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Grace'smom

Member Since 02 Jun 2010
Offline Last Active Apr 23 2011 08:56 AM
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#636841 Introducing Myself!

Posted by Grace'smom on 03 September 2010 - 04:55 PM

I am a mom of 5. My 10 yr old daughter and 6 yr old son most certainly have gluten issues. My daughter had horrible headaches, hallucinations, and altered neruological functioning almost once a day for several months (maybe almost a year) before we stumbled upon the cause. I assumed her headaches were migraines. Doctors were no help. Her "episodes" usually lasted 2-8 hours. After one episode lasted 24 hours, we took her to a children's hospital er. They weren't much help, either. They did, however, do CT and MRI scans to rule out tumors or bleeding on her brain. One dr. did suggest a psychiatric issue. They did a referral to a pediatric neurologist in another city. We went to that appt with me believing he would tell me it was migraine-related and give her medicine to stop it.

When the neuro said it was definitely not migraines, I was floored. He made an appt for a 24 hour EEG since she was having the rections every day at that point. That afternoon, an aunt told me food could cause wierd stuff like that. Since I was at the end of my rope, we decided that over the weekend, we would restrict her diet. That night I did some internet research and decided that it could be gluten, so Friday night was her last gluten meal. That Saturday she had a mild, about an hour long episode, and that was the end of her symptoms. Well, almost the end. We had a few cross contamination episodes, and she couldn't tolerate anything gluten free that had been "processed in a facility with gluten". We ended up not doing the 24 hour eeg since her symptoms were gone! She's been gluten-free for about a year.

My 6 yr old son had a seizure disorder for which doctors had no explanation for. I read that some seizures were caused by gluten, so we put him on a gluten-free diet. No more seizures. Except for the one time I doubted my diagnosis and let him eat pizza. The next morning he had a seizure. He's been gluten free for a couple of months less than my daughter.

Thanks for letting me drop in!


Welcome, Becky...you'll find a lot of support and good info. here. Hope the kids stay well. Emily
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#635389 Red Blood This Morning, Went To The Ped.

Posted by Grace'smom on 28 August 2010 - 04:06 PM

I'm not waiting to "see what happens next", I just contacted Children's Hospital in DC and am making an appt. with the Ped. GI doc there, I am hoping they will see him soon as this bleeding worries me sick!



Good for you...trust your mom instincts. We really have to be our own medical advocates these days, esp for our little ones...will say a prayer for you that you find the right dr and get the answers you need. Keep us posted. Emily
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#632242 Having Surgery, Need List Of Safe Popsicles, Puddings, Ice Creams, Etc For My...

Posted by Grace'smom on 16 August 2010 - 05:39 PM

Hi there,

Jello pudding is gluten free, I believe the Kraft is also; when I was looking at pudding cups for my daughter whose camp was serving it as a snack, I was surprised that most all of them, even the store's generic brand, did not have any gluten in them.

I've also yet to find a popsicle with any wheat flour or malt or any other gluten containing additive, so you should be ok there. I believe we usually buy the Popsicle brand. Those freeze pops that come as liquid in the store and then you freeze them at home are usually ok too. I think you'll find at the stores that in the pudding and popsicle dept, you'll have a lot of options. Good luck with her surgery!!
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#615047 How To Handle Playdough In The Classroom?

Posted by Grace'smom on 06 June 2010 - 04:33 PM

Ok...this is surely a dumb question, but why the major concern over playdough if its not ingested? My daughter was recently diagnosed with celiac, but I've allowed her to use playdough, so long as she washes her hands well afterwards, and certainly before eating. Can anyone answer this for me? Thank you, Emily
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