2 years gluten-free and everyday I am so thankful that we figured out what was literally killing me.
It has not been easy but there are more good days than bad.
No more anti depressants. No more weight loss. No more insomnia. Nerve pain is slllllowly getting better.
Never give up hope. There were many many dark days, even after diagnosis because it too me SO long to feel human again.
When the GI said yup, it's celiac, stop eating gluten and you should feel better in a few days and I didn't, I thought he made a terrible mistake. It was the from the wonderful people here that I learned it can take a LONG time. I learned to be kind to myself and celebrate the good days and push through the not-so-good ones.
I was at a local health food store buying some organic sausages (on sale) as well as a few other things. I was chatting with the cashier about the crap in the food industry. She then tells me that the WORST food in the world is wheat and that nobody should eat that! I told her (because we had "bonded") nthat it wasn't a problem for me because I have celiac. She exclaims "Ohmigod! You are SO lucky!"
I looked at her questioningly and she explained "well, you can't eat it even if you wanted to!". Ummm. OK.
My husband compared it so saying "I am so jealous that you are anorexic! I wish I could fit into those jeans"
Ugh. I work out with a trainer and we are stumped. I have totally plateaued. I eat tons of protein, exercise lifting the heaviest weights I can, do interval training, take all kinds of supplements designed to boost your metabolism (CLA, green tea) get lost of sleep, pretty low carb yadda yadda yadda and I cannot get past this weight and body fat% point. Now, I am not "fat" but I am irritated that I am working so hard with no new results. Has anyone found this? Is my body hoarding calories from years of undiagnosed Celiac? I was only diagnosed 18 months ago at the age of 42 after thinking that I was going to die. I should be way more fit and muscular than I am.
My other thought is that I am taking an anti depressant (that I am weaning myself off of, which is a fresh hell unto itself). It didn't cause me to gain weight, but can they screw up your metabolism? I am so frustrated.
So at a local health food store that has a TON of gluten-free products (so many that I figure the owner must have Celiac!) they had samples of UDIs gluten-free muffins. Now, I had to throw away my UDIs cinnamon buns, they were awful but I miss a nice muffin, so I went and grabbed a sample. On the same plate there were some organic cookies. They had the package beside it and LUCKILY I glanced at the ingredients and saw these cookies were NOT gluten-free. And everything was co-mingling on the plate. Yikes.
My husband freaked out when I told him and he said I should have spoken to someone about it but I was in a huge rush and I am fairly sure that the 16 year old behind the counter didn't care. I just told him I have to be totally responsible for myself and not expect anyone else to do it for me. Once I thought about it, I do regret it because of people that may not have realized the cookies were a problem. I expect the store was not intentionally trying to poison people, it was just a mistake. I do try to educate when I can, I just wasn't in the mood.
I bet I wouldn't have liked the muffin anyway...