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jjb1234

Member Since 16 Jul 2010
Offline Last Active Oct 30 2011 06:03 AM
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Topics I've Started

Heel Pain

27 August 2010 - 02:21 PM

I have noticed since I have been doing the gluten challenge that I have had quite a bit of heel pain when I stand on them.
It is usually more pronounced when I first stand on them then lessens as I walk around more.

Anyone else get this?

Thanks,

Jen

Intentional Glutening

26 August 2010 - 05:11 AM

I posted a month or so ago I have been noticing more consistent reactions to eating gluten.
Over the past 4 years I have not been eating much gluten as my daughter is on a medical diet and she does not get any gluten or grain products.
Well this past summer I had noticed that any time I did eat certain grain products (bread etc)I would have intense symptoms the next day that felt like food poison (very painful cramping and burning in the lower left, loose stools, nausea etc).
I scheduled an appt with gastroenterologist which will be next Friday.
Since I have decided I want to be tested for celiacs, I have been intentionally eating gluten products a few times a week.
I feel terrible. Consistent joint pain, fatigue, brain fog and near constant GI upset.
The thing is, since I am eating MORE gluten now, I have not been having many of those more intense and consistent feelings that feel like food poison.
I did this morning though which brings me to the forum today.

So some symptoms have gotten more consistent, but the more painful intense symptoms are not as frequent.

Any thoughts on this?

Thanks,

Jen

Glutenizing Myself Before Testing

30 July 2010 - 05:26 AM

I will not be seeing a GI until Sept.
I understand you don't want to be gluten free before the test and you should glutenize for a certain amount of time.

I have a lot to do though of the next few weeks that will require both strength and concentration so I cannot gluten myself during this time which leaves me only a few weeks.

Is three weeks of eating gluten enough to produce an accurate blood test result?
If I am quite symptomatic, will that be an indicator at all that I may have accurate results?

Thanks,

Jen

How Long To Symptoms Last If ...

29 July 2010 - 04:22 PM

How long do symptoms last if you have inadvertently consumed gluten?
And what are your symptoms?
And what was the time frame you had been gluten free?

Thanks,
Jen

New Here W/ A Million Or So Questions (Important Ones Though)

16 July 2010 - 09:03 AM

Hi all.
I am Jen.

I do not know if I have celiacs or not. At the very least I have some sort of sensitivity toward some component of wheat and certain grains.

I have numerous chronic health issues as does my 6 y/o dd.
Hers are more significant though and I am always looking for answers ... more answers.

As a child I always had strept, frequent fevers, frequent GI issues and later as a teen frequent UTIs (or so they thought ... actually what I had was interstitial cyctitis)

As a young adult had chronic fevers, sometimes as high as 105, continued having GI issues and would later be DXed w/ gastroparesis, H Pylori, IBS etc, have been DXd w/ fibromyalgia & CFS but I question both of those. In recent years DXd with connective tissue disorder, autonomic dysfunction and possible mito disorder.

While preg with my daughter I had hyperemesis the entire time, mild preeclampsia, a partial abruption at 28 weeks w/ preterm labor.
My daughter had a stroke somewhere around birth resulting in hemiplegia (cerebral palsy effecting one side of her body)
She also has seizures, more significant autonomic dysfunction, migraines and possible mito.
She had pretty poor growth her first year of life. Her stools were often large, bulky, pale and frothy. Her feet salty. Tested neg for CF. Always had either loose stools or constipation. I suspect she also has gastroparesis.
At age two she went on a modified keto diet. I cut all wheat and most grains out of her diet. Her health improved quite a bit and she gained some much needed wt.

Because of my hyperemesis, there were only certain foods I could tolerate ... white bread and wheat crackers were a couple (both foods I normally know to avoid)
While there are plenty of reasons for my daughters stroke, I have often wondered if my diet could have possibly have been one.

In recent weeks, I have been more intolerant than ever to wheat and certain grains (rye & steel oats)
Pretty consistently when I eat any of these products, the next day I end up with intense lower GI pain with loose stools. It will take from 15 minutes to a half hour to pass stools and when I do it is extremely painful I think due to cramping or contractions or something.
I get very sweaty, feel like I am going to pass out, sometimes vomit etc. Feels a great deal like food poison.

So here are my questions

1. Does the next day food poison like symptoms sound celiac-ish?

2. Are there other wheat intolerances other than celiacs that might do the same?

3. I recently read up on a connection between celiac & stroke ... is there anyone here on the forum w/ this experience?
My daughter who had a a typical stroke also has episodes that resemble TIAs, but might be seizures or migraines. I have a brother that also has seizures and recently began having similar episodes and he too doe snot know if they are TIAs or seizures.

4. Any connection between celiac & mito dysfunction?

5. RE: testing and finding a physician, do I really need to find a gastro that understands celiacs or will any GI due in terms of doing the actual test?

Thanks,

Jen