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Aeva

Member Since 28 Jun 2010
Offline Last Active Aug 04 2011 04:20 PM
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Topics I've Started

So, Do I Have Celiac Or Not?

27 July 2011 - 11:03 AM

I'm very confused. I was diagnosed about a year and a half ago with celiac based on these bloodwork results:

Deamidated Gliadin Abs, IgG: 51.1
DQ8: positive

Then I had an intestinal biopsy and more bloodwork the other day (new GI) and nothing pointed to celiac. The supposedly 99% reliable biopsy came back negative (I was told to eat gluten for 2 days before) and the bloodwork came back all normal (the serology, not the same one as before). She's going to redo the genetic tests and see what shows up.

My question is...what??? How can some be positive and some be negative, and what does that mean at the end of the day? Do I have celiac or not? For those two days that I had to eat gluten, I didn't get as sick as I should have. I'm also still getting sick even while being totally gluten-free. What the heck is going on?

Oh Boy...

22 September 2010 - 07:25 PM

I know there was a post in this vein somewhere, but I can't find it. Anyhow, I was surfing yahoo answers, and came across this, and I just thought I'd share it with you all:

This was the question posted:

Whats the difference between gluten and sugar?
When a particular food is ''gluten free'', does that mean it is sugar free?? Is it suitable for diabetics? What does ''gluten free'' actually mean?


*slaps forehead* I dearly hope they don't work with food...

Missing Classes

17 September 2010 - 07:00 PM

I'm still fairly new to being gluten-free, so my body is still adjusting, and I'm figuring out just how strict I have to be. Because of this, I'm still getting sick on a semi-regular basis. I've already missed 2 classes because I got glutened last week, and had D for several days...not good for the first week of school. In most of my classes there is a strict absence policy: 3 strikes and you're out, unless you have a doctors note, or something comparable. If you're not there for more than 15 minutes of the class (including leaving in the middle), it counts as half of an absence. But if I get sick, there's really no way to avoid it. Even if I were to go to class, I'd definitely be in the bathroom for more than 15 minutes of the three hour classes, so it's fairly pointless to go at all. I know that I'm going to exceed the number of classes I'm allowed to miss because of my stomach, or other gluten-related issues (my joints get so bad I literally can't get out of bed sometimes, let alone be able to drive to school). What can I do about this? Is there somebody at the school I should talk to, or get some sort of letter from my doctor?? My grades have suffered for most of my life because I've spent half the classes in the bathroom, and this needs to change! Help!!!


I'm a sophomore in college by the way.

Feeling Guilty For Being Sick

12 September 2010 - 06:50 PM

First off, I love my boyfriend with all my heart, and a lot of that has to do with how compassionate he is. We've been dating for almost a year and a half, more than a year of that being before I was diagnosed. Whenever my stomach is acting up, he immediately asks if there's anything he can get me, and is generally very understanding about it all. In all past relationships, I've worried that my health is going to ruin things. I know if I had the choice, I would not want to put up with any of the lovely side-effects of my conditions, and I therefore wonder why any man would voluntarily subject himself to all that wonderfulness that comes along with being a part of my life. My boyfriend has always assured me that none of this bothers him. Until tonight. I've been working 35 hours a week, as well as having a full class schedule (I'm a sophomore in college), so we haven't really had any couple time lately. Tonight I had some rare free time, so we planned to go out to dinner. A few nights ago, I got glutened (CC), and my body is still making sure I know, so dinner was off. He tried not to show it, but I could tell he was upset, and I asked him about it. He admitted that it was getting frustrating for him, plans getting constantly postponed or cancelled because I'm sick. Of course the frequency has decreased since I've gone gluten-free, but as I'm still figuring things out, it's occasionally happening. The most frustrating (for both of us) is that it often hits right when we're about to...get intimate. Given my hectic schedule, and the fact that we both still live with our parents, the occasion comes around rarely, and so when the opportunity presents itself, it's nice to be able to act on it. But more often than not, I end up in the fetal position crying in pain, or in the bathroom for an hour. All of this is kind of putting a strain on our otherwise great relationship, and I'm worried that it's going to lead to our demise.


How do I help him with this? He knows that it's not my fault, and hates that he feels this way, but he can't help it. And I totally understand, I just hate that this is hurting him. Any suggestions on how to handle this?

Thanks,
Aeva

How Careful Do I Have To Be?

22 August 2010 - 04:10 PM

I was diagnosed with celiac 3 months ago, after a lifetime of stomach issues. I seem to be improving a bit, but have these insane stomach cramps on and off, which I think may be constipation/gas pains, with no improvement or worsening when I eat. Is this typical, and if so, what can I do to relieve it?

Also, how do I know how careful I have to be? I know some people can't drink from the same water bottle as somebody who's eaten gluten...how do I know if I have to go that far? How serious is cross-contamination (will I be ok if I take the burger off a bun or use the same toaster as my non-gluten-free parents?) Since my body is still adjusting, it's hard to know if something is really making me sick, or if I'm just healing. Are there any basic rules that every celiac needs to follow in these such cases, or does it vary from person to person?