My first post to this down-under sub-forum. I'm Kiwi born, but mainly raised (and currently live) in South Australia. So I guess I'm double OK to chat here?
After many symptoms consistent with coeliac, and then a negative endoscopy (went gluten-free anyway), I've recently been diagnosed with Lactose Intolerance from same endoscopy a few weeks later. Thus have been refered to a dietician who (via my information gathered from the telephone-call and her commercial website) seems to specialise in gastro-bands for weight-loss and hasn't heard of Fructose Malabsorbtion...which the Eastern States of Australia/UK/USA seem to have heard about... hello?! I'm quite skinny at the moment, so I'm pretty sure, she'd send me away with her $200 30 minute consultation bill and a cup-cake! Um, cancelled that appointment... and made another with local GP to see if he can recommend a better dietician than the gastro-doc... but I somehow get the feeling that the Adelaide docs are a bit out of the loop.
I would really like to hear if anyone knows about about a South Australian medic/dietician that is good with gluten-intolerance, lactose-intolerance, frucose malabsorption. Or should I just telepone/fly to the Eastern States?
After recent negative endoscopy results, and feeling like I'd 'fallen through the medical net' whilst basically house-bound due to the many and extreme symptoms that seem to be shared by others with gluten and other intolerences... I decided to take things into my own hands and for 100% gluten, dairy and soy free. (I have already been meat and egg free for five years as they mess with my female hormones... think PMS 24/7...
Anyway, a week into gluten free I stocked up on fruit and vegies. I felt terrible. Then combined with the fantastic: information, linked-online-resources, advice and experiences on numerous threads from members of this forum re: Fructose Malabsorbtion (FM), low FODMAP diet and elimination diets (much of which seems to be spreading worldwide from the East Coast of Australia)... and combined with my food diary... I decided to do the FODMAP diet aswell. I know it is strongly advised to do this in conjunction with an informed dietician, but I felt both the gastro doctor and my GP had basically shut the door for referals etc.
However, yesterday, my gastro doctor phoned to say my biopsy had tested postive for lactose intolerence, and he has informed my GP to refer me to a dietician. Fab! He also said 'you sound anxious', and (possibly fortunately) I had just had one of my almost daily gut-wrenching vomits which leave me trembling and with a dripping nose. He really started to listen, and didn't treat me like a hyochondriac hippie. I raised FM, and he immediatelty said FODMAP, so he's in the loop... and says he knows a local dietician who could help with this. Double fab!
Just wanting to know, if like pre: blood tests and endoscopy for celiac diagnosis... should I not go on a LOW FODMAP diet pre seeing the dietician? Also, what tests are involved? (I believe it is something to do with breathe tests?)
My recent blood tests said possibly for celiac, but endoscopy results yesterday said no. So, with information gathered from this forum I had decided I would immediately go 100% gluten and dairy and soy free (just eat fruit vegies potatos fish and herbal tea). I know it will be difficult, but hey I want to get out of this non-life. I was thinking of gradually re-introducing cheese and soy milk, and see how I go. However, I'm just wondering whether to just keep on my normal diet for a while so I can have other allergy/intolerance tests to see what is really a problem and what is not. And I've seen nuts, eggs, legumes, potatos also seem to present problems with others on this forum. I have found (online) that a doctor at my local practice specialises in nutrition, so I'm thinking make an appointment, get the allergy tests done and then go gluten and dairy free (I think dairy/soy is in there, as my sinuses are pretty swollen and wrecked.) Do you think, it is worth coping with a week or two more on a normal diet in order to get a comprehensive diagnosis in order to move forward with all the information possible? And what to these tests involve? Ta
I'm a newbie to the forum, first post this morning Just a bit worried about how to reply (some people tend to 'quote', in a blue square, which thread of the postings they are responding to, which I imagine can sometimes be helpful/clarifying). Also, my profile details does not seem to include the photo I added, and there is a disturbing 'warn status' under me name. just little things, but I don't want to be making blunders. Ta, tarni
Hi, this is my first post, but in my research into celiac disease I have searched this forum on many topics... and my symptoms tick all the boxes from chronic fatigue through to drenching night sweats, eye tics, bloating, diarrhea, teeth grinding, irregular menstrual cycles ... the lot... However, I just received my endoscopy results and they are clear. Not sure what to do now. Has anyone out there just taken things into their own hands and gone gluten free and felt better, despite the negative medical diagnosis? Ta