I have a few additional intolerances besides celiac (soy, histamine, MSG, nitrates and food additives, for example) yet my villi are no longer damaged. (I had a biopsy in August after nearly 3 years post-DX) Aside from some intestinal scarring (totally common in long unDXed older celiacs), I have no evidence of active celiac and I eat G F grains.
Just because you have a "reaction" or do not feel well, it is not necessarily because your villi are damaged.
I have read everything there is on grains, grain- free paleo type diets, and other food intolerances.... and in particular, the assertions of the many "pseudo-docs" on the internet. They are chiropractors and various alternative health people who think they know what's best for celiacs. They don't.
Some people do well on a totally grain free diet. I felt pretty good when I did it for 2 months, but I missed oatmeal and rice, so I have added them back in small quantities and I feel fine.
Everyone is different, yes, but G F grains do not cause intestinal villous damage. The leading celiac specialists have said this over and over again, based on solid research.
The only way you will know if paleo works for you is to give it a good solid trial for 6 months.
Read this article by Dr. Fasano, et al. You may find it interesting. And do not believe everything you read on the internet by people like Osborne, Clark, "Dr. tom" etc..... Choose wisely.
Dr Fasano's research makes the most sense to me and he believes a health microbiome brings us good health. (he is not the only one)
Take probiotics, if you aren't already.
Thanks! I have been trying to be more vigilant about the probiotic, but I'm still not great at it. I probably need to get an actual supplement instead of just trying to eat Kiefer. I don't konw much about Dr. Osborne, and I haven't had the chance to really do research on what he was saying, though some of it did resonate with me, so I wanted to see if others felt they had the same issues. I will read the article you shared as well. Thanks for all the advice!