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gifree

Member Since 05 Sep 2010
Offline Last Active Oct 30 2013 01:27 PM
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Topics I've Started

Looking For An Integrative/alternative Medicine Doc In The South Jersey/philly Region

18 July 2013 - 04:46 PM

Hi There-

 

So, It's been 3-years since I was diagnosed and unfortunately, It's been all downhill since. Symptoms seem to be multiplying, not abating. Most recently, I was diagnosed with the early stages of hashimotos and prescribed a low dose of tirosint, which has made me feel very spacey, non-functional. I'm wondering if the extreme fog is any indication of pre-diabetes (have had slightly raised blood glucose level, in the 100 - 110 range for sometime) or adrenal (raised ACTH) function?  Anyhow, instead of trying to dig a little deeper, my endocrinologist recommended that I see my primary care physician. WTF? Is it so difficult for practitioners to pull-up their sleeves? While I have heard very good things about my endocrinologist, I'm disturbed that he is so willing to punt. This is is all new to me frankly, as up to 3-years ago, I rarely saw a doctor...which is maybe why I'm in this bind in the first place.

 

Anyhow, I have been to numerous specialist, none of whom have been able to provide a top down understanding of what the heck is going on here. They all (maybe understandably) operate within their own little tranche. So, I'm thinking of seeing an integrative/alternative/naturopathic doctor(s)...hoping that they can diagnose and treat what the other practitioners have not.

 

Thoughts?


Help! 3-Year Since Celiac Diagnosis And It's Been All Downhill!

13 June 2013 - 01:02 PM

Greetings All: I wish this were a feel-good post...

 

I was diagnosed with classic celiac disease 3-years ago and have felt progressively worse ever since. My symptoms prior to diagnosis were mostly neuro-related. I was reasonably fatigued most days, found it exceptionally difficult to focus on anything that didn't interest me, had anxiety and a somewhat sensitive stomach. I also had silent GERD. In comparison to today, I'd take that symptom profile any day of the week!

 

Now, most days are marred by bad brain fog, which sometimes blows off in the mid-afternoon or just sticks around all day. This has been exceptionally debilitating. I also am experiencing a level of fatigue unlike anything I ever experienced in the past, a much more sensitive stomach and inconsistent bowl movements. Sadly, these symptoms are consistent with a pre-diagnosis...not post-diagnosis.

 

I am somewhat at a loss. A recent follow-up endoscopy and colonoscopy provided no answers. The results indicated that my villi are healing and there were no mentioned signs of gastritis, crohns, ibs, gerd, etc. The only anomaly that I am currently managing is a sluggish thyroid, which my endocrinologist described as early onset hashimotos. I am currently taking tirosint, which I have been on for approximately a month. I also begrudgingly take achipex (ppi) for the gerd and Adderall for attention/energy. I would say the meds have provided some relief, but I have a long way to go before I can approximate anything resembling normalcy. I'd rather not be taking any meds, none of which I took prior to the celiac diagnosis.

 

I have had numerous allergen tests and tested slightly positive to certain airborn allergens and a whole bunch of foods. The food test was conducted by alletess shortly after diagnosis, but my GI doc dismissed the results. I'm wondering, now 3-years later, if I should have the test done again and closely adhere to the recommended foods/rotation, etc. I never knowingly consume gluten, but do occasionally consume other common allergens...soy/egg/lactose/nuts. Since my malaise/pain is constant, it's been very difficult to associate symptoms with specific foods...if that's even the problem.

 

I'm not sure how long it takes for the full benefits of tirosint to kick-in, but I'd love it if these issues were mostly/all thyroid related. As for vitamin/mineral deficiencies, I take a daily multivitamin, plant-based enzymes with most meals and a near-daily regimen of probiotics. Recent blood tests indicated that I am extremely low in iron and also am not absorbing iron well, but because of my stomach/thyroid issues was discouraged from taking an iron supplement. I suspect that my gut still has a long way to go, is constantly inflamed for some reason and needs a buddy.

 

Does the above resonate with anyone? Does anyone have any suggestions? I'm all ears.

 

Thanks!