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Muffy

Member Since 27 Aug 2010
Offline Last Active Oct 13 2011 08:16 AM
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#674673 Almost Cried At Work!

Posted by Muffy on 12 February 2011 - 08:20 AM

It helps me to know that it is poison. Not appetizing in the least.

Honestly when I see people eating or drinking gluten I feel bad for them. Especially when they have an obvious weight issue or auto-immune disorder and the like. Very hard to watch people killing themselves. :( Breaks my heart every time.



That's how feel. Yuck. And when I watch people I care about eat it I want to cry and scream, but usually I just try to educate them. And then they blow me off. :(
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#674671 How Do You Know If Someone Is "super Sensitive"?

Posted by Muffy on 12 February 2011 - 08:07 AM

I am super sensitive, although I struggle with accepting this strange reality. I react to processed foods, products, distilled alcohol, flour particles in the air, and I suspect VOC's from cooking wheat products as well. And those are just my wheat issues. Posted Image I am still figuring it out and get CC'd everywhere I go so it has been hard for me to process everything. And sounding like a crazy person doesn't help. Well, I suppose I AM a crazy person when CC'd and in my funky foggy moods. Oh, did I mention I think I am in one now? :angry:
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#671501 Hashimoto's And Grave's :((((((

Posted by Muffy on 29 January 2011 - 09:08 AM

thanku XXX

ive been reading A LOT... and learning about which supplements can help, and how avoiding Soy & of course Wheat are a must. i just really hope i end up as a "best case scenario" which ive read would be when the Graves just flares up in the beginning then dies off while the patient progressively just remains with Hashimoto's Hypothyroid. i really dont want to have it get to ER visits & radiation...

thanku again


That is how I undertand it as well, that once the overactive thyroid (Graves) flares down the thyroid just remains damaged and in the underactive state. Be careful with the Graves. It almost killed me in 1995. I had NO idea anything was wrong at all, it was before most if my obvious wheat symptoms started to surface, right before actually. My heartate was 225 per minute at rest, my husband felt it pounding from sitting next to me on the couch but I didn't even notice! I ended up in the ER, where they ran all the tests twice because it was not supposed to be possible for me to be alive or at least not comatose with my levels what they were. They called it full T-Storm. Of course I don't know what these levels were becuase I was young and totally uniformed and this was long before I started to wise-up. Anyway, I was in the hospital for a week while I was stabalized and had the radiation treatment.

I didn't have other traditional Graves disease symptoms so they were suprised in the ER to find out that is what it was and I was literally about to drop dead from it. Be VERY careful if you plan to ride it out and let it settle on it's own. Had I known then what I know now I would have avoided radiation at all costs as well. My case was so severe though it may not have been possible. Knowing what you know will take you a long way, continue to research as much as possible and take an assertive role in your treatment. There are so many people that don't understand the link between their thyroid issues and thier diet, you are already 10 steps ahead!
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#671046 One Good Thing About Being The Only gluten-free In A House Of Gluten-Eaters....

Posted by Muffy on 27 January 2011 - 12:05 PM

I get extra big shares of MEAT!!!!!!! But we all do since I made the whole house go gluten-free. B) They guys love that I am always craving steak and bacon though, that is for sure. :lol:
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#671044 Wheat Allergy And Grain Alcohol

Posted by Muffy on 27 January 2011 - 11:53 AM

From what I understand the reason some alcohols that are grain based are gluten-free is because the offending gliadin protien (is that right?), which is one protien within the gluten protien (which is a dual protein), is broken down during the fermentation process. Similar to the way it is broken down in aged cheese. (eww dairy... I know ;)

Depending on where you fall on the sensitivity/intolerance continuum and what parts of the wheat or gliadin protien you are actually reacting to you may be senstive I ways others are not. I have been wondering latley about the volatile omega 5 particle and how it relates to airborne sensitivity or delineating between what might be celiacs vs. wheat allergy, or both. Or perhaps another offending compound within the protien. There is so much information out there and I have so much to learn. However, I am SUPER sensitive all of a sudden and it really sucks. :angry:

Just a few weeks back I had a shot of whisky. Bad call. I even spilled some on the skin around my mouth and got a NASTY little rash. I actually thought I had herpes or something. It itched, burned, was red with small blisters and it just went away. I have had other forms of DH but that was diferent and I felt other affects right away, even through the affects of the alcohol - and I am a total lightweight!

What is interesting though is that when I have airborn reactions (controversial I know - do a search on this site for more info ;) I get the same strong symptoms I had when I had that shot of whisky (in order of appearance): coughing, excess mucus, swollen throat, asthma, light-headedness, dizziness, confusion, irritability, anger, anxiety,depression, nihilism, apathy, fatigue, tremors/twitches, DH, muscle/nerve pain, migraines.....and more DH ;) This is what I have figured out so far anyway. Argh.

Good Luck!
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#669097 Dictating What Others Can Eat Around Me?

Posted by Muffy on 19 January 2011 - 05:41 PM

Hi weluvgators,

I run the before and after school program, which means I am in the cafeteria/gym during the entire cooking and eating of breakfast. Plus I serve a daily snack and students sometimes bring thier own breakfast or snack as well. I did finally manage to get all the traces of non-gluten-free playdough out of there. And I finally trained my brain to stop and think before rubbing my eyes, leaving my coffee out, and using the nearest soap or cleaner. It is a shared space though, by many all day and evening as well as a center for food. I try to avoid crumbs but they do ambush me when they are missed by a previous group or left over as evidence from a hungry and mischevious child ;).

Argh.

I actually gave up most processed things before I went gluten-free when I was eliminating sugar....yes, a long strange trip ;) As I got more comfortable I would eat some gluten-free things for the microwave here and there and noticed the frequency of my CC getting worse so I rarely do that anymore.

You know what is weird though? I ordered Girl Scout cookies from some kids knowing at the time that I wouldn't eat them and that I didn't want anybody else to either. The mind is very strange indeed...

Double Argh!

Hey, Muffy, we have to work really hard to keep our kids safe at school, so I thought I would share what is working for them. The classroom should be gluten free - period. Give me specific examples if you feel that this is not feasible, but I think it should be. Encourage hand washing and tooth brushing (if you can!) for all of your students. We run a HEPA filter in each classroom as well, and the classroom that is very close to the cafeteria keeps the classroom door closed. Our oldest stays out of the cafeteria - always - she eats in her classroom. She has also pulled herself out of the gym - especially for that recess after lunch. I hope that you can figure out ways to cope if you want to! It has been a very long, slow struggle for our kids to be safely accommodated at school, but they want so much to be able to go to school that we have been working hard to figure out something that works well for all involved. They just aren't ready to give up on their dreams of going to school yet! And we are doing better this year as we have ironed out more details of what we need to do to keep them safe in such a gluten filled environment.


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#668729 Dictating What Others Can Eat Around Me?

Posted by Muffy on 18 January 2011 - 11:41 AM

I know this thread is old, but it has been very helpful.

I have been gluten-free for about 9 months and have been feeling so much better until recently. At firstI thought it was the hoildays with the parties and house guests and all that figured I was getting CC'd that way. But it is getting worse, like it is building up in my system and I am freaking out because I can not go back to living with that kind of pain and I can't think through the brain fog to get anything done.

Now I realize it is most likely where I work, in an elementary school. I get so dizzy and confused right after the school breakfast is served that I sometimes have to stop in the middle of the floor for a minute to get my balance. I get too confused to even do my job well after that. A few hours later the headaches start and last all day, sometimes for several days. The rash and itching are back and constant. I have not eaten any gluten and I don't touch it at work. My co-workers do because they know I shouldn't be. I have been very careful and while I have not done an actual elimination diet yet I have cut my food choices way back and only feel a bit better on Sundays but feel terrible again by lunchtime on Monday once back at work. When it is pancake or cinnamon roll day, it is worse plus I even get a lttle cough to go with. When a kids talks to me with cracker breath I feel dixzzy and forget what I am trying to say. My black moods are coming back and I am facing the possibility of having to leave my career, which I love. I was on sabbatical when I went gluten-free and it took two weeks after being back before I had to start looking for the secret source which was right in front of me.

Knowing that others have had simialr issues makes me feel less crazy.

Loey, it must have been so hard to leave teaching. I am trying to get accept a simialr situation, I am so depressed!
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#666832 Very Mild Case?

Posted by Muffy on 10 January 2011 - 09:25 AM

I also get the singular bumps, like a weird bug bite. I called them volcanoes for the longest time because they would erupt as I scratched and scracthed and would take forever to heal, my scratching didn't help. Posted Image

I get them on my hands, wrists, forearms, upper cest, neck, face, and knees. There is never any kind of symmetrical pattern. I have an itchy spot on one foot that comes and goes and drives me crazy, it is red sometimes. I never thought it was related but by reading the other replies I see that the mystery is finally solved. For a while I even thought maybe a I had a single paralyzed scabbie living there or something... Posted Image
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#665006 Please Help My Sister By Sharing Your Story

Posted by Muffy on 03 January 2011 - 08:31 AM

Gluten makes me anxious, paraniod, and rageful. I also get brain fog (which I still have), muscle twitches, dizzyness, and severe migraines. The anxiety, rage and obsessive-ness I've had since I can remember. I was having full blown panic attacks and hallucinaotry experiences by the time I was 16. Although the hallucinations seemed to fade after a brief time, the general anxiety and physical symptoms worsened. I didn't start getting the headaches until I was in my mid-twenties. Had I got the headaches sooner I may have taken the other symtoms more seriously and saved myself 2 near death experiences caused by gluten. Graves Disease (overactive thyroid) at age 21. My heartrate was 225 per minute at rest, they couldn't believe I wasn't comatose or dead already. And just about 2 years ago I had to have part of my intestines removed. I am lucky I can still function without a bag, unpleasant to think about but true.

The dangerous thing about having early symptoms that are not painful is that it doesn't seem as serious. But the longer it damages the body the more serious it will get. The migraines were/are the worst for me, it was the symptom that got me eliminating foods about 9 months ago and my anxiety based issues have severely decreased with the headaches ever since. I have a teenage daughter who just went gluten-free as well and her moods and emotional outburts are gone too.

Something else to think about is that one of the symptoms for Graves Disease is anger and irritability, and there is a strong coorelation between auto-immune disorders and gluten issues. If you have other symtpoms be sure to get your thyroid tested. And if there is an underlying thyroid issue, remember - it is still gluten related in origin.

Good Luck!




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#664389 Help With gluten-free On A Budget

Posted by Muffy on 31 December 2010 - 08:42 AM

No advice, you have to give up the convienece to feed a family on the super cheap. He needs to get them used to less sugar so they don't crave specific things as much. He can experiement with home-made dips using less refined sweetners for things like fruit, letting them help make it and pick the fruit. I buy meat when it's cheap and shred it up with veggies and rice or rice pasta to make it stretch. And add fat, garlic infused olive oil is yummy on everything. They might have to go through a phase where thier variety narrows until they feel desperate enough to expand thier preferences. That's what we had to do...


I have a friend who I know could benefit from going gluten-free (Couldn't everyone?) and he wants to give it a go but needs some help with what he can eat (brands and so forth). Obviously fruits, veggies, rice, potatos and meats are gluten-free but he has two young kids and so there will need to be the Fruity Pebbles and the like around, at least in the initial transition.

My problem is that I don't know how to advise him how to eat gluten-free on a budget. My husband and I don't have to worry about money to the same extent and so I can afford Larabars and organic and gluten-free labeled foods. I don't shop outside of those sections at all.

So how do you do this on the cheap? I know that I saw a thread about this some time back but can't seem to resurrect it for some reason. :( I also understand a number of General Mills products are labeled Gluten Free but he'll probably need more variety and some of those are way more expensive.

Is there a basic shopping list out there with name brands? I know there is that book but as I understand it it isn't accurate. Any help from the budget savy among you is very much appreciated!


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