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L-NO

Member Since 17 Aug 2010
Offline Last Active Aug 19 2010 03:45 AM
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Topics I've Started

Negative Celiac Panel But Gluten Free Helping

19 August 2010 - 03:49 AM

I got my test results:
Immunoglobulin a : 92 (normal range= 82 to 453)
Transglutaminase IgA: < 20 (normal range= <20 units)

I understand that there are alot of false negatives. I feel like the gluten free diet has been helping me over the past few days. When I am on it, I dont get diarrhea. Yesterday, when I accidentaly ate gluten (soy sauce)I could immediately tell. It felt like I had drank bleach, and had diarrhea. I am going to continue gluten free until my GI appointment on September 15th. Is it possible to have gluten intolerance and not celiac? If so, does the intolerance still cause intestinal villa damage or just stomach upset?

Thanks,
LNo

I Need An Answer

17 August 2010 - 01:44 PM

I just started reading about celiac yesterday because Im at my wits end. Im tired of getting diarrhea after most meals, Im tired of having to worry about where there are public restrooms. And mostly, im just really tired! About 10 years ago I was diagnosed with IBS after an incident of dizziness, blood in stools (i was told it was hemorrhoids), and diarrhea. I went on to have a colonoscopy, which showed juvenile polyps. ( I have had 2 subsequent colonoscopies that were normal). Ive been able to tolerate the IBS over the years, sometimes getting diarrhea for no reason...or being able to eat the same thing on numerous occasions and then have it give me diarrhea. About 2 years ago I started having really bad sinus infections (about 5 in a year), and at one point they prescribed me augmentin which gave me colitis.) In June of this year, I went to the Dominican Republic and came back with really bad diarrhea (like...really bad!). I was put on 2 rounds of antibiotics ,and while the consistancy of the diarrhea has changed, the frequency is still ridiculous. It is interfering with my work, social life and everything else. I get diarrhea multiple times daily, even after eating plain/bland foods. If it were IBS, would plain pasta cause diarrhea? Yesterday I had to leave work early after having severe cramps, sweating, nausea and diarrhea multiple times. Im afraid Im going to lose my job! I started looking online and celiac seems to match alot of my symptoms. Also, I have underlying medical conditions...which REALLY suck.

My Medical History:
Asthma since 8 months old (for several years wheat, yeast and chocolate would exacerbate asthma)
Third degree burns (Not related to anything except depression)
Polycystic Ovarian Syndrome (havent had normal periods for almost 15 years)
Gene positive for Huntington's Disease (ya..my futures real bright...)
Depression
Sleep disturbances
Night Sweats
Chronic Diarrhea
Bloating
Gas
Stomach Cramps
Chronic sinus infections requiring surgical intervention
Tonsil stones requiring tonsillectomy
Chronic costochondritis
low back pain
chronic fatigue
headaches
weird rashes on both forearms that dermatology couldnt diagnose (def not dermatitis herpatiformis)
and the list goes on....

I also have fam history of:
Colon Cancer
Breast Cancer
Huntingtons Disease
Kidney Failure
Multiple Sclerosis
Dementia
Diverticulitis

i had the blood testing done today for the celiac panel. I hope that this is what I have, because I am so tired of no answers. I already have enough medical conditions, I dont really need another. but at least with celiac there is a treatment! Do my symptoms sound like celiac to you? Im just tired of being depressed. And Im ONLY 27!