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Member Since 04 Sep 2010
Offline Last Active Dec 14 2012 11:53 AM

#766903 People Who Don't Want To Understand

Posted by on 21 January 2012 - 12:50 PM

I used to stop myself from being hateful, but when somebody is rude about me eating gluten free, I just tell them I hope they get to experience the kind of pain I experience when I eat gluten. Sometimes I mention explosive diarrhea and excruciating joint pain that kept me awake for nine months.

So what if they think I'm nasty. I think the same of them.
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#682331 Need To Hear A Success Story!

Posted by on 10 March 2011 - 06:55 PM

What a story! Thank you for sharing!

I forgot to mention I am also a violinist. The pain nearly made me quit. I am back to playing in symphonies and teaching six to seven hours a day. Hang in there.
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#682094 Need To Hear A Success Story!

Posted by on 09 March 2011 - 10:26 PM

I have not been here a long time, but I have been here long enough to get better.

All my life I struggled with this mystery, but didn't know what it was. I had seizures, dizzy spells, anemia, lethargy, skin rashes, sore throats, acid reflux, ulcers, bowel problems, the works.

About 1 year ago, it reached the point that I got pain in my shoulder and neck I thought I was going to die. I couldn't sleep. I hurt so badly that I couldn't even lay on either side (or my back) without being in excruciating pain. My posture changed. I moved like a 90 year old woman. I hurt so badly and no doctor could figure it out. I did physical therapy, but kept getting worse. I took Naprelen daily, but it seemed to get worse. My stomach hurt. My neck and shoulder hurt. I ly my job teaching orchestra at a public school because I couldn't do it anymore. I couldn't raise my arm above my shoulder.

It was do or die as I was starting a new job. I didn't know what I would do. Doctor after doctor came back with nothing. One of them finally told me, "maybe it's something you're eating." That night, I had a dream, I went online and looked up the word "seliac" that I heard in my dream. Google corrected my spelling and I started doing research.

A rheumatologist tested my IGg, but it came back normal. He decided to put me on the gluten free diet anyway. It changed my life. I haven't been back to a doctor since.

Within one week, my neck pain was relieved to the point I could sleep again. A string of symptoms started to disappear. I don't remember what order they left, but I no longer had:
gas, loose stools, stomach ache, nausea, inability to eat, odd body odor, pain in my shoulder, shoulder impingement, neck pain, pain in my hips, pain in my elbows, swelling in my joints, etc.

Eventually, I found out that I couldn't tolerate oatmeal (even the gluten free kind). And I started to eliminate some more things I initially thought were gluten free. I live very strict on the diet. I don't eat at restaurants because I don't trust them. I don't cheat. Six months. And I'm better. Life is worth living again.

I occasionally ingest something accidentally. The gas comes and stomach pain come back, followed by some joint pain the following few days. It's completely manageable at this point. Never the excruciating pain like it was before.

It took about six months for it all to really get to where I didn't have daily pain. But I got there, you can too.
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