I glutened myself last year with CRUMBS. Teent tiny amounts, totally by accident.
Within 3 hours I had diarrhea that lasted over 6 weeks.
I thought I was going to die, everything made me sick.
I started taking glutamine and within days was totally better. It was astonishing.
I don't know if it was a coincidence, but my Dr was totally stumped and just had me taking immodium so I did not get too dehydrated.
xoxoxo back girl!!!
Yeah, it has been a crappy long journey, eh? (I can say that, I'm canadian).
I expect we will be feeling the effects for a LONG time, but it just reminds me how far I have come.
Every day that I am not in screaming pain, I celebrate. Every day that I don't have suicidal depression, I celebrate.
That's all I can do. I find myself singing in the car (at the top of my lungs and I am BAD) and remember a time when I thought I would never sing in the car again. Stupid little things like that that make we weep with gratefulness, I will literally CRY when I can do something that two years ago I thought was gone forever. Very few people understand this. You start feeling poorly, you start fading away and pulling back. Your friends and family watch helplessly, fearing you are going to die...You start to get better, they are SO happy but don't even realize the magnitude of how you feel and the hell you have gone through.
I would never wish this in anyone but I am not angry anymore that it happened to me. I have learned SO much about who has my back and what I am capable of. What doesn't kill us makes us stronger
Yikes. I had so many of these:
Mysterious bruising on the body (i.e., legs, arms, stomach)
Sticky, floating pale stools
Joint/bone pain (prevents sleeping at night)- this was HORRENDOUS
Cold hands and feet (intolerance to cold)
Extreme fatigue (14-16 h/day)
Panic attacks/anxiety (diagnosed)
It's hard to say where you may fall in the spectrum. Some Celiacs have negative blood work and positive biopsies, some have positive blood and negative biopsies, some people have neither but heal on a no-gluten diet.
If not eating gluten makes you feel better, then I say go for it, especially if you have no intention of getting the endoscopy done.