ljgs

My 15-year-old daughter was diagnosed with celiac disease two years ago this week. She has been extremely compliant with the diet and her antibody levels quickly normalized. But I remain terrified that she will develop Type 1 diabetes. Every time I hear about someone developing this disease, I worry all over again. There is a lot of talk about diabetic children developing celiac disease, but not as much known about celiac children developing diabetes. Can anyone offer any consolation or advice? Chances of developing Type 1 diabetes? Thank you.

A friend of a friend has a college-age daughter with celiac disease, and she says that the girl was tested for something called "contamination celiac," which is when you are sensitive to the remnants of gluten. Apparently this girl is able to eat cold cuts lifted directly off bread or pick croutons out of the salad and then consume the salad without any ill effects. She says you can test specifically for this. Her father also told me that she can eat Chinese food because she doesn't react to soy sauce. I have to admit, after he said that, I was very skeptical that this family was really doing everything they could to keep their daughter safe. I have never found anything online about a condition called "contamination celiac." My understanding is that celiac is black and white--you either have it or you don't, and if you have it then you absolutely cannot eat things that have touched bread, and you cannot eat soy sauce even though there may be just a small amount of wheat in it. Thoughts, anyone?