notme!

i think that we do hide it so well, we don't look sick.  i was glutened recently and it takes TWO WEEKS to recover from a hit for me.  after about 3 or 4 days, everybody forgets that my body is still so sore and sick and out of whack.  "what's the matter?  why are you so tired?  why don't you eat ______??  it's gluten-free.... "  PEOPLE.  IT TAKES TWO WEEKS FOR ME TO RECOVER.  seriously, i should wear a countdown clock on my head or something.  and i hate to keep saying, "remember TEN DAYS AGO when i told you i got gluten.  well, it's the gift that keeps on-a-giving    even if *you* forgot about it, doesn't make me 'better' any faster.  

 

honestly, repeating myself about stupid gluten makes me feel/sound like a hypochondriac sometimes.  but here it is, day 15, and i am out of bed, dishes done, laundry put away, etc.  what a difference from even 2 days ago.  i am loading up on protein today, can't get enough of it  today.

 

don't feel alone, ((hugs)), and thank you GOD for this forum.  y'all have a blessed day!!

goodness, we are a sickly bunch this week  love2 i think you're right although 'wisdom' doesn't usually scarf down a cupcake from a questionable source!  i'm still rebounding (o gosh, my guts HURT - hard to imagine before diagnosis i was *used* to feeling this miserable)  probably make the hubs eat leftovers - err - encores.  maybe i'll have some clam chowda later if my samwich is nice to me...

 

everybody:  feel better soon!  i'll be holding down the couch if ya need me.  :/

i fend for myself and nowadays i just make everybody aware of it.  i had a lovely woman (my friend's friend) who was trying to cook a meal that everyone could eat (me) so she showed me every ingredient in the marinade - safe - steak (told them make sure to put tinfoil down on the grill surface for my steak) - safe - potatoes, olive oil, italian herbs - safe - broccoli - safe.  i turned away for one moment and the next she has the veggies in a non-stick (contaminated) pan, the men have gotten hold of the steaks and put them (directly) onto the grill.........  NOT SAFE!  and, after all that effort it pained me to tell her i would just make myself a ham sammich.....  but less painful than getting sick.  my new motto is:  if you love me, don't try to cook for me!!  

my best friend i've known since kindergarten had the most awesome husband she could ever have.  we went all over together, experienced triumph and tragedy, grew up, had kids, grandkids, etc.  he had a heart attack 2 weeks ago and died.  my girl called and i had to get there fast.  so, i packed the dumbest suitcase ever and my sister got me a plane ticket.  i packed 2 peanut butter and jelly on udi's and i knew i could get "something else" and a beverage at the airports.  and i did and it was ok.  then i got up there (northern nj) my sis got me some boar's head lunchmeat, udi's, chex,, blah etc., (survival stuff lolz) and everybody was bringing food to the house, which is customary.  so, when my husband got there, we went to a(n awesome restaurant in hackettstown nj) and ordered, like 4 dinners and other gluten free stuff "to go" - it kept me from freaking out about cooking/cc everything and i was able to concentrate on the situation without starving or having to shop/cook/THINK about food.  lasted the whole trip and i didn't have to worry about what i was eating and help my bestie.  i just wanted to share because it was a great fear for me.  made a terrible time a little less stressful to order out.  when i flew home the other day, i noticed a whole lot of people waiting at the airport gates who had packed their own food, fyi, and didn't feel a bit strange eating my ham and swiss sandwich.  oh, and, hahaha (not funny just 'funny') i had my pb&j sandwiches approved by airport security, yet they wouldn't serve the peanuts, just crackers and pretzels, on the airplane.  because a person on the flight had a peanut allergy........   i resisted anarchy.......     lolz

i hope this evening finds you all well, making the best you can, and professing your love to those who mean so much to you.  God bless you all

i am poor, too.  (husband has worked the same job for 15 years too!  and is now *back up* to 2/3 of his pay/work schedule.  for now.  who knows what this wonderful economy will bring??)  it sucks and blows at the same time.  but, mcdonalds came 'off the table' when i was diagnosed - out of respect for this wonderful man who watches me spend his hard earned cash on a six-dollar loaf of bread and boar's head lunchmeat while i buy the cheap stuff to feed him.  you can adjust your food bill (i can buy 6 loaves of 'regular' bread or one loaf of udis - i get it)   he insists i do not go back to work because he is so worried i won't eat right (i was 97 lbs i am 5'7" tall - he was watching me starve to death pre-diagnosis) or that someone will cc me and i will be sick sick sick again.  if you need cheap ideas, pm me i'm so tight i squeak!!

i am so surprised by how things smell to me now that have gluten/unhealthy for me things in them - i am also surprised that you could have the appetite to eat it - honestly, it smells like puke to me anymore!!  the kids were home for thanxgiving and they got some fast food and it smelled absolutely disgusting.  i thought somebody threw up or a dog puked or something - i looked all over the house until i realized what it was (sonic.  eewww)  good for you for realizing it's not worth the cheat.  stay healthy - i try extra hard for that guy who worries so about his wife.  he must like her a little.

if you have celiac, you can't have gluten.  the end.

even if i accidentally ingest gluten, from who knows where because i am very careful, it takes weeks for my whole body to recover.  from the joint pain, irritability, headache, extreme fatigue, etc, not to mention the severe reaction from my intestines, loss of appetite, hair loss, rash, IMMEDIATE weight loss, etc. and it's so depressing, too.  i am still weak and puny from a 'mystery glutening' almost 2 weeks ago...

i will never purposely ingest gluten.  i don't have time for it.

stuffed french toast!  and this is the second time this week i made it and it turned out not mushy and gushy.  i used rudi's original (from the freezer into the toaster oven on 300 degrees for 10 min to thaw it and dry it out a little.  then dunk it into the egg mixture just for a second (my first few attempts i left the bread soaking too long - like i used to do with glutenous bread - and it disintegrated lolz) i fried them in butter on both sides then just put plain cream cheese and some blackberry jam in between them, egged them again and fried them again.  this would be good for a brunch.  love playing with my food haha

oh, and i had some ham, too

suz - the fact that you are here speaks volumes.  and maybe staying gluten free will clear up your liver problem - many of us have had a ton of other 'unrelated' symptoms go away by just eating the right stuff.  f**k that dinner roll.....!

Tortilla soup!  Actually made with tortillas!

get.  out.  where did you get them?  (don't say teff, don't say teff, don't say teff...)    

one of the 'other things' i miss is flour tortillas.  although i am doing better with using the corn ones.

edited to say:
last night we made macaroni n cheese w/stewed tomatoes.

tonight we smoked salmon and tuna w/roasted potato rounds and acorn squash a'la billyhowell (yumms - butter, salt n pepper and brown sugar!)  

but the other night we made:  chicken chow mein like they used to make in new jersey   complete with fried crispy noodles - o my gosh, i was in 'china paradise'  

I kinda like that idea!!!

"hi.  i'm arlene, and i'm a toastaholic."

sometimes i burn the edges, just to live dangerously!  

I learned how to spell diarrhea.

LOL true story !!

i am gonna hafta make that challah!!  

tonite is macaroni n cheeze <mom's recipe w/egg custard   with stewed tomatoes.  yumz, comfort food...

flour or no flour - if he's creeping you out, get rid of him!  i had a stalker it is NOT FUN!  he was a convincing LIAR and he had things alll planned to take advantage of my sympathy.  it took a long time to get rid of him and even longer to be able to sleep at night.  

trust your instincts - if fiance needs convincing, tell him to watch the movie 'pacific heights'  

good luck

edited to say:  i didn't see that this was 2 pages lol - thank you so much, d.a., for sharing!  it's so important not to be 'polite' when all the bells and whistles are going off in your head -

this little feller was passing himself off in our church youth group as a 15 yr old, rode his bike to the meetings and to church, etc.  always staying behind to help me clean up, helping my daughters carry things to the car, he would come over to see my (baby, at the time) grandson - he remembered i had him visit every wednesday evening <- that was creepout #1, when i started paying attention and my ears perked up.  one night, late, he shows up on my doorstep covered in blood.  he had told me before that he and his dad didn't get along - now he said his father had beaten him up.  i was DISTRESSED (and he counted on that) and SYMPATHETIC (also what he wanted) and i invited him in to get cleaned up and told him he could spend the night (in with my son in his room, thinking harry could keep an eye on him - ha) i talked with him the next day and he said his dad had kicked him out of the house completely and he had no place else to stay - i spent hours going over his options:  could you stay with a relative, friend, etc?  he played the pity card.  then he popped up everywhere i went.  he knew my schedule because (i have 4 kids) i co-ordinated the house and discussed everything with the kids, so all he had to do was listen.  long story short:  the day i kicked him out was the day i found out he was actually NINETEEN and the night he showed up at the house he had pulled a knife on his father.  that was not his blood on him.  when i came home from work that day, he was hiding on the back porch waiting for me and trying to watch my daughter take a shower - *shudder* and my story had a relatively 'happy' ending.  most people don't live through these things.  trust your instincts, i can not stress this enough.

raven:

lookit the love for you in this 'tribe'    ((((hugs)))) from me, too - and so much appreciation for the HUGE help you have been to so many of us on our crazy journey.  i am not much of an animal person.  that being said (also very allergic) my daughter left for college last week and 'dumped' her cat here with the agreement that he would live outside.  well, he got beat up EVERY NIGHT because he is a wimpy housecat. so i let him in.  we have had dogs but i can't stand cats.  guess who the stupid thing follows everywhere???   yeah, i took him to get fixed, shots, etc.  sleeps on my t-shirt.  only comes if *I* call him...  got him a brush, i am teaching him tricks.  argh..  he's just so damb cute....

i told her when she gets her degree she is TAKING HIM BACK.  LOLOL  that's when she told me that her ultimate plan includes getting her doctorate.  i'm screwed.  (look at him chase that laser pointer - tee hee hee hee !  )

much love,
arlene xxoo

ps - my mom's dog was named 'maggie' i used to tell her there's some poor little girl called 'spot' because the dog stole a *people* name hahahaha

I once heard someone say that they just partake in Communion (like normal) and eat the bread and drink the wine even though they're coeliac.

They quoted that:



I'd be interested on your perspective with regard to this particular matter...

to me, communion is about atonement, not suffering.  i don't remember the part in the bible where it says Jesus had D for me.  but whatever floats your boat.  

i bring my bread in a little snackie bag to church and take it out and eat it at the altar where everyone else is receiving the host and the pastor blesses it along with all the regular bread.  last week i forgot it in the pew and had to dash back to get it and everybody smiles and asks me after the service "oh, you forgot to bring up your bread didn't you?"  i hope everyone has such love at their church as i have in ours.  they are truly our church family