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shayre

Member Since 25 Jun 2010
Offline Last Active Mar 17 2014 11:10 AM
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#909099 My Dr Asking What Tests To Order To Screen For celiac disease! Need Info...

Posted by shayre on 16 March 2014 - 03:59 PM

HI.  My infertility specialist that we used a while back...is asking for the proper tests to order for screening his patients for celiac disease!  He listened!  I am not knowledgeable on what specific tests he needs to order.  Does anyone knowledgeable know what I can tell him?  After hearing my story since my 2 IVF procedures with him...and now my body is closer to normal...he wants to learn more.  NEED INFORMATION AND ADVICE TO GIVE HIM!!!  Especially if it's related to infertility, hormones and PCOS.  I need an arsenal of articles from reputable sources for him to learn all that he can.  My email is s.rivotto@comcast.net if anyone needs to email me articles.  I am not sure that screening will take care of everyone, but it's bound to hit on a few people here and there.  I wish that there was more that I could tell him about all of us that are symptomatic with NO positive results!  Thanks a million.  Is anyone else shocked that a doctor listened and wants to add it to his practice...WOW! 


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#880946 Tomato/tomato Sauce Alternative?

Posted by shayre on 24 July 2013 - 09:14 AM

I have a problem with nightshades too.  I get just as bad of reaction as gluten.  If I remember right, nightshades contain cytokins which can exacerbate inflammation in the body.  Way true for me!  Found this out from all of the fantastic people on this forum.  Thanks to you all!  I have not found any substitutes for them, and I just have to live without them.  I am also allergic to garlic and onion.  They cause inflammation and bloating.  Maybe you should get a blood allergy test if that doesn't work.  If  I avoid the foods that I'm the most allergic to, and stick to my rotation of the others...no bloating at all.  I am often bloated, because I often mess up.  Willpower...:(


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#843740 A Little Confused. Need Help

Posted by shayre on 18 December 2012 - 06:09 AM

Hi. I was in your shoes, and it took me a long time to figure out my issues. Everyone is different. I happen to fall into the "super sensitive" category. Which means that I can't eat any gluten-free premade food that doesn't test down to 5 ppm, and that's rare. I can't eat gluten-free products that even test down to 10 ppm. For example, I can eat a few enjoy life cookies (10ppm testing), but if I eat the whole box...then brain fog and bloating sets in. I find that if my ppm adds up, then I'm glutened. For me...it's not just what I eat in a day...it's over all days. For example, I find out that something has really low grade contamination because over time...I just go down hill. At first I'm fine, and I think that the product is safe. Then 2-3 weeks later, I'm getting worse by the day. This has happened to me with rice milk, almond milk, peanut butter...even though the facility may be gluten free. Sometimes the ingredients that the manufacturers order into their facility have low grade contamination...flours, oils, etc. They may even test the ingredients as they come in, but if they don't test the final product AFTER it's made (as it adds up)...then I always pay for it. I doubt that you are this sensitive, but if you are...then there is help to be found under the super senstive forum. And yes, cat litter and pet food. The cat tracks residue all over the house fromt the litter. The cats and dog lick themselves after eating getting food residue on their fur before you pet them...and they lick you. They must be gluten-free. Just look for "grain free" foods for them. There is plenty to be found. The other examples on this post...I can't eat rice chex even one time without reacting. Anything that is 20ppm is an immediate reaction. It might be helpful if you also got a blood allergy test. I was still having problems, and it turns out that I'm allergic to soooo many foods...meats, veggies, fruits, caffeine, chocolate, yeast. Your immune system can just be whacked out. I have eliminated other foods, and rotate my existing foods on a 4 day rotation. It has helped tremendously with bloating and how I feel otherwise. So, there can be other foods causing you problems as well...most likely...and you will have your own set of intolerances. Not everyone will have other issues, but a common thread seems to be the soy, dairy and corn. A food journal could help, but I needed the test because it became to hard to figure out. My immediate problems were soy, dairy, corn and nightshade foods like potatoes, tomatoes and peppers. That last one took a while to figure out. Mine have also not changed after a few years, and if I continue to not rotate my foods then I can become allergic to new foods that I eat all of the time...which was the trend in my blood test results too. Just take a deep breath, and start over from scratch. I know it's hard if you are busy, but eat only whole foods for a while. Add in only one new food every couple of weeks to see how you do. I get tired of calling manufacturers to get information about their processing, but welcome to our world...has to be done. I will have you a few warnings that I wish that I knew sooner...watch out for rice milk (can be processed with barley), oils (some are made on equipment with wheat germ oil or other...Bertolli good), Amy's products mostly bad for me and others too, Food for life (use barley in their processing, and I reacted very badly). Some celiac disease patients are so lucky to be able to eat the common gluten-free cereals and betty crocker cookies...and Amy's! Unfortunately, there is a group of us who cannot touch them! I hope that you are one of the lucky ones:) Even if you are, I'd do whole foods only for now!!!
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#713798 Can Someone Give Me Info About Canning Stuff?

Posted by shayre on 02 July 2011 - 11:24 AM

I am a total newbie with cooking or canning. Can you give me the "low down" on canning? What do I need to buy? Where do I buy it? Processing the food? Cooking the food? Recipes? Does meat can well?

Off of the bat, I was thinking pasta sauce, salsa, bluerries and strawberries, maybe some jelly, loads of applesauce, chili, carrots, green beans, chick noodle soup, and whatever else. I have no knowledge of anything, except that my mom and grandma used to do it.
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#713500 Does Anyone Know What Ppm Udi's Products Tests At?

Posted by shayre on 01 July 2011 - 11:56 AM

Food For Life uses barely water in their products as well. I got very sick from their "gluten-free" brown rice tortillas. I have never had the Udi's muffins or granola (I'm sensitive to Oats so I wouldn't try it).

Well...what the heck? Why...on earth...would they use barley water??????? Omg, are companies just trying to do the bare minimum to get the gluten-free seal? Don't they know that they could drastically increase their sales if they didn't do stuff like that? Sorry, I'm a bit beside myself now.....

So I am a little confused. Does that mean that the 5ppm gluten and 10 ppm gliadin are added to make 15ppm in one product? Also, within the plant...I don't see why they have to prepare oats in a seperate room...if everything that they make is gluten free and it's a dedicated gluten free facility? The whole plant should be equally safe right?

I don't know why, but I prefer NOT to call people and ask questions on the phone cause I guess that I'm a little shy. But it has proven greater results to find out stuff from you all, then calling manufacturers. I did spend a couple of months calling them for everything I put in my mouth, and it exhausts me...as I'm sure that you all know for yourselves:)Some of you don't mind calling and drilling the people on the phone with a ton of questions, and I love you all for that. I just feel bad and a little timid...and a little tired of the attitudes when I'm trying to get more details....or vague answers...ya know.
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#713248 Just Wanted To Say That I Love You Guys!

Posted by shayre on 30 June 2011 - 12:53 PM

I wanted to quickly take an opportunity to thank all of you, and tell you that I luv ya! You are almost like extended family. You are always here when I need you, and when I go away and come back...you are always willing to help. Thank you for that:) I had an "unofficial" celiac disease diagnoses... with zero proof on paper. The little piddly handout that I got at the GI office about celiac disease didn't really help at all at getting me to be a functioning and happy person. You all helped me way more than any doctor or brochure...by far. Well, after the not so diagnosed diagnosis...that was it for help from any doc. Thanks to you all. I became able to function and care for my children, and now get glimpses of feeling like a normal person now and then:) I am still receiving help from you all, so I will look forward to the day of actually feeling normal again on a daily basis. Thank you again from the bottom of my heart. T.H. if you read this...need to talk with you specifically.
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#712636 Cascadian Farms Org Fruit Spread?

Posted by shayre on 28 June 2011 - 11:15 AM

Hi. Well, I DOOOO take it all with a grain of salt. I have fructose issues myself. I just don't have big gluten reactions a lot of times...unless I know I got really glutened, so I'm left wondering? I get muscle aches and pains and foggy brain, but I am also sorting through RA and possible Lupus issues. It's just hard to sort out. I know that there are people on this site who have very clear indicators of when they get glutened, so I feel that having input would help me to decide if it's safe for me. I have gotten better for sure over time, but I'm definitely not normal yet. It would do me good to find out if something that I'm eating causes cc reactions in other people. I'm only just finding out that I'm very sensitive to cc, and I still am trying to figure out just HOW sensitive I actually am. :)
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#683898 Is Anyone Else Taking Methotrexate For Ra

Posted by shayre on 15 March 2011 - 05:44 PM

I am supposed to start taking methotrexate for RA. I have emailed all of the manufacturers of name brand and generic version. Rheumatrex contains gluten, but i have not yet heard back about the others. What is everyone's experience with this drug? I really am terrified to take this drug, since it can have so many side effects. I am concerned about gut issues, because I am doubting that the ingredients can be free of gluten, dairy, corn and soy. I know that this drug can come in shot form, but still...scared. I am also wondering about biologics?
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#631846 Keratosis Pillaris Skin Rash (Zit-Like), Actually Dh?

Posted by shayre on 15 August 2010 - 09:00 AM

I just got diagnosis with Celiac, but doc knows nothing of the skin rash that I've had for about 5 years. Dermatologist had diagnosed it as Keratosis Pillaris, or something like that. She said that their was unknown cause for it. It started after having a baby, and got worse after my last baby. I noticed that it got better after I started eliminating foods,but it hasn't gone away. It looks like acne, but not acne. It started on the back of my arms, then spread to my belly, thighs and back after the 2nd baby. I read on here about the purple scars, and it does do that...looks similar to acne scars. However, I have had 2-3 times where it will turn into something bigger and fluid filled...kind of shocked me. It can itch a little, but I think that it varies between people.

Now, I do know that it gets better and worse with what I eat, so it has to be celiac related. I had joined a forum where there were lots of people trying to figure out this rash, and how to cure it. No one had any answers, because the dermatologists have no answers. Does this sound familiar to anyone? I am assuming that it has to be some form of DH, since I know that food effects it...and with the occasional boil-type lump. I am also assuming that everyone can be effected a little differently...some worse and some not so bad. Please give me your thoughts? And what is Dapsone, or helps DH?
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