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Member Since 16 Jun 2010
Offline Last Active Feb 02 2013 11:20 AM

#667727 Concern From A Call From The Doctor

Posted by on 13 January 2011 - 06:03 PM

Hi Bonnie Blue,

You poor thing - it's so difficult not to know what's wrong with you, especially after going through it all once already with coeliac.

Right now, I'm going through something pretty similar with my husband. He has various health problems but the diagnoses and treatments haven't been enough to make him better. We have an appointment with an endocrinologist in March and I'm almost hoping for a diagnosis of Addison's just to know what's wrong. The point I want to make is that, from my reading, Addison's seems to be a little like coeliac in that it can do terrible things if left untreated BUT can be managed pretty well if it's diagnosed. JFK had it, in fact, and he coped pretty well. So - please try not to worry.

Hoping for the best for you. Keep on at those doctors until they figure things out!

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#648477 I Have Celiac, But No Sickness When I Cheat... Help!

Posted by on 23 October 2010 - 03:36 AM

I have a postcard with the following quote, which I remind myself of every so often: 'Look after your body... if you don't, where will you live'?

Keep well x
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#644291 I Did It...we Are Now A Gluten Free House!

Posted by on 06 October 2010 - 03:09 AM

I absolutely agree that life is easier and healthier if your home is gluten-free. It helps so much to know there's one place to relax and not worry about everything you touch and eat :)
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#634785 Is Cancer Inevitable For Me?

Posted by on 26 August 2010 - 04:03 AM

I'm no expert but I think I read that the risk returns to normal after five years gluten free - that is, it is untreated coeliac disease/eating gluten which carries the slightly higher risk.

That said, I would expect someone with coeliac disease who knowingly continues to eat gluten to also be neglecting their health and lifestyle in other ways which might also affect well-being.
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#634610 Is Cancer Inevitable For Me?

Posted by on 25 August 2010 - 12:09 PM

Nothing is inevitable - it's amazing what the human body can endure and survive and there are many people on this board who are a testament to that. From what I understand, there is a slightly elevated risk of cancer for celiacs but that's all. If you believe the worst will happen, you may miss out on the chance to make the most of all the time you have left, whether that's 15 years or 50. All you can do is take the best care of yourself that you can - and the rest is left to chance.

Sorry - this is a string of cliches! - but I'm sure other people will reassure you too.
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#631614 I Think This Is Bigger Than Me Right Now.

Posted by on 13 August 2010 - 11:46 PM

Don't get down on yourself. There is nothing to apologize for. There is a greiving process that many of us go through when we are struggling with this diet in the beginning. You have a right to be angry and to be sad also. You'll get through it in time and you are in a great place to vent those feelings.

Thanks for this. You know, I didn't mind going gluten free because I thought it would make me better. I love food and I've made some pretty good food so far this year and hardly miss gluten at all. But now I feel like there's nothing that's good for me and just don't know what to eat, I'm really starting to feel it.
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#622204 Post Diagnosis

Posted by on 07 July 2010 - 05:18 AM

Hello there... I love your name :)

I've only recently started posting on here but I've been lurking for a while. I've had mild problems with hypermobile joints since I was a teenager but four years ago, I developed repetitive strain injury (a risk for hypermobile people) in my arms - this quickly progressed to being muscle tension/pain, muscle weakness and joint pain across my body. On bad days, I can't hold my arms up either. I manage it with physio, exercise and using voice recognition software at work.

I realised last summer that I have coeliac disease and finally had a medical diagnosis in January. I'm not sure if my pain is coeliac-related - I've been gluten-free for six months and so far, I've not seen an improvement in this area (or in most of my coeliac symptoms). However, I have read posts by other people with muscle and joint problems who have seen improvements, so hopefully I - and you - will feel better eventually.

Best wishes,

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