I am a mom of 5. My 10 yr old daughter and 6 yr old son most certainly have gluten issues. My daughter had horrible headaches, hallucinations, and altered neruological functioning almost once a day for several months (maybe almost a year) before we stumbled upon the cause. I assumed her headaches were migraines. Doctors were no help. Her "episodes" usually lasted 2-8 hours. After one episode lasted 24 hours, we took her to a children's hospital er. They weren't much help, either. They did, however, do CT and MRI scans to rule out tumors or bleeding on her brain. One dr. did suggest a psychiatric issue. They did a referral to a pediatric neurologist in another city. We went to that appt with me believing he would tell me it was migraine-related and give her medicine to stop it.
When the neuro said it was definitely not migraines, I was floored. He made an appt for a 24 hour EEG since she was having the rections every day at that point. That afternoon, an aunt told me food could cause wierd stuff like that. Since I was at the end of my rope, we decided that over the weekend, we would restrict her diet. That night I did some internet research and decided that it could be gluten, so Friday night was her last gluten meal. That Saturday she had a mild, about an hour long episode, and that was the end of her symptoms. Well, almost the end. We had a few cross contamination episodes, and she couldn't tolerate anything gluten free that had been "processed in a facility with gluten". We ended up not doing the 24 hour eeg since her symptoms were gone! She's been gluten-free for about a year.
My 6 yr old son had a seizure disorder for which doctors had no explanation for. I read that some seizures were caused by gluten, so we put him on a gluten-free diet. No more seizures. Except for the one time I doubted my diagnosis and let him eat pizza. The next morning he had a seizure. He's been gluten free for a couple of months less than my daughter.
Thanks for letting me drop in!
Welcome, Becky...you'll find a lot of support and good info. here. Hope the kids stay well. Emily