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twohokies

Member Since 13 Aug 2010
Offline Last Active Nov 06 2010 05:56 AM
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#631769 Too Quick Of A Reaction?

Posted by twohokies on 14 August 2010 - 08:07 PM

It seems like most of us get more sensitive to being exposed to gluten the longer we go without it. I can say that for me, now when I get bloating/constipation pain like I used to, I'm shocked that I could deal with it so well for 30 years. You do get used to constant pain; and once you go without it, it is hard to get it again. But it does help keep us on track.

I hardly ever get pains now from gluten or other dietary factors, so you can be assured that if you get this thing handled, her life is going to be so much better. Good for you for figuring it out and making that effort.


Thank you for you for your responses! I am so grateful that we have discovered her celiac so early in her life. It's good to know that *she* will know when she has been glutened and the reliance won't be so much on us and she can become more independent as she grows older.
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#631578 Too Quick Of A Reaction?

Posted by twohokies on 13 August 2010 - 06:44 PM

We are new to celiac and going gluten-free. My 3yo just tested positive last week in the bloodwork and had the endoscopy today; GI saw a lot of celiac markers in her instestine (irritation, scalloping). We have been removing a lot of gluten in the past 10+ days but aren't 100% there since school will take a little time to sort through all the art products, etc. My question.........

Once she is 100% gluten-free and her intestine is healed, will she always feel pain if she's glutened? Is she just used to the pain now or will the body be over-reactive to it in the future when it's not an almost-daily occurence?

Thanks!!!
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#631576 Symptoms, Celiac Testing, And What To Do If The Tests Come Back Negative Advi...

Posted by twohokies on 13 August 2010 - 06:37 PM

We are VERY new to celiac, just getting the positive test results last week and biopsy done today. GI doc will be surprised if biopsy comes back negative based on what he saw. So I don't have too too much to add, but:

The reason we tested my daughter at her 3yo well visit was due to her bowel issues that they are always soft and every 6-8 weeks turn into liquid for no reason. She also complained of stomach pain throughout the day and especially during the 1 of 5 daily bowel movements; she's been potty trained for almost a year. Now that I know she has celiac, some things are explained: her horrible diaper rashes even when pt'd b/c of the acid on her bum, distended belly and small growth.

Since August 2nd, we've put her largely on a gluten-free diet and have seen so many improvements almost immediately. Tummy pain is gone and BM's are more formed and only 1xday, if that. Even though she's a newly 3yo, she notices the difference to the gluten-free diet.

I would definitely suggest doing food allergy panels to cross things off your list. I would also consider going gluten-free/CF to test for intolerences that won't show up in the allergy panels. My 5yo has an intolerence to dairy (not sure if it's cassein or lactose), but didn't test positive for that allergy. We took her off all dairy a year ago and it's amazing the improvements in her bowels and stomach pains. She had very similar reactions & responses to dairy as my younger daughter has to gluten.

Good luck! I know it's difficult to hang in there, but get the bloodwork done and go from there. In the meantime, try cutting out your typical allergen foods.
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