Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


jebby

Member Since 05 Jul 2010
Offline Last Active Aug 20 2014 08:31 PM
*****

#724344 Craving Apple Pie!

Posted by jebby on 20 August 2011 - 04:18 PM

Hi,
I need help. I am pregnant again and am craving apple pie. Do any of you have any suggestions for pre-made gluten-free frozen apple pies and/or crusts that I can fill and bake? Or bakeries that may be able to ship apple pie to me? I am so desperate that I would actually settle for any type of fruit filled pie at this point!
Thanks a bunch!
J
  • 1


#722203 Is Anyone Else Just Angry That Drs Missed Celiac For So Many Years?

Posted by jebby on 11 August 2011 - 06:29 PM

I am a doctor and I have celiac disease which was just diagnosed last year. When I was in medical school 10 years ago, I had one lecture on celiac and we had a patient with celiac spend 45 minutes describing her symptoms and what it was like to be gluten free. She had all of the typical GI symptoms. There was not much awareness in the medical community 10 years ago about all of the atypical symptoms associated with celiac as research was truly lacking. And I am a "young" doctor, I am sure that those who trained 10 and 20 years before me had even less exposure to celiac disease.
After I was diagnosed last year I was active on an on-line physician forum called Sermo. It is actually a lot like this board, only MDs post difficult cases and diagnoses and look for advice. There were countless cases of middle aged patients who sounded like they could have celiac, for example, people with joint pains, brain fog, IBS, losing hair, etc. Everytime I came across a case which sounded suspicious for celiac, I would suggest that a celiac panel be run. And everytime I would be told that there was no way that the patient in question could have celiac. Non of the docs believed in non-Celiac gluten intolerance either. I am not trying to throw all MDs under the bus, but after my experience on Sermo, I am pretty convinced that Celiac disease will not be at the forefront of the minds of many "older" doctors. It is up to all of us to get the word out. I talk about my diagnosis to as many people as I can at the hospital I work at to get the word out. I was angry at first too....
  • 4


#721057 Confused

Posted by jebby on 05 August 2011 - 04:23 PM

Dr. Haas had all of his celiacs in the first half of the 20th century avoid all grains because there was not awareness at this time that gluten was the harmful protein. It scares me that people are using his research so out of context.
  • 1


#718059 Misdiagnosis Of Celiac Disease

Posted by jebby on 22 July 2011 - 12:40 PM

Please be on the look out for an increase in his symptoms if he is going back on gluten. It is quite possible, since he did get some relief from symptoms, that he had both celiac and an inflamed appendix. Having an inflamed appendix wouldn't cause him to be 'borderline' positive on celiac testing.


I agree with ravenwoodglass. With both a family history of celiac and borderline blood tests, it's entirely possible that he had both acute appendicitis and he is somewhere on the celiac spectrum. I had never heard of "chronic appendicitis" so I looked in some medical textbooks and could not find it described. Is it some sort of "new" diagnosis which has not made it's way into the medical textbooks yet?
  • 1


#692662 The Easter Bunny Is Comming....

Posted by jebby on 16 April 2011 - 11:13 AM

Lisa, Thank you so much for posting this! Your work is truly appreciated!
  • 1


#684921 Biopsy Negative...crying

Posted by jebby on 19 March 2011 - 10:20 AM

In immunology there are two main categories of immune cells, T cells and B cells. I think that they mean that celiac disease is T-cell mediated (adaptive) like most other autoimmune diseases (lupus, RA, Crohn's, etc.), and that gluten sensitivity is B-cell mediated, or innate), more along the lines of an allergic disorder of sorts. Toll-like receptors (TLRs) are a huge topic in immunology right now. If gluten sensitivity is TLR mediated, than the possibility of a cure or treatment in the future is very promising!

"GS as a condition associated with prevalent gluten-induced activation of innate, rather than adaptive, immune responses"

Can someone translate this?
[/quote]
  • 1


#659524 My Story Thus Far

Posted by jebby on 09 December 2010 - 08:14 PM

I had a lot of the same symptoms as you. I was diagnosed with IBS when I was 19 years old by a gastroenterologist who did not run any tests. He actually told me that I had probably been sexually abused and that I had abdominal pain because I was repressing it.
I attended medical school from 1999-2003 and we had one lecture on celiac disease and a guest speaker who came in with "classic" symptoms of celiac.
Celiac is, unfortunately, not on many MDs radars....it took me 14 years to diagnose myself (IBS, hypothyroid, anemic, oral ulcers, joint pains, anemia). I attributed all of my symptoms to stress over the years....
Isn't it nice to finally have an answer?
  • 1