I don't beleive that she is going to bother with the biopsy...the family history is there and she told me to go ahead with the diet. I am overwhelmed by the hypoglycimia and the celiac but I have a really good book and you all to help me through this and an exremely understanding husband (most important).
Off to the post diagnosis section lol
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About Me
Ok so here is my ongoing Story....
I have had stomach problems for as long as I can remember. Through High school it was bad but managable. My mother and grandmother both have "IBS" or so they have been told. I have been anemic several times for extended periods of time especially while I was pregnant with my 3 kids.
Like I said since my mom and gramma have "IBS" I had always chalked it up to be the same till I was 20...The guy I was dating at the time had Crohns now in no way at that time were my tummy issues as bad as him.
After my husband & I had my first child aprox. 2 years later things changed dramatically. It seemed that not matter what I ate I was all over the map!!! Some days I would be great and could eat anything and other days i couldn't eat anything without sending my into cramps, hot flashes and several trips to the bathroom. I tried to control it through diet...it help very little.
Over the next 6 years again I just lived with it because when I had asked my Dr. at the time she just said its IBS and never did ANY tests.
3 years ago we moved to a different town new DR. complained once to them and here come the tests...blood tests colonoscopy etc. The Dr.'s also had put me on a VERY resrictive diet (pretty much ensure only). The colonoscopy showed nothing as the surgeon that did it refused to give me pain killers and I felt the whole thing...as a result there was no conclusive on anything. I was tired of waiting around and being poked at so I said I will just live with it.
We moved yet again a year ago and I began to have other health problems (PCOS & pituitary gland). A friend's gluten-free (nurse & celiac) asked me if I had been tested for Celiac "I couldn't tell you" Off to a new Dr. (the other 2 are always away) she order blood tests for EVERYTHING imaginable including diabetis (runs very heavy on fathers side!!) I also found out the other day that my cousin was diagnosed with Hypoglycimia then celiac a year later...
Got my test results for some of the test but not the celiac yet. I have hypoglycimia that if not taken care of I will be a type 1 Diabetic in less than 5 years. She told my to go on the gluten free diet as I have already had the blood tests done and she will let me know how the come out when they get in.
I have had stomach problems for as long as I can remember. Through High school it was bad but managable. My mother and grandmother both have "IBS" or so they have been told. I have been anemic several times for extended periods of time especially while I was pregnant with my 3 kids.
Like I said since my mom and gramma have "IBS" I had always chalked it up to be the same till I was 20...The guy I was dating at the time had Crohns now in no way at that time were my tummy issues as bad as him.
After my husband & I had my first child aprox. 2 years later things changed dramatically. It seemed that not matter what I ate I was all over the map!!! Some days I would be great and could eat anything and other days i couldn't eat anything without sending my into cramps, hot flashes and several trips to the bathroom. I tried to control it through diet...it help very little.
Over the next 6 years again I just lived with it because when I had asked my Dr. at the time she just said its IBS and never did ANY tests.
3 years ago we moved to a different town new DR. complained once to them and here come the tests...blood tests colonoscopy etc. The Dr.'s also had put me on a VERY resrictive diet (pretty much ensure only). The colonoscopy showed nothing as the surgeon that did it refused to give me pain killers and I felt the whole thing...as a result there was no conclusive on anything. I was tired of waiting around and being poked at so I said I will just live with it.
We moved yet again a year ago and I began to have other health problems (PCOS & pituitary gland). A friend's gluten-free (nurse & celiac) asked me if I had been tested for Celiac "I couldn't tell you" Off to a new Dr. (the other 2 are always away) she order blood tests for EVERYTHING imaginable including diabetis (runs very heavy on fathers side!!) I also found out the other day that my cousin was diagnosed with Hypoglycimia then celiac a year later...
Got my test results for some of the test but not the celiac yet. I have hypoglycimia that if not taken care of I will be a type 1 Diabetic in less than 5 years. She told my to go on the gluten free diet as I have already had the blood tests done and she will let me know how the come out when they get in.
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#632788 More Testing On Tummy Problems
Posted by skgirl
on 18 August 2010 - 01:30 PM
#632426 More Testing On Tummy Problems
Posted by skgirl
on 17 August 2010 - 10:22 AM
So went to the Doctor the Celiac panel isn't back yet however she told me that in the mean time to go gluten free for at 3-6 months and see how that goes. She will call me when the panel comes back to let me know what it says but she told me the same thing that I have read here in so many posts the "False negatives are extremely common" I also was diagonased with hypoglycemia which if I don't watch it will turn into Diabetes within 5 years.... just one more thing to add to the list. My fathers side is riddled with it and the celiacs would come from my moms side (so I think mom & grandma have major tummy issues) However I talked to my dad and my cousin started with hypoglycemia then turned out he has celiacs....
- 1
#631506 More Testing On Tummy Problems
Posted by skgirl
on 13 August 2010 - 01:15 PM
Dr's got my test results today I only had the tests on Wednesday....WOW I have to go see her next week YAY maybe some answers
- 1
#630633 More Testing On Tummy Problems
Posted by skgirl
on 10 August 2010 - 10:39 AM
So here is my coles notes story....
I have had bad tummy problems since I can remember but they got really bad at the age of 16. I was a late bloomer almost 15 when puberty hit. Originally I chalked it up to food (mostly meat intollerance) My mother and Grandmother have the same problem. Two years ago I had been getting really bad/sharp stomach pains about 15 mins after eating and it didn't matter what it was. Went to the Dr.'s whom then sent me for blood tests and a colonoscopy (for crohns & colitis) which didn't go well felt every minute of it finally told the Dr. to stop because the pain was unberrable (and I have had 3 kids 1 all natural). When the results had gotten to my GP they said they were inconclusive... hmm i wonder why??? Anyways I had about enough of being poke and prodded at so I stop testing. My friends's new gluten-free (a nurse & celiac) suggested that I go and get tested for Celiac. I went to a new Dr. (i have moved) explained to her the time length and a brief on symptoms and she ordered at wack load of tests pretty much everything on the paper and then some.
Symptoms are:
stomach cramping, diarreah, loss of appitiet, lactose intolorant, I have been anemic for who knows how long, odd menstration (I also have PCOS and a messed up petuitary gland), monster headaches.
I have been paying more attention as of late to what i am eating since there seems to be no consistancy on what causes my stomach discomfort.
I hope that these test will find something or lead to something that may be bothering me so far though if it is something i would prefer celiac to crohns or colitis as it is WAY easier to treat!! Going for my blood tests tomorrow should find out soon....I hope
I have had bad tummy problems since I can remember but they got really bad at the age of 16. I was a late bloomer almost 15 when puberty hit. Originally I chalked it up to food (mostly meat intollerance) My mother and Grandmother have the same problem. Two years ago I had been getting really bad/sharp stomach pains about 15 mins after eating and it didn't matter what it was. Went to the Dr.'s whom then sent me for blood tests and a colonoscopy (for crohns & colitis) which didn't go well felt every minute of it finally told the Dr. to stop because the pain was unberrable (and I have had 3 kids 1 all natural). When the results had gotten to my GP they said they were inconclusive... hmm i wonder why??? Anyways I had about enough of being poke and prodded at so I stop testing. My friends's new gluten-free (a nurse & celiac) suggested that I go and get tested for Celiac. I went to a new Dr. (i have moved) explained to her the time length and a brief on symptoms and she ordered at wack load of tests pretty much everything on the paper and then some.
Symptoms are:
stomach cramping, diarreah, loss of appitiet, lactose intolorant, I have been anemic for who knows how long, odd menstration (I also have PCOS and a messed up petuitary gland), monster headaches.
I have been paying more attention as of late to what i am eating since there seems to be no consistancy on what causes my stomach discomfort.
I hope that these test will find something or lead to something that may be bothering me so far though if it is something i would prefer celiac to crohns or colitis as it is WAY easier to treat!! Going for my blood tests tomorrow should find out soon....I hope
- 2
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