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Member Since 17 Jul 2010
Offline Last Active Mar 14 2013 03:29 PM

Topics I've Started

Confused: Endoscopy Negative, Impossible To Be Gluten Intolerant?

14 October 2010 - 10:37 AM

Ok. Here I am again.
Suffered through the biopsy yesterday. Dr. said I'm not celiac.
I went through all of that because I had a high positive on
a saliva test for anti-gliadin autoantibodies.
I did all the bloodwork--all was negative.
But because I read here that there can be 20% chance i still could have it, I did the biopsy.

So, now I'm wondering, is it possible to be gluten intolerant and not celiac? or is the saliva test just that wrong? I mean, I guess I'm confused about if gluten gets past the small intestines fine and the villi are happy, is there really a good reason to come off the gluten?

I am in pain for some unresolved medical diagnosis and that's how I 'hit' this avenue.
Has anyone been told through biopsy and blood "no celiac' and yet still had pain relief coming off the gluten?
(I have painful feet, legs, back--hard to walk very far and I'm 35 and not overweight)
Thanks so much.
Any direction on links or forums to help me with this would be great if it's too much to answer...
I tried a google search, but I'm still lost.

ps GI dr. said there is no reason for me to come off gluten since my villi look good. However, because I have that high positive on the saliva test, I'm questioning his opinion...

I Hope I'm Doing The Right Thing!

05 October 2010 - 09:19 PM

Hi. I was here several weeks ago.
I'd had an off the charts saliva test saying I'm highly intolerant (dr. said 'allergic') to gluten.
Soooo...I decided I just had to know if I'm celiac or not.
Went to GI dr.
He ordered bloodwork, unsure of validity of saliva testing.
All bloodwork negative, including bloodwork of the same test I took by saliva.
He even called the lab that does the saliva, who told him a false positive could happen if one has parasites.
Did a poo test.
Sent it to the lab.
Parasite free.
Decide to do the biopsy, though GI dr. highly doubts celiac.
It was scheduled for yesterday.
I was sick and canceled.

I have had pain in my feet and legs and back that suddenly onset (first in feet) a year ago. The only tests of allll my xrays, nearly full body MRIs, every kind of bloodwork you can imagine....
They only could find 'for certain': Vitamin D deficiency, which I'm now recovered from.
and now this saliva test.
I'm tired of the pain. I don't feel I can wait any longer to do the test.
Tonight I decided I'm gluten-free.

My 7 year old has awful constipation and ezcema. She is adopted. (saying this b/c we are not blood related to think of a link between us for intolerance or celiac).
Her bloodwork was negative.

Thinking of taking her off without a biopsy.

Thanks for listening and for your support.

Do You Think My Asian-Adoptive Child Could Have Celiac?

13 August 2010 - 12:45 PM

Hi, all. I know this is not he pre-diagnosis area, but I"m not sure how many of you visit there and I am looking for some feedback from those who have 'been there.'
My daughter is 7. For the past few years at least she has has what seems to be chronic constipation. She sits on the toilet A LOT. She tested negative on the top allergy blood tests. Dr. just said she needs more fiber and water. Husband says she just needs to drink more water.
But as her mom, I'm thinking, my other kids all eat the same diet and don't drink insanely more water. So, why aren't they constantly on the toilet?
She also has ezcema.

I am happy to just take her off gluten, but I"m wondering if it would be more helpful to do some real testing to see if she is true celiac. I mean, she might be glad later that I did? And I would know how anal I need to be with what touches her body, right?

Anyways, any support you can give--like, if your kids had similar chronic tummy issues as their main symptoms.

She seems otherwise healthy and smart and grows at a good rate. Her weight and height are normal, as are her growth patterns.

Many thanks.

A concerned Mama,
VitD Girl

Silly Question?

13 August 2010 - 11:54 AM

I have not had my daughter tested for celiac or gluten intolerance.
Because she tested 'negative' for wheat allergy on a RAST test, I assumed she 'couldn't be'.
But now I'm wondering if I assumed wrong?

Thanks for any feedback.

Vitamin D Girl.

How Imp. Is It To Use Gluten-Free Make-Up, Shampoo, Etc?

06 August 2010 - 03:51 PM

Do Celiacs have to use gluten-free shampoo, make'up ,etc?
Is that a debatable topic?


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