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Neali

Member Since 20 Jun 2010
Offline Last Active Feb 13 2012 05:30 PM
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Posts I've Made

In Topic: Igg Results High To Gluten, Gliadin, Wheat But Not To Corn?

18 April 2011 - 04:53 PM

this is very interesting, thank you both.

I guess I am happy, she can go on having corn, as her results shown no reaction to corn... ?

In another hand, it shows high for gluten/gliadin, so it is just a step closer towards coeliac.

Although I understand that the only way to know if she is coeliac is a biopsy to check the state of the villi, and right now I didn't want to take her down that road (I wasn't suspecting/thinking of coeliac then), because I wanted to try the gluten-free diet and when I saw the results (magical) after 4 1/2 of struggling for an answer to all her ailments...

And it seems -anyway- that either allergies to gluten or coeliac the symptoms are the same...

So much to learn and understand!

In Topic: Can't Believe I Glutened My Son :(

18 April 2011 - 04:40 PM

yes happened to us too... (and surely risks to happen again) Even though we are careful and constantly worrying :-(

We been following diet free from last spring, since it has been really confusing because of knowing what to identify as containing gluten, and also because of doing blood test we had to re-include gluten products in,so at the end she didn't know if it was ok or not, when and what.

she is 5 1/2 and turns out that she also reacts strongly to soya - lecithin of soya almost in every candies too, and chocolate too... Friends, maybe do not understand and try to tempt her, sometimes she tells me they force candies in her mouth as a game when she refuses.

She usually get upset stomach and diarrhoea, and eczema looking like burns on the inside of arms, behind legs (used to be so bad and painful, all around her face, bleeding behind ears... etc)

We do not know for sure she has coeliac, we did IGG tests and it came back same results as coeliac with other stuff like soya, garlic, eggs whites and yeast as big offenders.

It makes it awkward to say the least to avoid everything and try to live and eat normally LOL, but we are coping :-)

Doing mistakes, trying again, learning all the time and spending 3x more time shopping as we read and double read all ingredients :-D out loud to her, to get her to understand what she can have and what she can't.

We also follow the same diet as her, as support and respect.
Her little sister is being tested for the same, and I won't be surprised the results will turn out to be similar, so good she is already going lots of stuff free.

In Topic: Confused About An Almost-Diagnosis

17 April 2011 - 12:21 PM

You really have my sympathy! I go through the same with my 5 years old daughter.

I think the right answer is just a little will hurt a little more yes. Do you really want me/her to hurt?
I find people unsitive personnally, so fair enough if they want to label us as "that much sensitive" ;-)

The situation is not that funny though.

I think it is important enough to find out that you got inflammation from having gluten in your diet and this should be taken seriously into account.

I totally appreciate the personal need to really find out what it is, either sensitivity or celiac or intolerance because there might be other issues linked.

In the immediate though, it is important to remind ourselves that it is not always easy to know for sure, that the symptoms and damages can be the same.

Courage and perseverance.

In Topic: Igg Results And Future Expectations?

15 April 2011 - 06:43 AM

Hello Charliesmom,

No she hasn't.
In England the family doctors we had couldn't be concerned less (almost had me fully convinced that I was the problem and the one to be treated with prozac or else) :-(

And since we arrived here we haven't found a family doctor yet, we went for a naturopath, but she works with limitations, and she also said that the only way to check for celiac was with the endoscopy procedure - which, because of our past experience with medical services we were terrorised of putting her through, but since reading a few positive stories here, I start to re-think.

Aline

In Topic: Pizza Delight (Canada) Now Offers gluten-free Crust

14 April 2011 - 10:57 AM

Great news!

Anyone tried this yet then?

As soon as I can I am going to find out where is our nearest and check it out, so I can come back and let you know :-)