notme!

I once heard someone say that they just partake in Communion (like normal) and eat the bread and drink the wine even though they're coeliac.

They quoted that:



I'd be interested on your perspective with regard to this particular matter...

to me, communion is about atonement, not suffering. i don't remember the part in the bible where it says Jesus had D for me. but whatever floats your boat.

i bring my bread in a little snackie bag to church and take it out and eat it at the altar where everyone else is receiving the host and the pastor blesses it along with all the regular bread. last week i forgot it in the pew and had to dash back to get it and everybody smiles and asks me after the service "oh, you forgot to bring up your bread didn't you?" i hope everyone has such love at their church as i have in ours. they are truly our church family

I had to throw 3 slices away because I wasn't thinking and put it in the wrong toaster! ACK!

also know you're gluten free when you start having nightmares about eating something with gluten.

LOL i had one (nightmare) this morning that i was heating my last piece of The Most Awesome gluten-free Pizza Ever (doesn't exist, sigh, it was a dream...) and somebody chucked a huge piece of italian bread on top of it!!

you know you're gluten free if all the inbox photos on your phone are pictures of grocery packages or ingredients (my husband lol is always second guessing at the store, God bless him!)

if you do, please let me know how they came out i would love the input - thanx!!

arlene

well, it seems like every snack/energy/cereal bar i have tried doesn't agree with me for some reason or another. so i made my own and they came out delicious. i am still tweaking the 'glue' made of heating (2 T) butter, (1/2 c) peanut butter and (1/4 c) brown sugar (1/2 tsp) kosher salt - when that is melted, put in a big bowl and
then mix in 2 c. of honey nut chex, 1 c. of cashews (i toasted them first a little) 1 c. of craisins - mix together and SPOON into a pan lined with parchment paper - then sprinkle chocolate chips over it and smush with waxed paper so it's a flat layer. put it into the freezer to set. i had to let mine thaw a little to cut it into bars (1" X 4") and wrap them in wax paper, put in freezer.

you can use any ingredients (cereal, nuts, dried fruit) you want - and even the (non celiac) kids looooove them i jam them in the cooler for a snack that will keep me till dinnertime if i'm out. sometimes i eat them with some yogurt for breakfast

herb crusted scallops
wax beans (from the garden) i may just blanch them and make a little shallot/vinegarette dressing
FRENCH FRIED POTATOES <haven't had fries in a year and i'm going to try and make my own. from potatoes.

i went through withdrawal/detox. night sweats, mood swings, extreme fatigue (no hives) but i was terribly UNDERweight so i don't know about that part about losing weight. i have gained healthy weight. i DO know i could DEFINITELY feel the difference almost immediately, especially with digestion - like, oh, this is what i'm supposed to be eating all along. if you are feeling that worried, see your doctor. there are many things related to celiac disease that you may need to consider.

As an aside, am I the only one here who has never even been to a Starbucks?

i never have been my youngest daughter is a coffee nut - spend 6 bucks on a whaaaat? cup of coffee???? nah.

JaniceS,

First of all don't get discouraged by other people. You will forever have to deal with ignorant people. Just be firm, straightforward and clearly state your thoughts. I determine who to speak with in a normal manner and I tend to go a little over board and intimidate ignorant people. This comes from managing large groups of employees both individually and as a group and trying to get others to do things my way.

My only advice to you is to learn the best way to get your point across about your dietary needs and learn how to modify the ignorant behavior and the stupid responses you will always get from others.

I said it before here on this forum, don't let any walk on you (verbally) or control your feeling by stupid stuff they say. You are the king/queen of your emotional hill and you alone control who you let knock you off your emotional hill.

Now go out there and kick some gluten in the a$...

lol! go rich! you and i are of the same mind - i will explain all day long to people who actually are interested. but to have to answer the same ignorant questions over and over makes me kind of get in their face a little: NOOOOOO. (direct stare) I'M. NOT. EATING. THAT. to the lesser importants: eeeew!! gross!!! get that stuff away from me!! i keep thinking that *maybee* someday these dorks will stop asking me questions, but everywhere you go, there they are...... :/

I dodged a lunch outing I didn't want to go to.

hahahaha!!!

never EVER cheat. maybe she has never been 100% gluten free long enough to see what a huge difference it makes. it took awhile to 'detox' (ohhh, cranky, cranky) and to even out my digestion - although every day you feel a little better... also had to cut out alot of other things when i went gluten-free like dairy, soy, certain veges and fruits, etc. i lived for years (25 years!!!) without knowing i could feel this good and no way did i want to change my diet when i was dx'd! yet i managed to raise 4 children to decent human adulthood. did have one miscarriage, though. if my husband gave up on me i don't know how i would have survived till now. i was very, very reckless when we started dating....... i hope everything works out....... but her brain may not be working - i know mine didn't. he was my voice of reason.

oh, yeah, and have been self mj'd for years even before my dx, so i believe there is truth to it's medicinal qualities. it does help, even if it's an attitude adjuster. i get really irritable when i have been zapped, so it keeps other people from killing me. eventually, when i feel better it helps with the appetite. i agree with skylark - don't mess with that synthetic sh*t. get the kind God makes. if you can't find it, ask a senior citizen

Oh no! Is blathering another symptom of Celiac?

hahahaa! too funny just spent the weekend camping and almost every day there was a huge conversation about celiac - i love that people are interested but *damb* i'm sick of talking about it... on top of that, something has zapped me so now i'm cranky as all get out. i came home to eat a tuna on udi's and wait my alloted 20 minutes for my stupid body to decide what it's gonna do. everybody went out of the way to make sure my stuff was separate (lil grill) and stuff i could eat (rice, salad, etc) and then they cc'd the living hell out of it. rice and salad in plastic containers, the kids with their crumb-y hands, using the same spoon for different dishes. i play a game "can't eat that" - starts out with all the possibile gluten-free offerings then i watch and one by one i check them off. i am down to nothing and also eyeing the coolers suspiciously: they are NOT new or separate. we keep regular beer and my drinks in the same drink cooler. at one point or another, they have all been used for a beer cooler over the years. we scrub them out with clorox but of course they are scratched plastic. and i am sure every one of them has had beer spilled in them. could this be the culprit as well?? last night i just quit eating anything at all. ugh.... packing my meals from now on. packing my meals from now on. packing my meals from now on...... :/ i should take my own advice!!

i felt that way at first, too. i still have little meltdowns but they are less frequent. yep, it really sucks with a capital SUCK. because (the hardest part for me, anyway) is that it is forever. in the beginning i was so angry and i was trying so hard to stick to the diet but i wasn't feeling any better at all. all a waste of time and effort! plus, i was making my family go through it as well. i didn't purge my pantry at first (denial) i didn't keep a food journal (nothing matters because i didn't feel any better) i bought alot of processed stuff that was labeled gluten-free but tasted like crap! but then one day, i woke up and didn't have to run to the bathroom twelve times an hour! i didn't feel like turning over and going back to sleep! i made a list of things to do for the day because i felt energetic (wow, what a feeling that i forgot) and i started gaining back my body weight - i have put on 20 lbs and have not gone up a size yet, which was probably all muscle weight - also, if i do chores around the house (washing windows, etc) i don't feel like i've been hit by a truck for days afterwards. that has just come back, i've noticed, in the past few weeks or so. and i've been gluten free since late july of last year. so hang in there. i cry a little for everybody who comes on here for the first time because i remember how i felt in the beginning - overwhelmed and mad as hell and sad all at once. i stood in the supermarket for an hour then i bought nothing and went home and cried. it will get easier i plomise you are in the right place: nobody understands us like us

congratulations to everybody! i just turned 48 last week (misdiagnosed for 25 years) and have been gluten free since july - i feel *awesome*!!! i can't tell you how many people have come up to me and told me how wonderful i look! (now, i'm taking this as a compliment lol i must have looked awful before) people ask me "did you color your hair?" "what's different??" etc - sunday my daughter told me i look 10 years younger yes, i missed alot of time being sick for no apparent reason... but i'm better now so i'm not going to be wasting any more time pining or being angry - woohooo i feel great!! ps - didn't notice how bloated i was until it disappeared.... pps - i can go on that cruise if it's FREE lol

i couldn't count anyone, really, because they haven't admitted it yet but i have a strong suspicion my sister has started cooking gluten-free for her family. (four people) also my friends always seem to be eating gluten-free - very interesting....... didn't push for anything, they just see the huge change in me, physically and mentally. sister likes to post her dinner menus to facebook, (well, me too, and that is so crazy b/c i was never this hungry or enjoyed food so much!) so maybe it is all a ripple effect