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Member Since 22 Jun 2010
Offline Last Active Dec 20 2010 01:46 PM

Topics I've Started

Both Kids Went To The Gi...

01 November 2010 - 01:23 PM

Well both kids saw the GI on Friday. She says that Ryan's height is fine, but his weight is a little low (still on the charts though). We are going to check his thyroid and iron, but she doesn't think that anything is wrong with either of these. She wants us to work with a dietician and it sounds like she want me to put him on gluten eventually and test him for Celiac (our household is 100% gluten-free). I think the reason his weight is low has more to do with his low food intake. He still breastfeeds and it is his comfort thing. He has huge separation anxiety so I think he makes up his time by trying to breastfeed as often as he can while I'm home (I work full time). I'm not sure the dietician is really going to tell me something I don't know. Not to mention it is another $30 or so dollars to go. I'm debating canceling the appointment.

James' weight was ok, but his height was not. He hasn't grown in height in almost a year. She told us that his levels back in May were still high. We have to take him in to get his levels checked again so I am hoping that this time they will be down. She wants to do another endoscopy to check healing/damage. She also wants us to go back to the endocrinologist because of the height issue. She thinks that they need to see him again and possible talk about growth hormone therapy. The last time we went to the endocrinologist all he did was say that he trusts our GI to monitor his thyroid levels and that we don't need to come back. Grrr.

I don't want to put him through another endoscopy. I don't understand why I would need to do that. I mean if his test comes back with his antibody levels down then that obviously means the immunoresponse isn't going on. If the levels are still high, then I guess I need to re-think and triple check everything and see where I might be going wrong. I have mixed feelings about growth hormone as well. Anyone know anything about it? I'm still upset. I totally cried when we left.

Need Cake Recipe!

13 October 2010 - 02:19 PM

A friend of mine was hired to make a cake for my nephew's birthday. My sons are gluten free and my nephew has milk & nut allergies. This is a new realm for my friend so she is asking me for help with a cake recipe. I have only done cupcakes and have no recipes to give her. Anyone have any really good ones? Eggs are OK if that helps. I really appreciate it!

Famous Dave's

29 September 2010 - 01:52 PM

We just got a Famous Dave's BBQ place in San Jose, CA and so I emailed the company to find out if they have any menus or gluten free items safe for my son and I received an email with an ingredient list for their entire menu. After skimming the whole thing it pretty much looks likes only chicken,a few of the burgers, and some of the sides are gluten free. NONE of the beef or pork are gluten free. I believe only 1 or 2 sauces are gluten free also. They had the same general CC statement that everyone has so I'm not sure how aware they are of CC issues. The fries don't contain gluten, but I wouldn't be surprised if the oil might be an issue. They did have a link to celiac.org so that is at least it sounds like they are aware of gluten sensitivities.

Anybody have any good or bad experiences with this chain?

Experiment Or Not

09 September 2010 - 11:41 AM

I hate the idea really but I think I have come to the conclusion that I just cannot tell when my son might have had a gluten reaction. Would any of you knowingly give your child gluten to see what his reaction would be for the sole purpose of identifying it in the future?

My son was diagnosed just before his 2nd birthday (he's now almost 3). What led us to diagnosis in the first place was his size and weight loss. He tested positive on the Celiac panel and with the biopsy. Since at the time he had overlapping issues with the iron deficiency, low thyroid, as well as Celiac it is hard to tell what symptoms are directly from being glutened. I know that the iron and thyroid were a result of the Celiac, but they also masked some of the "traditional" symptoms of it.

Would love to hear your thoughts.

gluten-free Bisquick (You're Gonna Laugh At This)

16 August 2010 - 02:25 PM

OK so I was shopping at my favorite grocery store the other day and low and behold they had gluten-free Bisquick! Tiny a$$ box, but I wanted to try it out so I bought it. Now I'm wracking my brain on what the heck I could use it to make... any suggestions or votes? I mean there's always the ever obvious biscuits...but I was hoping for something a bit more creative.

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