctors and many tests, i was finally diagnosed with ALS.

 

but, the diagnosis was rescinded for several reasons…my tongue muscle is good; my breathing is good; and, after 6 years, i'm still here...

 

so, i'm back to being undiagnosed.

 

someone mentioned ataxia to me; if it is gluten ataxia, have i not been strict enough??

 

i'm afraid to get my hopes up again...


Prescription Drugs

30 March 2014 - 09:44 PM

i was officially diagnosed with celiac disease about 3 years ago.

 

6-7 years ago, i began taking a medication for ADD/ADHD. it's called amphetamine salts and the manufacturer is TEVA.

 

6 years ago, i began having muscle atrophy in my left hand. and, over the last 6 years, the muscle atrophy and fasiculations(sp) have progressed to the point of a diagnosis of ALS (lou gehrig's disease).

 

i looked up this ADD/ADHD medication's ingredients and one of them is cornstarch. i've heard cornstarch can have gluten in it.

 

could this really be ALS? or have i been unknowingly glutening myself over the last 6 years to cause these severe neurological problems??

 

i didn't take the medication today…and won't until i know for sure. this is my last ditch effort to prove it's not ALS.

 

i hope i can get some replies soon.