'lynrn

I was originally diagnosed with celiac disease as an infant 60 yrs ago. Raised for many years on a gluten free diet. My mother was told I had outgrown it and as foods were reintroduced in early teens appeared to not have many problems.  In hindsight,  I was classic celiac. Five years ago my symptoms were the checklist for every conceivable problem associated with celiac but doctors didn't come up with a diagnosis. I am a nurse and one night a doc who I work with was discussing all my issues and suggested...once a celiac,always a celiac.  I googled celiac disease and was shocked at how everything fell into place including D.H.  I immediately went gluten free.  Most of my symptoms have greatly improved. My eldest daughter has been diagnosed as celiac as well as casein and soy intolerant by genetic testing. I have never had any testing done.  I am very sensitive to gluten especially CC.  I recently was staying with family for 4 months and was continually getting glutened.I suspect dairy and soy as well but just don't know. I will be getting health care coverage in a few weeks and would like to get some kind of testing done. I am not prepared to go back on a gluten diet to get a bowel biopsy done. I simply would not be able to function. What other testing should I be requesting? I have severe osteoporosis and take calcium,vit D and mag for that as well to control severe muscle spasms. I was recently losing weight rapidly from being glutened but now that I am in my own place, that is under control again.I have peripheral neuropathy in my hands and feet but it is not progressing and the ataxia is now stable. Avoiding gluten and my D.H. is under control. I know if I go back on gluten foods that I can trigger that and I guess they can test  the lesions and diagnose me from that?? I feel I want to have an idea of what I am asking when I hit a new doctor. I have been diagnosed in the past with fibromyalgia and reflex sympathetic dystrophy but on a gluten free diet both  conditions are much less of a problem and I almost hate to mention them.  Should I be looking for a specialist( gastroenterologist) or can a GP work? Is this more an internal medicine thing??? Any suggestions are appreciated.

Just came home from the grocery store after searching through cans of soups. Hidden in with the Mexican food section I found Heinz brand Cream of Tomato...made with corn starch instead of flour. I haven't eaten it yet to get a reaction but this was one of the few cans I saw that didn't have wheat flour as an ingredient. I had been looking for Progresso a I had read somewhere that some of their cream soups were gluten free but my local store didn't carry any of their concentrates. If this turns out to be safe it is a real plus. I am new to this and do cook just about everything from fresh and scratch. Living alone, a few short cuts would be nice!!!Does anyone know if this is a safe product?

Don't know whether this product has been posted or not but they are awesome!!! Organic although processed on equipment that products contained soy. I am eating chipotle tomato flavor and in all honesty, I would have loved these pre celiac as well. I emailed this company to find out if they were also available in Canada...they are..(I have a celiac daughter in Toronto),and they were very responsive...answering within 30 mins. The owners tell me they have family hx which is why they are in the business. Just thought I would share as it was one of the first things other than pop corn that I have found that tasted good.

I am very new to how strict I have to be and I did this to myself. I ate Kellogg's Corn Flakes...OK..after 20 mins and now I can hardly move my hands, I ache all over and my gut is doing somersaults...is there anything I can try after the fact that might make this a shorter lived event????
I just checked and found that this cereal is not considered safe and it is now in the garbage, right along with the can of crumbs,but I suspect this is going to happen often. If anyone has any ideas on what might help now, I would love to hear. As my eyes had puffed up and I was achy, I threw some antihistamine in the mix with ibuprofen but am not certain now whether I made the situation better or worse!!!! Help!!!

I am sorry if this is the wrong section of the forums.  I am a 60 yr old woman, not yet diagnosed by the medical community as celiac currently.  I was diagnosed as a 4 month old infant and raised gluten free for many years. The problem was,  I was always told it was a wheat allergy that I had outgrown. I was also lactose intolerant. I still remember lactaid acid milk, bananas and rice pablum as the staples of my diet growing up.  I always had stomach issues, and severe fatigue issues as a small child even though I didn't sleep...still do.
About five years ago, my symptoms looked like a check list for celiac disease and google pointed me in the right direction. I have attempted gluten free since then. Yes,  much has improved. I still have major problems. I never realized all the issues involved...cross contamination being the biggest.  I thought just eliminate gluten and I would be fine. My eldest daughter clued me in when she genetically positive to gluten and also came back soya and caseine positive. I suspect these are also issues for me.
My problem...I just emigrated to the US from Canada.  I don't go on health care with my employer until October 1/2010.  Scary enough trying to find the correct doctor but does this now become a pre-esiting, not covered condition? I am a nurse and used to work in the US.  I am aware of the ramifications of p.re-existing conditions. I have not been diagnosed as an adult as celiac.  What about the other conditions that I am treated for, that are probably related to/ caused by untreated celiac disease????
I need to see a doctor but am scared for what this may entail. I have severe osteoporosis (bone loss of 46%) have had the classic herpes like rash....they said it was shingles until it crossed the midline of my body..severe fatigue,  still.  I ache ...but you have osteo arthritis... liver/ pacreatic enzymes are at times off the chart...Are you an alcholoic????  I WISH!!!!!  wine makes me sick...Thanks to these forums I know why my fav red wine aged in oak casks... I smashed a foot and was left with reflex sympathetic dystrophy..pain is incredible at times...now I know why it is worse...oops...I was glutened...
Any help is greatly appreciated. I just moved in to my own place after living with my son and his family for four months.  I have never been sooo sick.  I lost 35 lbs. No one could get that my condiments were off limits.,,,,ditto my cooking utensils...They made my rice pasta in water after theirs....I found out the hard way.   My sensitivity is through the roof right now. I am a nurse and have been for 40+ yrs... I am trying to work but finding it really hard. I want to get help in October but don't want to say the wrong thing that will get my claim denied........