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Member Since 22 Jun 2010
Offline Last Active Dec 20 2010 01:46 PM

#653653 Does It Have To Be Completely Gluten Free

Posted by on 15 November 2010 - 03:57 PM

I am wondering if you have to be completely gluten free as a Celiac? My 20 month old daughter has the celiac gene. I have a GI condition that I have managed with an "almost gluten free" and casein free diet. My daughter has had recurrent c.diff infections for over 8 months and the celiac gene was discovered as part of investigating underlying conditions. It is likely that we are both celiac. I find it so hard to go completely gluten free. I have been fine with the occasional gluten. I am wondering if other people have experienced that? I am wondering if I need to put my daughter on a strict gluten free diet or if I can relax it a bit. I have been eating spelt bread, which is significantly reduced in gluten. I tried gluten free bread with my daughter, but she spit it out and got mad at me. If I could just do the spelt bread and crackers with her, that would make things so much easier.

Try Rudi's or Udi's. Even a little gluten will cause damage. You may not have a big reaction now, but it may cause issues later on. I'm not going to lie and say that gluten free is easy, but IMHO it is necessary.
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#648101 Sending A Sick Child To School.

Posted by on 21 October 2010 - 12:08 PM

To add to my last post the 504 plan is actually part of the Rehabilitation Act of 1973 and the below fact sheet is really what you need. The ADA helps to define what is a "major life activity" is so it really doesn't do much to help you. As PP's said creating a 504 plan in relation to the RA is really what you need to focus on.


Does that make sense?
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#648099 Sending A Sick Child To School.

Posted by on 21 October 2010 - 11:46 AM

The ADA doesn't have the exact words "Celiac Disease" nor does it list out ANY specific debilitating diseases, disorders, etc that qualify as disabilities. HOWEVER the following is a link directly to the ADA and I interpret it to include Celiac because of this statement:

" (B) Major bodily functions

For purposes of paragraph (1), a major life activity also includes the operation of a major bodily function, including but not limited to, functions of the immune system, normal cell growth, digestive, bowel, bladder, neurological, brain, respiratory, circulatory, endocrine, and reproductive functions. "

As well as this statement:

"(D) An impairment that is episodic or in remission is a disability if it would substantially limit a major life activity when active."


Does that help?
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#645674 1St Gluten Free Holiday Coming Up - Need Pep Rally!

Posted by on 12 October 2010 - 08:33 AM

I'm wondering... how does your cousin make his turkey? Do you know for sure it isn't gluten-free? Other than that I like the idea of bringing yourself and DD a plate of food so you can eat with the family. I would also suggest that you bring a gluten-free dish to share as well.

I'm trying to keep Thanksgiving simple and just stay home with hubby and the kids. We did that last year too and it was so nice to not have to go anywhere. My family is up in arms over this of course, but I'm not really on great terms with them right now anyway. Christmas we traditionally go out to breakfast and then to my aunt's for dinner. I order fruit for my son and bring in his own pancakes (I've talked to the restaurant about it). For my aunt's house I know the turkey, mashed potatoes, and veggies are gluten-free so I don't have to worry about that. But I will bring gluten-free dinner rolls for my boys and gluten-free cookies or pie to share with everyone.
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#645423 Doughnuts

Posted by on 11 October 2010 - 09:21 AM

Oh great now I have to add a doughnut pan to my never-ending list of wanted cookware and bakeware. Sounds delicious!

For those who don't have a pan in the meantime try the Pamnela's recipe for quick doughnut holes. It is a quick and easy cheat if you have a huge craving for doughnuts.
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#644167 Caramel Apples

Posted by on 05 October 2010 - 11:24 AM

Quite honestly I wouldn't trust any caramel apple company to not CC their products. I recently ran across a recipe for "apple nachos" (I believe it was either in Better Homes & Gardens or Taste of Home) and it was just taking apple slices and drizzling melted caramel on them and top with marshmallows, mini chocolate chips, nuts, and sprinkles. My boys are too young for caramel apples on a stick so this is the perfect resolution for us.

Oh and to the other poster...GENIUS about using a caramel dip or sauce instead of melting the caramel candies! Thanks for the tip!
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#643039 Made In A Facility That Also Processes Wheat

Posted by on 29 September 2010 - 03:17 PM

Depends on what it is I suppose. I might buy something I REALLY want if it says processed in a facility that process wheat. That could mean in a completely different building. I do not buy it if it says processed on equipment that processes wheat.

This is what I go by...I will buy stuff made in the same facility, but not on the same lines.
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#641830 All 3 Kids Diagnosed

Posted by on 24 September 2010 - 11:48 AM

Thank-you for you reply and help!

My husband was born with spina bifida and hydrocephalus and had no major problems growing up, but in 2005 became very ill and had to have brain surgery to fix his shunt that had broken, which meant the fluid building up around his brain (hydrocephalus)was not being drained down from his head into his abdomen because the shunt had malfunctioned, and was causing major issues.
After the shunt revision and abdominal surgery he came home to recover Hurricane Ike hit Texas, and we had to evacuate due to his condition.
We came home three weeks later and our rental home had flooded, so we lost our home and only vehicle.
Moved into another rental home and took on a car note.
My husband broke out with severe psoriasis from the stress and recovery.
He later was diagnosed with Rheumatoid Arthritis and Lupus.

He's been unable to work since 2005, so I am a Spousal Caregiver, and mother to three kids.
The sole provider of income in our household and there is never enough money, this gluten free is going to be hard when the wholefood stores are so very high priced in Houston.

My husband is believed to have Celiac, but waiting confirmation, and we were told to have our kids tested.
They were tested the end of July and we received the results yesterday which confirmed they do have it.

My son is 8, and I have two daughters: ages 6 and almost 4.
I don't know how i will make this change, but it has to be done, and quickly.
My son has allergies, so takes Allegra, he has chronic bronchitis or lunch infections when the weather changes every year between Jan-April, and all this bring on allergy induced asthma.
He has an inhaler at home and at school, and he has a breathing machine at home along with the mouth piece and medicine at the school for the schools breathing machine.

His school is trying to label him with having Attention Deficit Disorder, after testing his IQ, Academic Achievement, and also re evaluating his speech.
HE tested in normal range for IQ and no learning disabilities on the academic testing, and he now tests too high for an IEP in speech.
Due to the below grade level test scores at the end of 2nd grade, where they said he was below in reading and writing, and the history of the teachers having to redirect him to pay attention and do his work, they now want to not look into any other avenues and just say it's ADD.
I know celiac can cause these issues, so I hope this will help my son succeed in school.
He is smart and loves to read, loves math and science, he just gets easily frustrated and thinks he can't do things that are hard.

My 6 yr old daughter has eczema that breaks out on the crease of her arms where you bend at the elbow, then it breaks out at the back of her knees, she has premature acne breakouts on her chin, but it's not noticeable unless you are really close to her.
My youngest daughter, as the other two are lactose intolerant, but not yet shown signs of auto immune problems or other health issues.

I contacted my children's school nurse, and she is contacting the districts dietitian.
The menu in public schools is very limited, so I will have to figure out what i can do to pack their lunch (they receive free breakfast and lunch at school because of our finances going to medical expenses and bills to not be homeless, so i barely make by with having extra for gas in the car for work commute and making sure there is enough food).

I have to stay strong for the kids and my family, but I am so tired of being stressed, and tired of being exhausted.

Wow, you are such a great, strong, loving mama/wife! Give yourself a pat on the back. Missymom gave some great ideas. I would also advise to stick with naturally gluten-free foods instead of specialty ones if you can help it. Nachos is cheap and easy. Use Mission corn tortillas to make your own chips and ground beef, black or pinto beans, tomatoes or salsa, and some monterey jack. You can even do mexican rice too. Do pizza potatoes by taking bakes potatoes and cut them in half top with sauce, cheese, and pepperoni pair with salad or carrot sticks. Get some gluten-free soy sauce (try San-J Tamari) and stir fry some frozen veggies and beef or chicken or make some chicken or pork fried rice. Meat and veggie stews are usually filling and economical. I have also found that Chebe makes a mix that you can use to make things like "bagel" dogs, pizza, bread sticks, "flour" tortillas, and empanadas. I buy it online 8pkgs for $18.xx. The packages are kind of small so 2 packages will only make 4- 8" pizzas. It's not a $5 dinner, but it will feel a family of 5 for roughly $10-12...which is still cheaper than ordering Pizzahut. You can also buy pasta online in bulk...but even at bulk prices expect to pay $3-$4 per a bag. Also talk to your local whole foods store. They usually will offer you a discount if you buy in bulk or you can negotiate with them to bring something in for you. I know that Whole Foods will give you a 10% discount if you buy by the box rather than per item.
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#641236 Am I The Only Gluten Girl?

Posted by on 22 September 2010 - 10:32 AM

You are likely not the only one in your family. Yes, everyone should get tested but that doesn't mean they will. This is one of those autoimmune diseases that if people aren't feeling sick they just don't want to know about it.

My nephew has had some extreme issues with bowels ever since I can remember. My SIL (his mom) and 2 more of her children also have some bathroom issues as well although much milder than the one son. When my son was diagnosed I thought that it would be a good idea for her and the kids to be tested. To this day she has not and it saddens me greatly. I am 99% convinced at least my nephew is Celiac too.
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#637980 What's Your Favorite gluten-free "mainstream" Meal?

Posted by on 08 September 2010 - 12:29 PM

i MISS casseroles.... has anyone seen a gluten free cream of mushroom soup ??? i havent been able to find one yet ??

I've heard Progresso has an condensed cream of mushroom but I've never used it. The one recipe that I have that originally called for cream of chicken soup I've found this way to get around it:

1 tbsp of butter
1 tbsp of flour mix of choice
3/4c-1c of chicken stock or broth

If you want it to be actually creamy, I would try using 1/2c-3/4c of chicken stock and 1/4c-1/2c of cream or milk.
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#637926 What's Your Favorite gluten-free "mainstream" Meal?

Posted by on 08 September 2010 - 09:40 AM

Our faves:

Fried chicken w/mashed potatoes & gravy (and sometimes biscuits)- use Pamela's baking mix, salt, garlic powder, and parmasean for breading

Chicken pot pie empanadas - use chebe mix to make the empanadas and pamela's mix, butter, & chicken stock for the filling along with leftover chicken, potatoes and frozen mixed veggies

"bagel" dogs - skewer hot dogs (like corndogs) and wrap in chebe dough and bake

pasta (with meat sauce or cream sauce)- using gluten-free pasta. For cream sauce I start with a roux (SP??) of butter and pamela's mix.

mac& cheese (homemade) I usually like to top this with bacon and parmasean cheese- same as pasta and cream sauce.

grilled cheese sandwiches - thanks to Udi's

meatball subs- minus bread crumbs (or you can roll in gluten-free breadcrumbs after forming the meatballs) I use Rachel Ray's recipe for baked meatballs. Use Chebe for the rolls or in a pinch you can toast up some Udi's bread and brush with garlic oil and melt a 1/2 slice of provolone over each slice of bread (keeps sauce from make the bread too soggy).

pizza- made from either Pamela's bread mix or chebe mix. I particularly like using the chebe mix and grilling it.

Mongolian Beef- easy but time consuming and only substitutions is use gluten-free soy sauce and coat meat using cornstarch

Asian stir fry (either rice or noodle)- again gluten-free soy sauce (& sometimes fish sauce) make this dish possible

Baked/fried spring rolls- still trying to get the hang of using rice paper wrappers, but once you have some practice with them the possibilities are endless.
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#636016 When My Child First Went Gluten-Free, I Noticed _______

Posted by on 31 August 2010 - 11:51 AM

The first thing we noticed was his energy level increased and his naps got shorter. It was a couple of weeks when he started looking healthier (skin complexion, darkness under eyes lessened). It was about a month to see real weight gain and growth and ...chubbier cheeks! Be patient, it can take a long while to heal and recover.
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#633096 Do Any Of You Wear A Med Bracelet?

Posted by on 19 August 2010 - 12:13 PM

As an adult, I probably would not get one for myself unless I had actual severe allergies. But I do plan on getting one for my son in the near future so that it can alert adults that he comes into contact with... whether at school or at a friend's house. I'm hoping that having the medical bracelet or necklace may give him more credibility with adults when he says that he can't eat certain things.
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#632701 Poop Question/distended Belly

Posted by on 18 August 2010 - 08:45 AM

I can't answer the question about the belly distention but I can tell you my experiences with my son's poo. His could not be deemed as "typical" since it varied so much. He's had all colors: white, tan, green, bright grassy green, dark brown, and black. The consistency has also varied: mucousy, soft and grainy, formed, and small pellets. One thing that was constant was that is smelled really bad and it was usually several times daily. I believe the "typical" is the light/tan soft and grainy. His variation was also caused by his low thyroid and iron deficiency...both of which are likely to have been caused by the celiac. Low thyroid has a tendency to constipate (thus the hard pellets). The bright green is likely from iron deficiency.

To sum everything up...you can't look at the poo alone because there could be secondary factors (such as allergies, deficiencies, and thyroid issues) that can effect it.
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#631538 Symptoms, Celiac Testing, And What To Do If The Tests Come Back Negative Advi...

Posted by on 13 August 2010 - 03:05 PM

My daughter is just over 3 years old, and is having the following symptoms:

Mushy poop like Weetabix soaked in milk. Often leak out of nappies, frequently to the extent have to shower her off & change all her bedding.
Very smelly poop
Wee potty trained easily. Not poop potty trained at all, and is very anxious about it because of the tummy pain.
Constipation at least once a month
Thin hair thickening now, but bald until about 2
Extremely smelly flatulance in really excessive amounts
Belly flattish at start of day before eating, and often noticeably much larger by the evening
Very poor appetite has to be coaxed/reminded to eat food
Pale complexion with dark shadows under eyes
Very prone to being tearful/having dramas about things (but she is 3!)
Petite child 25th centile
Light/restless sleeper
Itchy bottom & complains of pain inside at times
Dry skin, and is always absent mindedly scratching

She also had bad silent reflux as a baby, and refused to eat any solid foods until 13 months old (saw a Ped, he wasnt concerned as long as she ate before 18 months). When she actually started eating solids, her weight gain then remained pretty static for about 6 months before she picked up and started gaining weight well again.

Weve got an appointment for blood tests for celiac, anaemia and general infections next week. My mother and aunt both have diagnosed celiac (diagnosed as adults), and theres a ton of milk intolerances/allergies across my side of the family. I have IBS and am prone to mouth ulcers and cracked corners of the mouth, which Ive read can be celiac symptoms, but I had a blood test about 12 years ago when my mom was diagnosed and tested negative for celiac back then.

My worry is: what happens if the blood tests come back negative? Where should I go from there? I dont think my daughter is desperately ill, but I do think that theres something going on with her, you know? The locum GP I saw said that, if the tests came back negative, then perhaps my daughter just needs more vegetables and more sleep! I know thats not going to be the answer, as she sleeps a long time and eats loads of fruit and veg, but I dont know where I should go next?

I'm just concerned - does this sound like celiac in a young child, and if it turns out not to be celiac, then what is it??? Do her symptoms ring any bells with anyone here as to what might be going on with her? Who should we see and what should we do, if we do get a negative test result?

Thank you very much! Any and all help is gratefully received! :)

My confirmed Celiac son (who is 3 years old) had the following same symptoms as your daughter:

Very smelly poop
Extremely smelly gas (flatulence)
Poor appetite
Pale complexion with dark shadows under eyes
Petite child (went from 95% down to under 10%)
Itchy bottom
Extremely dry itchy skin that he is ALWAYS scratching
The inflated belly

The poo for us was all over the place. Sometimes it was extremely mushy, sometimes it was hard like pellets. We always got a rainbow of colors too from white all the way to black. He also has low thyroid and he gets iron deficient when glutened. So yes her symptoms do ring bells for me and I think that IF you do get a negative blood test you may want to think about trying the diet on her and see if she improves.
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