I have a rather storied medical history, the Readerís Digest version being that I was confirmed via biopsy as having mitochondrial disease (adult onset). Because a significant portion of my symptoms are systemic and GI-related (multiple dietary intolerances), I recently began to suspect that my issue began in the GI tract and could be fixed.
I have been following a strict rotation diet since March 1st. I avoid: gluten, corn, soy, dairy, nuts, beef, egg, ground meat (any), pork, sweet potato, rice, tomato, peach, and pear. I started avoiding gluten two years ago, and the other intolerances have just crept up over time. For the first 2 weeks of the rotation diet I also avoided fruit, suspecting candida, but I had a VERY hard time. Headaches, blood sugar dropping to the 60s, irritable, etc. Now, I am eating fruit in the AM or on an empty stomach, but I have avoided grains this whole time.
My energy levels have improved. I am doing significantly better than I was, on average, 2 months ago (when they were suspecting epilepsy and hospitalizing me), but I would think that if I had removed all trigger foods and was rotating, I would be symptom-free by now, right? Everything, and I do mean EVERYTHING I put into my mouth causes a reaction. Even plain, whole foods. Nausea, headaches, fatigue, heavy eyes, etc. Itís ridiculous. I hate food. I just wanted to be TPNíd at this point. I am SO over this nonsense.
Supplement-wise, I am taking Metagenics probiotic (60 billion organisms), L-glutamine powder (1 tsp), Magnesium, and Zinlori (zinc supplement) to try to heal my leaky gut. My functional MD has suggested a CDSA (comprehensive stool panel) down the road (very expensive and I am on disability) and a DMSA test to look for heavy metal toxicity.
Iím frustrated. Really. Frustrated. Iím exhausted and wondering just how long this is supposed to take and how we will ever figure out whatís really going on. Any input is appreciated.
beadlavadaMember Since 11 Jul 2010
Offline Last Active Apr 21 2012 02:19 PM
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