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Member Since 18 Jun 2010
Offline Last Active Oct 01 2010 09:43 AM

Topics I've Started

Did Any Of Your Kids Have Negative Bloodwork But Positive Biopsy?

15 September 2010 - 12:47 PM

I am concerned about possible celiac disease in my 2 year old. I went gluten free with myself and my son in January looking for food allergies (not knowing about celiac disease) and later learned that I have had symptoms of celiac disease or gluten intolerance since infancy. My genetic test was positive for DQ2. After 7 months gluten free (with great results for kiddo and me) we did a 4-week gluten challenge with my son. His bloodwork done through LabCorp by our pediatrician was negative. We're waiting on the genetic test results, although I'm homozygous for DQ2.2 so I know my son has at least one DQ2.2. Our GI appointment is on Tuesday.

All of that is the background context of my question -- did any of you here have kids whose bloodwork was negative but whose biopsy was positive? I've read that in theory that can happen but just was curious if that actually happens in real life. I don't want to subject my precious 2 year old to a biopsy if it's not very likely that he has celiac. I am worried about his symptoms (mostly diarrhea and face rash but a few other things too). But I don't want to confuse his situation with mine -- I'm still kind of wrapped up emotionally with the discovery of this ongoing issue for me.

2 other context points -- my toddler is still breastfeeding and during the gluten-free time we did a lot of thongs to try to heal our intestines (which I still thought were just struggling from allergies). Probiotics, fish oil, etc. So now I have this concern that I got him too healed and it might skew the results. Could that really happen?

Any advice or thoughts would be appreciated!


Colic And Projectile Vomiting

19 August 2010 - 06:58 PM

Discovering that I have some kind of gluten sensitivity has caused me to look back over my entire health history and say, "Ohhhhhh, that's what that was!" My mom tells me that I had colic and daily projectile vomiting for months as an infant. Is that a symptom for any of your kids? Did your doctors pick up on it? I was born in 1976 so it seems like my pediatrician would have known to look into celiac disease back then if the colic/vomiting really is a symptom, right?

Diagnosis After Age 60

19 August 2010 - 06:49 PM

I read on an NIH webpage that GI symptoms are more common in childhood celiacs, while non-GI symptoms are more common in adult celiacs. I have a parent investigating celiac disease and that trend would fit. Would anyone diagnosed after age 60 be willing to share what your symptoms were? Since my parent doesn't have noticeable GI symptoms he or she (who doesn't trust Internet annonymity!) is wondering about whether or not celiac disease could really be an issue.

Sleep, Kids, And Gluten

19 August 2010 - 06:40 PM

My 2 yr old is in the process of trying to figure out a diagnosis (gluten sensitivity vs celiac). He has GI symptoms but the issue that really got me started looking into all this was sleep. He was still waking 4-5 times a night at 18 months. I asked my pediatrician if it could be food-related and he said no, but I felt like I was seeing a connection and started googling. Anyway, as soon as I took him gluten (and dairy) free, he slept through the night. Instantly. But my pedi still says (as recently as 2 weeks ago) that he doesn't think sleep problems are a celiac/gluten-sensitivity symptom. He's more focused on the GI stuff. So I wanted to ask -- did any of your kids have sleep troubles before they were diagnosed?


A Public Apology To Coffee

17 August 2010 - 10:23 PM

Dear Coffee,

As you know I never drank much of you during the week. But on the weekend at brunch I would have a couple of cups right alongside my pancakes, French toast, or breakfast tacos. Who did I blame for all the symptoms that inevitably followed such a feast? You! For years I thought you were the problem and I wasn't afraid to say it to your face. Coffee, thank you for your patience and your forgiveness. Let's get to know each other again. Yes, I WOULD like another cup.


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